I was diagnosed with COPD in 2005. On the whole have managed it well in that time (except for the dreaded exacerbation). It hasn't interrupted my lifestyle until the past year with 3 flare-ups. Had been on Sea-bri inhaler for some time but because of the increase in exacerbations I was changed to DUAKLIR inhaler 3 months ago.
First 2 months all seemed fine then my cough increased to the point I felt I was choking at times. It was so embarrassing if it happened in public. The 'Froth' (excuse me) I was bringing up was never ending At first I thought I was starting with another flare-up but when I used my oxsimeter my oxygen was 96/97%. I don't start that rescue pk willy-nilly.
On the 8th Oct & appt with respiratory nurse I had stopped this inhaler 2 days b4 I got to her & the chronic cough etc had lessened considerably. My lungs were clear on examination.
Now on day 2 of another inhaler called ANORO.
Has anyone used this inhaler?
I know we can all have different reactions to med but I would be grateful for any comments or info on this inhaler. 🤔
Written by
PteW43
Written by
PteW43
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Sorry to read that these various inhalers haven’t suited you.
Can I suggest that you request a consultation with the pharmacist at your local surgery ? They can be very helpful when our medication can use a helpful review.
I was taken off the SeeBri inhaler a few months ago, it wasn’t immediately replaced as I was in hospital with a very uncertain future. According to a consultant the SeeBri never really came up to expectations, I’m now out of hospital and on the Anoro Ellipta inhaler. It’s specifically for COPD and the only down side is the very fine powder does irritate my throat and I do need a drink immediately after using it. We tend to blame our on going condition for every thing however my cough was eventually diagnosed to an allergy to excess stomach acid fumes irritating my lungs and Omeprazole has stopped that. My oxygen levels are between 88-92 and this is considered normal with lung diseases
Like you, I was diagnosed many years ago with COPD but it was only mild and I was given Anoro. I knew nothing about COPD except that it made you breathless. I used it for about 4 months but I had no improvement in my symptoms so I gave it up. I assumed that it should have made me better and no-one explained to me that it was a preventative medicine.
Covid hit so I didn't see any health professionals at all during that time. This April, I had my first exacerbation and ended up being hospitalised though I had no idea what was wrong with me at the time, only that I couldn't breathe.
Since then, I've read just about everything there is to know about COPD and I'm also under the Community Care Team who are great. Maybe if I'd carried on using Anoro, I might not have had an exacerbation, my condition has deteriorated to severe now after that episode.
This is a very long-winded way of saying please use your inhaler and if you find that it doesn't agree with you, there are many more out there but get advice first rather than just stopping it. I paid the price and I wouldn't want you to be the same.
I did the same - stopped my inhaler, got an infection and now I’m way worse. If only the consultant would clearly say this is what’s in it, this is what it trying to achieve, this is why you should stick with it no matter what. But they don’t really care and once you have copd there’s no going back & they know that. I’m also still shocked at just how many people haven’t even heard of it by the time they’re diagnosed. It’s crazy - big tobacco have done a sterling job keeping the number 3 biggest killer completely under wraps. Probably explains why is 152nd in funding research too!
I totally agree with you! I didn't even get to see a consultant until I ended up in hospital. The nurse at my GP surgery diagnosed me and just assumed that I knew about it. I finally, finally have an appointment with a consultant next Friday. I know that my eosinophil counts are really high and my Feno test scored 70 so I'm expecting bad news but at least we know what we're dealing with now
I’ve got two private consultants (yes two) that’s how much this has impacted my life - clearly I was panicking as I’m 40 & it feels my entire life has fallen apart, which it essentially has. So I was happy to pay to get good & quick advice. It didn’t help much. Although I did eventally get called my NHS consultant appointment & that was truely abysmal. My FENO did drop from 40 to 20 since I stayed on the inhaler for a number of months, not that that helped symptoms but anyway. I’m just kicking myself wondering if I had reduced inflammation by that amount & then had that exacerbation would I have avoided it getting so bad. Anyway…what result are you waiting on? A copd diagnosis or a staging?
