Posts - Lung Conditions Community Forum | HealthUnlocked

Lung Conditions Community Forum

55,270 members • 66,033 posts

All posts for August 2018

Visiting..and news

Dear BLF friends🦋, Bea and I have had to move out of our nice ground floor flat because of the works starting soon so Aria has been quite unhappy and...

Dear BLF friends🦋, Bea and I have had to move out of our nice ground floor flat...

Hidden

•6 years ago

47 Replies

DOING BETTER

I was on here awhile ago.just wanted to let the people know that tried to help me i am doing better.i am having no problems breathing and havent used the...

I was on here awhile ago.just wanted to let the people know that tried to help ...

hope132

•6 years ago

16 Replies

PLCH

I have recently been diagnosed with PLCH. I know its a very rare condition but can anyone recommend anywhere to gain useful information regarding it? Thank...

I have recently been diagnosed with PLCH. I know its a very rare condition but ...

Little-Gem

•6 years ago

6 Replies

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Hi, I'm Ros

I'm 58 , and a Newby. I've was diagnosed with COPD a few years ago and was sent to see a specialist in October last year for more tests, was verbally told by...

I'm 58 , and a Newby. I've was diagnosed with COPD a few years ago and was sent ...

Gingeros

•6 years ago

32 Replies

Appointment with specialist tomorrow

I have an appointment with my respritory special tomorrow, I will be asking him why after nearly six months I haven't heard from Newcastle hospital about my...

I have an appointment with my respritory special tomorrow, I will be asking him ...

Damon1864

Volunteer•6 years ago

21 Replies

Much better now , thanks for the community support

I'm so grateful for support and to know there are so many others like me with ACOS . All the investigation basically revealed a raised CRP with raised ESR. My...

I'm so grateful for support and to know there are so many others like me with AC...

DavidLeena

•6 years ago

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Lungs flare up

I anchored off of White Owl island when the sun was going down.. The water was calm and the ski was giving such a wonderful show that night.. My lungs were...

I anchored off of White Owl island when the sun was going down.. The water was c...

Clamdigger

•6 years ago

6 Replies

Acapella Device

Hi I am new to this site I have been recommended today by my GP to get one of these. Has anyone had experience of using one? Is there anywhere in Northern...

Hi I am new to this site I have been recommended today by my GP to get one of th...

Kibs2

•6 years ago

7 Replies

Following pneumonia.

Hi Friends. I went to the hospital for a check yesterday. They’ve had one lot of blood come back and my IeG is still quite high. There’s two more to come back...

Hi Friends. I went to the hospital for a check yesterday. They’ve had one lot of...

Mavary

•6 years ago

8 Replies

Very Severe Emphysema at 41, but feel OK

Hi everyone. I’m new to this group, but have found reading some of your stories really useful. I’m 41 and recently diagnosed with very severe emphysema. It’s...

Hi everyone. I’m new to this group, but have found reading some of your stories ...

Joeco

•6 years ago

12 Replies

COPD

I've been diagnosed with COPD for about 13 years and still don't know what that means. Everyone here seems to know which one of the diseases they have. How do...

I've been diagnosed with COPD for about 13 years and still don't know what that ...

Hidden

•6 years ago

10 Replies

Call if you need us

Yesterday I had someone call the district nurse on my behalf as I was still in the place where I was unable to speak. I have paper thin skin and my little dog...

Yesterday I had someone call the district nurse on my behalf as I was still in t...

Hidden

•6 years ago

4 Replies

What embarrasses you the most about your copd or bronchiectasis.

Any answeres please just wondering.... are we all the same except male or female ????

Any answeres please just wondering.... are we all the same except male or femal...

carolg1

•6 years ago

84 Replies

Update on 1st hard fought consultation albeit had to pay private

At last some one is actually listening to me and not telling me I am ok when I know I am not!! He is sending me for ct scan, oxygen assessment, pulmonary rehab...

At last some one is actually listening to me and not telling me I am ok when I k...

Tilantoe

•6 years ago

19 Replies

Possible Pulmonary Hypertension

Hello, I have been to 5 doctors who have all said that I suffered a severe anxiety attach while over seas. I had 3 normal ECG's, 2 normal x rays, and a normal...

Hello, I have been to 5 doctors who have all said that I suffered a severe anxie...

Hidden

•6 years ago

19 Replies

One of my dogs in for a late night swim yesterday

😂😂

Lillian12

•6 years ago

22 Replies

I've had a Pumonary Embolism and am looking for help and information

Hi, I had surgery on my leg at the end of May. A few weeks later I went to A and E with chest pains. I had my blood pressure taken and an ECG - I was told all...

Hi, I had surgery on my leg at the end of May. A few weeks later I went to A and...

