CT scan normal?: I have been diagnosed... - Lung Conditions C...

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CT scan normal?

Pollyposh1 profile image
36 Replies

I have been diagnosed with copd and bronchiectasis for many years approximately 10 with my consultant saying its chronic. However I recently had a CT scan and received my results saying everything looked fine. Am I missing something? Surely if I was that bad would not something show on the scan ?

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Pollyposh1 profile image
Pollyposh1
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36 Replies
Alberta56 profile image
Alberta56

I was diagnosed with bronchiectasis from a CT scan. Can you contact your consultant and ask what is going on?

Pollyposh1 profile image
Pollyposh1 in reply toAlberta56

I was diagnosed with the bronchiectasis and copd from a lung function test that my consultant done he never gave me a ct scan . I'm guessing my history of constant chest infections and breathlessness he diagnosed me. Then just recently through a government scheme that are trying to detect any signs if lung cancer early on they contacted me for the ct scan wasn't through my consultant. Sorry for the long reply.

Izb1 profile image
Izb1 in reply toPollyposh1

Did your ct scan show up bronchiectasis x

Pollyposh1 profile image
Pollyposh1 in reply toIzb1

Not as far as I know says all is fine. I think I'm going to call them see if I can get a more detailed answer.

Pollyposh1 profile image
Pollyposh1 in reply toAlberta56

I'm going to have to as ut doesn't make sense.

Mopsey1897 profile image
Mopsey1897

did they mean it looked fine as in no changes? You need to find out for sure

Pollyposh1 profile image
Pollyposh1 in reply toMopsey1897

No it said there were no signs of any smoking related lung disease ? And I smoke.

Patk1 profile image
Patk1 in reply toPollyposh1

Perhaps see if yr consultant can access it.sounds like u may be lucky,so far.bronchiectasis needs a scan &/or bronchoscopy to diagnose it so if ct can't be accessed,I'd insist on one.id think of stopping smoking as it's a major cause of lung cancer,copd + irritant to the lungs& can cause build up of tarry fluid.yr choice though

Pollyposh1 profile image
Pollyposh1 in reply toPatk1

Thank you for your reply. Yes I think I will see if I can get an answer from my consultant as doesn't make sense. I know I'm so trying to get the willpower to stop smoking it's so hard. Thanks again.

Patk1 profile image
Patk1 in reply toPollyposh1

There's help out there to stop if u can't fo by will power alone x

Pollyposh1 profile image
Pollyposh1 in reply toPatk1

I know I've tried them all Still trying though.

Patk1 profile image
Patk1 in reply toPollyposh1

Wishing u all the best x

PaperQueen profile image
PaperQueen in reply toPollyposh1

I certainly know how hard it is to stop smoking, I tried so many times over the years. Then I started using an e-cigarette instead and gradually weaned myself of nicotine, using the liquid with less and less nicotine in it. I realised that the act of smoking, ie: having something to do with your hands and mouth, was half the battle, especially as I had smoked rollies. Anyway, I did eventually manage and don't think I would have ever succeeded with patches or gum. Maybe worth a try? Good luck! x

Yvonneh1234 profile image
Yvonneh1234 in reply toPaperQueen

I did the same as yourself the gum gave me indigestion 😂 I tend to keep a pen in my hair now and put that in my mouth a lot of the time . . . Am sure I look stupid but it worked for me after smoking 24 years 🤣xxx

Yvonneh1234 profile image
Yvonneh1234 in reply toYvonneh1234

Also there’s a lot of help about now to quit maybe speak to gp or a pharmacist good luck 😊xx

Pollyposh1 profile image
Pollyposh1 in reply toPaperQueen

Thank you 😊

Walkonthewildside profile image
Walkonthewildside in reply toPollyposh1

The absolute best thing you can do is to stop smoking! Ask your GP for information on any support services there may be for this in your area. Good luck : )

Biker88 profile image
Biker88

I think diagnosis from a lung function test is a bit of guess work, there are a lot of conditions that can cause a low reading including cancer, a proper diagnosis should by via CT scan and broncoscopy I have emphysema and Aspergillosis and I didn’t start lung function tests until after the diagnosis. The lung function test were only to provide an indication if the lungs we’re getting worse or remaining stable

sheila1998 profile image
sheila1998

I am sorry if this maybe disillusions you but simply take it as a warning; CT scans are as reliable as the person reading them. My daughter had a brain tumour from the age of seven months which was operated on and, at the age of 49 had endless scans. I repeated and repeated that the tumour was definitely active but kept receiving the reply that CT scans showed nothing had changed. I demanded an MRI scan which finally proved me right before her death two months later. One consultant had taken notice of what I had said and took the trouble to read it properly. This was at the John Radcliffe in Oxford and they apologised. If you are concerned you have the right to ask for a second opinion.

Ergendl profile image
Ergendl in reply tosheila1998

Oh, how tragic.

Pollyposh1 profile image
Pollyposh1 in reply tosheila1998

Wow that's terrible. So sorry to hear that.

Izb1 profile image
Izb1 in reply tosheila1998

I am so sorry to read this sheila1998 x

Patk1 profile image
Patk1 in reply tosheila1998

How awful sheila1998.condolences to you xxx

Dottie11 profile image
Dottie11 in reply tosheila1998

So sorry to hear of this. Condolences to you. xx

PaperQueen profile image
PaperQueen in reply tosheila1998

So sorry for your loss x

LissacFrance profile image
LissacFrance

Everything fine possible means no detrioration since last scan. My wife is due for scan next week. I`ll let you know what her results are. Have a good day, Chris.

croakerUK profile image
croakerUK

Chronic does sound serious, but in medical speak it means it is slow developing further. I have a chronic blood disorder that I am more likely to die with, rather than from.

deejames profile image
deejames

Chronic does not necessarily mean severe but does mean it has been going on for a period of time without getting better.

Robinface profile image
Robinface

Best ask for detailed report from people that ordered the ct scan- when you have that you can then compare- if it was looking specifically for cancer then maybe all find means no cancer?!

Pollyposh1 profile image
Pollyposh1

Thank you all for your replies. I shall contact my consultant and those that done my ct scan . Great group of people on here. I have learnt more on this site in a year than the 10 years with my gp and consultant. Says a lot really.

Kristicats profile image
Kristicats

you could ask for a copy of your CT scan results

Pollyposh1 profile image
Pollyposh1 in reply toKristicats

Good idea thank you.

Dottie11 profile image
Dottie11

You will need to clarify. Bronch does not disappear from a scan. Sorry no experience of other lung conditions. x

Pollyposh1 profile image
Pollyposh1 in reply toDottie11

I am . I thought exactly the same. Thank you.

Dottie11 profile image
Dottie11 in reply toPollyposh1

Get a copy of the scan. See if the same person read it. Even knowing that would be helpful. Not everyone is experienced in reading Bronch. xx

Pollyposh1 profile image
Pollyposh1 in reply toDottie11

See what you mean . I've e mailed them explaining what my consultant has said I've got including bronchiectasis see what they say and definitely get a copy to send to my consultant see what he says.

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