Both I think? In hospital, they thought that I might have asthma too but although Salbutamol does open up my airways, it's not enough (according to their tables) to classify it as a cross-over but I'll wait and see what the consultant says.
I had one lung function test at the GP surgery and she said that I had severe copd and then another much more detailed lung function test at my local hospital but I haven't been given those results. I only know my Feno score because I googled what it was and paid attention to the reading on the machine.
It's absolutely pants (to keep it polite) that you've got this in your 40s, I'm in the latter half of my 60s so that's more understandable.
Getting back to your original post, I would question why they are prescribing Anero? I would have thought that after 3 flare-ups, that you would be on a triple inhaler that included steriods? If they've given you a rescue pack (which I haven't had yet) then they must know that steriods work for you? I might be wrong but I think that only secondary care, i.e. the hospital team can prescribe triple inhalers so it might be worth seeing if you could see a different consulant if the first one was rubbish?
I was diagnosed with COPD many moons ago (around 2004) & thankfully managed it well. Except for the expected exacerbation at various times it made me change my lifestyle. Obviously, this is a progressive disease & at 75 (Noooo lol) it's looking like I may need an inhaler with a steroid in.
I don't take any other med 🙏 except for my inhaler. I requested trying other inhalers (were I'm up to now) but looks like I may have to concede to the Steroid one.
Thank you all so much for your replies & help. No I wouldn't just stop my inhaler. Why I stopped the DUAKLIR on the Fri (b4 going to see the respiratory nurse on the Tues) was to see if it was responsible for the hacking & choking cough I had one month into starting it. The reduction of that cough over 24 hrs was a relief to say the least. But, I had a Sea-bri inhaler to put me over until I seen the nurse. That's when she changed the inhaler (DUAKLIR) to ANORO to try, she will ring me in 2 wks to see how I'm getting on with this one 🙄🤞
Apparently the Sea-bri I've been on for years is not now helping like it once did. So, just a matter, I suppose, of finding the right one. I will have a word with my local pharmacist ty.
I may have go on a steroid inhaler..
Up to press 🤞 I've never been hospitalised with copd 🙏
Thank you Pauline, Biker, CATW (lol Jan) & PW_R for your replies & info..
Take care 🤞😉 Maggie Mae
ps- If I can find u on here again will keep u updated. I keep landing in the BHF forum then having to search for the BLF! 🙄 😄
I have been on Anoro for ages, but it makes my throat sore and I can't sing at choir as I'm croaky. The consultant gave me Trimble which gave me bad side effects so went back to Anoro. Now trying a new one Trixeo, so hope it will be ok as my throat is better with using a spacer.
UPDATE.......Trelegy?I have tried this ANORO for past few wks now & although it definitely reduced my cough considerably after DUAKLIR I've still got inflammation. Cough can still be extreme at times.
The respiratory nurse on a call bk check up 2 wks ago said by my blood count readings I may need to go on a Steriod inhaler 🙄
I said I'd give this ANORO another couple of wks first & promised I'd ring bk if it hasn't worked.
It hasn't, I'm still coughing.
So, today I have rang surgery to ask for nurse to ring me.
The Steriod inhaler they are suggesting on my patient access page is one called 'Trelegy' .
Again I ask, please 😉 has anyone had any experience with using TRELEGY inhaler?
I know I can find out any info on it via the internet but it's more informative, helpful & reassuring to hear from other copd sufferers who may have used it with good and/or bad results.
I was on ANORO at first it didn’t help much tbh but changed to TRELEGY and seem to be ok on this fingers crossed 🤞 i don’t cough as much as I did with it so it’s a bonus 😊I think different inhalers work for different people it’s about finding the best one for you that works
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Inhaler
Hi I am new to this site and have recently been diagnosed with COPD
salbutamol inhaler
new here, COPD diagnosed recently
Change of inhaler
