CT result.: Hi all ,just an update . I... - Lung Conditions C...

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CT result.

Sherlock11 profile image
27 Replies

Hi all ,just an update . I had my CT result on Tuesday via phone call from my consultant. It showed an infection in my right lung and a small patch of bronchiectasis. As my FeNo is 88, I have to have a sinus CT and a repeat chest CT in a couple of months to see if the infection has resolved. I informed my respiratory nurse and she is convinced with my history and family history I have asthma and she is starting me on inhalers as I told her I am still coughing and breathless whenever I do anything. I already have a reliever inhaler which helps but she feels I need the steroid one to bring down the inflammation. Any thoughts greatly appreciated. Thanks.

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Sherlock11
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Patk1 profile image
Patk1

Hopefully it will help you.what are they doing about yr lung infection

Sherlock11 profile image
Sherlock11 in reply toPatk1

Since the scan in Feb I'd had another infection and cipro as it was pseudomonas again so I'm hoping it's gone. I will see if I have another infection, or failing that after the repeat CT in a couple of months. The infection didn't show on the x ray I had .

Patk1 profile image
Patk1 in reply toSherlock11

It's maybe worth putting specimen in if you've finished antibiotics. How're u feeling x

Sherlock11 profile image
Sherlock11 in reply toPatk1

I was asked to do this by my Gp but at the moment I'm only bringing up very small amounts of clear/ white sputum so I'm holding off at the moment. I did find the last course of cipro caused me tendon pain so I have mentioned it to the respiratory nurse and I don't think I should have it again.

Sherlock11 profile image
Sherlock11 in reply toPatk1

Been to see my practice nurse, FeNo redone, Caroline couldn't believe that it's gone up again , from 43 in Jan, 88 a couple of weeks ago and today 117. I've been told I have asthma, I think it's the eosinophilic type. I have been given a Qvar 100, a puff morning and evening. I have to go back in 6 weeks for a review.

Stewiecat profile image
Stewiecat in reply toSherlock11

Hi, I have eosinophilic, struggled/suffered breathlessness and constant sticky mucus (like a constant chest infection) for 18 months, when I eventually saw a consultant at addenbrookes first thing he did was add 2 puffs of Qvar (am & pm) to the fostair 100/6 (same dose) I already use, it made a big difference to my ability to get through the day without needing constant extra puffs of fostair, daily clearance of your mucus/sticky casts are a must, I paid to see a good physio for two initial sessions, if it is eosinophilic your bloods will have the clues with raised eosinophils, I think anything about 0.50 is high, mine hovers around 1 🤦‍♀️ you'll probably need a respiratory consultant to diagnose it, gp's and asthma nurses don't generally know anything about it in my experience, I hope you get some help soon i know how hard it is xx N

Patk1 profile image
Patk1 in reply toStewiecat

I've severe eosinophilliac asthma too.biggest help has been biologics

Stewiecat profile image
Stewiecat in reply toPatk1

Hi Patk1, that's so good to hear x i have my first appointment with Thoracic on Monday next week, so 🤞🤞🤞 as I'm close to living on prednisolone ☹️ and finding it more difficult to manage despite all my efforts, my consultant has referred me for tezspire. I hope the biologics have helped make a good difference for you, I can't wait for the possibility of being less overwhelmed by it x N

Stewiecat profile image
Stewiecat in reply toStewiecat

I meant it to read, good to hear the biologics are helping you, not that you have eosinophilic too 🤦‍♀️🤣

Patk1 profile image
Patk1 in reply toStewiecat

They've helped me a lot for 5wks of 8 wk cycle.im on fasenra( benrazilumab). I'd not be without biologics now sp hope u soon get approved.im hoping to change to tezpire as its 4wkly.all the best x

Stewiecat profile image
Stewiecat in reply toPatk1

I'm glad you are doing well on the biologics 😊 Good luck to us both for tezspire 🤞 keep well x Nicola

Patk1 profile image
Patk1 in reply toStewiecat

Thanku.anything that helps is worth it.if I could have it ea 6wks,it would be better.it has added benefits on my severe airway collapses,bronchiectasis etc too.do keep pushing for it,it's yr life x

Sherlock11 profile image
Sherlock11 in reply toPatk1

I'm already on a biologic for a different illness, I'm not sure they would want to give me another. Does anyone else have FeNo done, and what are your results, so I can compare if mine is high or not in the grand scheme of things. Thanks.

