Had my worst attack to date on Friday morning, ended up in ITU for the night aminophylline ( if that is how you spell it) drip. The physio who came round the ward on Sunday said she could hear my breathing down the corridor when I was admitted into resus so I must have been rather wheezy!
However it has given my consultant a bit of a kick into taking action. I have to see him next week but he will be changing me to aminophylline regularly,(does anyone have this? Do they have it in pill form or injected?) as well as referring me to Brompton. Because im already on 40 mg of pred, montelukast, fostair, qvar and spiriva and still having bad attacks without an infection present or any known allergies he thinks it needs to be investigated a bit more to see what else they can do. I was also told my asthma is Brittle. Which has been mentioned in passing before but they sat down and talked to me about it, which type it was (type 1) and all the differences and what I can do (which I was happy to realise I was already doing as I was definitely feeling like I was failing at controlling my condition) . I finally feel like I have some answers, not necessarily all the answers I wanted but I feel like I can take more control of my life and my condition plus it seems like there is more being done quicker to try and get it under better control. Im still worried about my job and my family being effected but I have realised I cannot do anymore than I do to change it and so what ever happens will happen and I will find a way to deal with it.
It's made me more determined to get back to at least trying to dance (I used to ballroom and Latin dance until the beginning of this year when it all started to get much worse)
So while it was scary and has been a traumatic weekend, I feel like I might be making some progress. And came home last night (after much begging to be allowed home) feeling a little more at peace with life in general!! (Though thanks to my crazy high heart rate from Everyhing I've hardly slept since Friday so it might be exhaustion)
There was no real point to this post I don't think so sorry if I bored you!