lungs

[Elsy12345]

hi I’m really really worried sick to my stomach can anyone tell me if pulmonary fribrosis is always a serious case my husband is only 42 and it quite healthy doesn’t smoke and we’re waiting on results coming back from hospital scan results but it’s the waiting I’m terrified of the outcome as he is so young to have this when I read on dr google it’s says it’s usually older people that get it and dr google is very scary also I just don’t no what to except I lost my (mum) my best friend to lung cancer 2 years ago so going through all this again really frightens me please if there is a god up there make his results be not so serious

Thankyou Michelle x

[Mellywelly]

The worst thing you can do is ask Dr Google, but to be honest we've all done it. I get desperate at times and do exactly that. It's natural to expect the worst outcome, but please don't fret until you get the actual result. Easy for me to say I know but until you get the full picture about what's going on, there are so many things it could be and treatable. I wish you the utmost best and luck chook. 😉

[Elsy12345 in reply to Mellywelly]

thankyou melly for your kind words we will just need to wait on results and hope it’s not too serious 🙏

Thankyou x

[AngieB72]

Hi

It’s difficult to comment when you haven’t had your results back yet and therefore don’t know what has caused the PF or if it is IPF. I was diagnosed aged 36 back in 2008 and I’m still here no matter what Dr Google told me back then! My PF deteriorated slowly and is now stable as the cause is managed well with medication. Life is different to what it used to be but I’m not going anywhere - I stay away from germs as for me catching any type of respiratory infection can cause deterioration. Good luck and please stay away from Dr Google and research carefully. Pulmonary Fibrosis Trust and Action for Pulmonary Fibrosis are the two PF charities that are reputable as well as Asthma and Lung UK.

[Elsy12345 in reply to AngieB72]

Yes I’m definitely staying away from dr google as it gives me severe anxiety and I can’t cope thank your for your kind words x

[Maz1954]

Hi,I have p.f and yes it's progressive , everyone is different ,mine is caused by ra ,once your husband has a definite diagnosis the Dr's will go from there ,and prescribe the relevant meds , and advice ,please try not to stress ..

[Ern007]

I soemtimes look at Dr Google but, I at least look for reputable sources like NHS or MayoClinic in the US.

[Alberta56]

I'm sorry you going through such a bad time. It's certainly not as bad as Dr. Google would have you believe, so try not to worry too much. xxx

[Pebble23]

HiMy husband was diagnosed with Non Specific Idiopathic Pulmonary Fibrosis in 2017,after a succession of chest infections and investigations.

It is very frightening, especially if you read everything on the net,which I did!

Now,years later,he has just had a peak flow test and awaits an outpatient appointment.

The peak flow was worse but not hugely.

Luckily he is still able to do what he wants to on a daily basis.

As others have said ,everyone is different.

I am pleased I didn't share what I read with my husband.His,take each day as it comes, approach has proved better.

That said if either of you are , understandably,anxious do get support and ask questions of the professionals involved with your husband.

Take care.