Time line LVR

[Trevor6]

hi hope all well ? I am on the journey for LVR surgery I have completed My pulmonary rehab, Lung function tests, bloods the length of my arm , travelled to London Friday past to have my 6 minute walk and Ct dect scan /blood vessels

At this stage what would be next for moving on , I have already been given an appointment for LfT in June, and then a follow up . Thanks

[leo60]

Hi Trevor, I wish I could answer your question for you. I, too am on that route and have done PR, lung function tests, bloods and a CT scan. Unfortunately, they found a couple of nodules in the CT and took me off "the route" pending further investigations. Well, the follow up came out clear (thank goodness!), but I am having problems getting back on that list! No-one is owning up to being the right person to talk to 🙄, and my doctor has a "family emergency" so is off indefinitely! Next stop my London specialist methinks.

Very interested to see what answers you get, and also hearing about how your journey evolves.

All the best, Laurie xx

[TTrev6 in reply to leo60]

many thanks I will post if I find anything

[49dibs in reply to TTrev6]

Is this at St Barts?

[TTrev6 in reply to 49dibs]

No Royal Brompton

[Will57]

I had my LVR at Royal Papworth jut one month (luckily) prior to COVID lockdown and it has worked wonders for me. However if you are offered the op grab it with both hands but be be ready for the time it takes for your recovery. Full rest is needed

[TTrev6 in reply to Will57]

Many thanks for your post , what was the timeframe before surgery?

[Lee_Scoresby]

I’ve looked up to see what LVR is. Having found out, I’m sending you best wishes for the ‘journey’. I've got emphysema but it’s not yet progressed to the stage where Lung Volume Reduction would be considered.

Good luck chum!

[PaperQueen]

I got taken off the program unfortunately, but before I did, the only thing I had in addition was an echocardiogram. I do with you very good luck with getting the LVR. xx