Had a very productive meeting with my Community Matron yesterday.
It was good to set down what I would like to happen with someone who can make most of it happen. She's a lovely lady who understands the needs and wishes of people like me. As I am in the latter stages of IPF, with no more treatment available that would make any difference. It was very helpful. She is going to notify my, GP, my local hospital and the ambulance service of my wishes.
The meeting has left me feeling a lot more content. I would recommend to anyone with a long term illness that they contact their own Matron.
On the plus side we're of for a weekend in Bournemouth O2 sorted so off we shall go.