Jacster

•6 years ago

6 Replies

Help

Hi I am on pip, slandered rate for care and high rate for motabily I have now been diagnosed with COPD on top of all my other illnesses and I'm scared to...

Hi I am on pip, slandered rate for care and high rate for motabily I have now be...

Kittyjack

•6 years ago

10 Replies

Goodbye old friend.

It's sitting on my wheelie bin Hoping not to go. Alas I think it's time has come, But it's causing me much woe. We've travelled many miles together, Can't...

It's sitting on my wheelie bin Hoping not to go. Alas I think it's time has come...

Hidden

•6 years ago

21 Replies

Hypersensitivity Pneumonitis(Extrinsic Allergic Alveolitis)

In the UK it has a different name

rottiro1

•6 years ago

2 Replies

X Ray shows nothing!

Struggling with breathing x Ray came back totally normal🙏 Why didn’t copd show up? Feel a fraud but can’t breath or move!

Struggling with breathing x Ray came back totally normal🙏 Why didn’t copd show ...

Trajam17

•6 years ago

7 Replies

VATS BIOPSY RESULTS FINALLY

Hi, I have posted a few times. I had a VATS lung biopsy and have a general diagnosis FINALLY. They first told me they were almost sure I had constrictive...

Hi, I have posted a few times. I had a VATS lung biopsy and have a general diagn...

rottiro1

•6 years ago

5 Replies

Pleurisy

So a little over last month I was sitting at my desk when all of a sudden my chest was building up with heaviness and pain, I laid down sweating with arm pains...

So a little over last month I was sitting at my desk when all of a sudden my che...

Vecs

•6 years ago

4 Replies

Prescription costs save money!

It may not be well known that if you have a PRIVATE prescription from a paid private consultant that you have to pay the full retail price for the drug BUT if...

It may not be well known that if you have a PRIVATE prescription from a paid pri...

peter06

•6 years ago

4 Replies

Finally coughing, good or bad?

Hi everyone, not posted in a while, hope everyone is feeling as good as they can. So today I've actually being able to cough, or should that be forced to cough...

Hi everyone, not posted in a while, hope everyone is feeling as good as they can...

keith9876

•6 years ago

11 Replies

I've partially tamed the oxygen tubing!

A lovely young man has just finished gouging holes in the architrave round my doors so we can now close the doors without re-enacting a scene from Airplane. I...

A lovely young man has just finished gouging holes in the architrave round my do...

ScouseTaffy

•6 years ago

5 Replies

PIP Assessment

Just got the date for my pip assessment, I'm feeling nervous about it I have COPD, asthma and other conditions, not sure what to expect even though I have a...

Just got the date for my pip assessment, I'm feeling nervous about it I have COP...

LawH1512

•6 years ago

15 Replies

IPF So many questions...not enough answers

So....I have never posted anything or blogged anything before so I am a newbie and as the post title suggests I have questions and few answers. Found out...

So....I have never posted anything or blogged anything before so I am a newbie a...

greenfishfing

•6 years ago

4 Replies

AEROSURE/Salt Therapy

Hi there My grandfather has recently been diagnosed with idiopathic pulmonary fibrosis. We have seen adverts for an AEROSURE respiratory device and I would be...

Hi there My grandfather has recently been diagnosed with idiopathic pulmonary fi...

KEVINMCDADE

•6 years ago

6 Replies

Being prepared.

Ever since my wife died And I've lived here on my own. I've employed a lady cleaner To help clean up my home. She comes on every Monday At nine o'clock till...

Ever since my wife died And I've lived here on my own. I've employed a lady clea...

Hidden

•6 years ago

25 Replies

Posts - Lung Conditions Community Forum | HealthUnlocked

Lung Conditions Community Forum

All posts for August 2018

Visiting..and news

DOING BETTER

PLCH

Hi, I'm Ros

Appointment with specialist tomorrow

Much better now , thanks for the community support

Lungs flare up

Acapella Device

Following pneumonia.

Very Severe Emphysema at 41, but feel OK

COPD

Call if you need us

What embarrasses you the most about your copd or bronchiectasis.

Update on 1st hard fought consultation albeit had to pay private

Possible Pulmonary Hypertension

One of my dogs in for a late night swim yesterday

I've had a Pumonary Embolism and am looking for help and information

Help

Goodbye old friend.

Hypersensitivity Pneumonitis(Extrinsic Allergic Alveolitis)

X Ray shows nothing!

VATS BIOPSY RESULTS FINALLY

Pleurisy

Prescription costs save money!

Finally coughing, good or bad?

I've partially tamed the oxygen tubing!

PIP Assessment

IPF So many questions...not enough answers

AEROSURE/Salt Therapy

Being prepared.

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