I would love some advise on this issue. My 4 year old had his first asthma attack (completely out of the blue) 2 years ago so when he was 2 and a half. This was in the spring and doctors think hayfever may have set it off. He stayed two nights in hospital recovering, then was sent home with Salbutamol and Prednisolone for a further 3 days. At this point they called it ""sensitive air ways with a tendency for a persistent wheeze"" and we were told to take him to the GP for a review in 6-8 weeks. However, just a few weeks later he again had to go the A&E with a bad wheeze, got some more Prednisolone and was sent home the next day.
We were told to give him Salbutamol 3-4 puffs every morning and evening until a review could be done, now pushed back until October. We had the review and it was fine, no wheeze so was told it was all fine. November and December he was ill a lot with every flu and virus there was around, then January he had another attack and was treated at the hospital with a nebuliser. Got some more Prednisolone and sent home with no overnight stay. Then the same thing happened in February, this time he was treated with a nebuliser at the GP surgery because I took him there for an emergency appointment. We were sent to the A&E and he was admitted and spent the night there.
Finally we were given Clenil and he was put on 200mg 2 puffs twice a day by the pediatrician we saw there. Was told we should have him allergy tested to find his triggers. We had this done after much resistance from the NHS because of the cost and he is allergic to cats and grass. In March that year he had a further attack treated at the A&E before finally the Clenil kicked in properly and he was fine until November last year when he was 4 years old and woke us in the middle of the night gasping for breath and turning purple on the lips and ears. He was treated at home by the ambulance people and taken to hospital where they believed it was croup and a widespread wheeze. Was told his medication also needed a review and told to book a routine appointment with his GP. As our surgery is very busy this appointment was first week of February this year. His GP said his dose of Clenil was much too high and told us to give him 1 puff twice a day (still 200mg). Within 2-3 days the nighttime coughs returned and he started looking poorly, complaining of tiredness and wanted to be carried on the way home from nursery school (it's a 20 minute walk he used to skip or run). A few days later he started asking for his blue inhaler first thing in the morning and again at night and within 2 weeks we were giving him 3 puffs every morning, night and sometimes during the day.So I took him back to the surgery (different GP) and she put him back on the higher dose and wanted him referred to the pediatrics as he was NOT under pediatric care and didn't have an asthma plan or anything. This was something we had been fighting for for over a year but had been refused over and over again.
Now, 8 weeks on, we are still waiting to get his appointment for the pediatric team and he has developed a habit(?) of persistent throat clearing. I took him to the GP to ask why he was doing this and this GP wants him checked to see whether he actually has asthma or not, as he is struggling even with such a high dose of Clenil. He thinks, as my son always has a runny nose, that it could all be related to allergy and a runny nose and that he doesn't have asthma. I'm extremely confused now and frankly a bit fed up.
He has a younger brother (1 year old) that developed a persistent wheeze after a cold when he was 5-6 months old and he was instantly referred to pediatric care and has been taking Montelukast since he was 7 months old. He no longer has a wheeze because of it.
We have tried to get Montelukast so many times for my older son but nobody wants to give it out without a referral to the pediatricians and it seems nearly impossible to get an appointment with them.
Meanwhile he is struggling with tiredness, coughing and persistent ""flu"" symptoms and with the hayfever season coming around the corner I'm very concerned as he seems to be slipping between the cracks of the national health service. It's extremely difficult to get an appointment with the GP, if you want to see someone other than a locum doctor within 3 weeks, and the hospital is not being much more cooperative.
I don't understand how he can have had so many admissions to hospital with asthma attacks if he does not have asthma? We know he has recurring episodes of wheezing, and we know his triggers like cats and grass. Is it so difficult for everyone to get a diagnosis for a child in the UK? He has never been tested with a peak-flow meter or seen a pediatrician outside of A&E.