I know this is a long shot, but I really wonder, is anyone in the same position I am in. I have had pneumonia so many times over the last 2 years and countless other infections on top. It is safe to say that I don't spend longer than a week without another course of antibiotics. Now what I wonder is, does it get any better than this? I have had a CT scan and although it showed areas of inflammation, bronchial thickening and scarring, there was no bronchiectasis or at least no major concerns for it.
I am at that point where I just want things to go back to how they were pre-1st pneumonia in March 2009. I feel as though I never fully recovered from it and then when further infections hit (helped along by pred which I have been on long term for a good long while now) things just got worse and worse. My last spiro was 67% predicted and showed some obstructions, and major improvements from Ventolin, so we got something of a confirmation there at least.
I am not looking for a diagnosis, just maybe someone who is or has been in my shoes here as I am getting frustrated as another infection takes hold.