You may have to excuse me but I am am a newbie and its my first post.
We have 4 children one of which has asthma ( was diagnosed at 4 ish) he is 10.
We have been told he has non allergic difficult asthma. He has been in and out of hospital a lot. This episode had lasted 8 weeks now. He had another attack today and is in hospital tonight. His asthma is a tricky one we cannot locate a trigger or triggers. It just seems to be everything starts him off. He goes downhill very fast. When he is well he is 100% no wheeze with 99% oxogen levels.
His current list of meds is
salbutomal (when needed)
Atravent and ventaline for his nebuliser at home.
Magnesium sulphate (via a drip when needed)
My worry is am I doing enough as a parent to get him the correct treatment or diagnosis. He is under a consultant at our hospital who has been great. He has given us a red card so we can access the ward at any time when Owen is unwell. But it depends on what doctor we get to see. Some doctors say hes fine give him a neb and when they check on him an hour later they realise he has gone down hill fast and needs another neb. Hi consultant has given him test which we are waiting for the results of. When they come back he is being referred to the Brompton hospital in London for more tests. Is this enough or I am expecting too much (ie for someone to give us a magic tablet that will cure him).
My main concern is that from what I have been reading he falls in the category of the 5% with the most severe asthma and its those 5% which make up 90% of the 4 deaths a day from asthma. I don't want to be saying could I have done more to prevent the worst.
Any advice would be greatly appreciated.