I have brittle asthma , coupled with chronic hyperventilation syndrome and dysfunctional breathing . I recently had a stay in hospital under a new consultant who said my anxiety was a big contributory factor to attack and refered me to the psychiatric team m who since I've been discharged have decided I don't need follow up . However my consultant - who is new at the hospital - he used to work at the trusts sister hospital wants to re run loads of tests , more lung function and a test that measures nitrous oxide ??
I take max meds as preventatives and have been on oral steroids since 1995 - my maintainance dose is now 15 mg . Will this affect the results of all the tests . When I am welli can blow a peak flow of 450 - 480 and don't take hardly any reliever meds ( smart regime ) during the day but when I am ill I am usually on optiflow, hydrocortisone , IV aminophylline and IV magnisium . I have had to give up work and am registered disabled with my asthma but I don't understand why he wants to do all these tests , I spent 3 months at the Brompton and endured every test posi le many years ago . It is if he does not believe my symptoms or diagnosis and I'm scared of what's ahead . I used to have a good relationship with the Resp nurse at the hospital but I did not even see her this last admission so could not discus with her and my consultant promised me a follow up appointment after discharge with her to check all ok - usually within 2 weeks - I've been home 2 weeks now and heard nothing and I just feel I've been abandoned because it was anxiety based . I have trouble sleeping each night and worry so much what people are thinking since my last admission and now wondering - is it all my fault and in my head . Just feel totally alone
Surely if I am wel, when they do the lung function then they will be normal ???
Any advice ???