Mooka profile image
Mooka in reply toSherlock11

Yours are high. My respiratory doctor wasn’t happy when mine were over 50. He wanted me to take steroids but I didn’t want to having just weaned off them for my vasculitis. We compromised on budesnide, a steroid, in my nebuliser. I nebulise colomycin daily to keep the pseudomonas numbers down and budesnide was added into this. I haven’t had mine tested for years.

Sherlock11 profile image
Sherlock11 in reply toMooka

I already take 5mgs pred for another illness and I don't want more. It seems whenever I have the FeNo tested it goes up. I had my ESR checked last week as I do every 3 months and that has gone up for me. It is usually 2, but this time it's 15, so somethings going on. I don't feel like I have asthma as I don't wheeze, I just get out of breath easily and cough for no reason. I'm having my sinus CT this evening as I had a phone call at lunchtime asking if I could go.

Patk1 profile image
Patk1 in reply toSherlock11

Although wheeze is associated with asthma,not all asthmatics wheeze, Sherlock.take a look on aluk website

Stewiecat profile image
Stewiecat in reply toSherlock11

My last tests were mid January, FeNo was 69 which is where it tends to hover, along with high eosinophils 🤦‍♀️ it's why I spend so much time on prednisolone 🤷‍♀️ I've decided not to worry myself with the numbers, it doesn't help day to day, I have to listen to myself and how I feel, so I'd say try not to get too into numbers, take care x N

peege profile image
peege

Many of us with different lung issues couldn't cope without our reliever. Yesterday (because I'm wiped out at the moment) I forgot to take my morning dose as well as the mucolytic Carbocysteine. By 12pm I was non stop coughing. The reliever is a great improvement in quality of life. (Mine is Fostair) I hope you'll try it, they do take up to 3 weeks to fully take effect so be patient - and thoroughly read the leaflet for correct method of use. Good luck

Izb1 profile image
Izb1 in reply topeege

My chemist won't issue Fostair and said that new patients to this are given Luforbec as its cheaper. Luforbec gave me a terrible cough and have just come of it. I hope they don't change yours if Fostair is working for you x

islande profile image
islande in reply toIzb1

if your dr prescribes you fostair do the chemists have the right to give a cheaper non branded version.if your not happy I'd change chemists and ask before you go with them if they will give you fostair best wishes

Izb1 profile image
Izb1 in reply toislande

When I spoke with the Consultant she said this had the same ingredients so wouldnt make any difference a bit like Ventolin I suppose. I think we will see alot of this cost cutting going on now x

peege profile image
peege in reply toIzb1

There was a post about it (one of many re change to Luforbec from Fostair) with information that the medication is the same but the 'fillers' are different - like Salamol to ventolin. Over the few years I've been on it. I've managed to stockpile a few Fostair because it's my biggest dread that they'll change it - particularly in the winter when my asthma is worst.

It seems the pharmacists within gp surgeries or medical centres are the worst at changing patients medication/prescription willy nilly. I suppose they're instructed to cut costs? Or perhaps they want to lord it over patients or GPs. Luckiky my pharmacist is independent however I keep everything crossed every time I pick up the prescription

Izb1 profile image
Izb1 in reply topeege

I really don't blame you peege, it's becoming a blinking nightmare. Having an independent pharmacist maybe beneficial to you x

PaulineHM profile image
PaulineHM

Hello,

Read all your post and it does sound so very complex for you.

I hope the repeat CTs show some healthy progress in your lungs and that the consultant continues to offer you good care.

Go well

Pauline

Petetriplet profile image
Petetriplet

Sherlock,

I gave recently had a High Resolution CT on my lungs that revealed Bronchiectasis in the right lower lobe. Hence the repeated exacerbations of my asthma. So I am prescribed fostair (top dose ) which I have been taking for my asthma for sometime . I saw my doc just before Xmas with a chest infection she detected the infection so put me on amoxiclav . ( strong antibiotic and Predisilone steroid ). There is a protocol for those with bronchiectasis. Basically a longer course of stronger antibiotic for a rescue pack

Hope you feel better soon

Pedro

Oregonbasinman profile image
Oregonbasinman

Ever since I had Covid, I have lung nodules. Respiratory physician put me on a low dose steroid inhaler twice a day, in addition to my rescue inhaler. Respiratory is nothing to play around with. Be sure to follow Drs orders to be comfortable. Given any antibiotics for a 7 day regiment?

Sherlock11 profile image
Sherlock11 in reply toOregonbasinman

I'm not on antibiotics at the moment. I've mentioned to the Dr's that I had tendon pain on my last course of cipro so I'm not having them again. I usually have a pseudomonas infection co always cipro.

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