Frequency of flare ups

[Mama-bear60]

Hi, I’m after some thoughts on how to get the support I need for effective treatment of my bronchiectasis.

I have posted previously about flare ups but I moved health authorities in April and since then have had numerous visit to the doctor for breathlessness and infection, I’ve been on anti biotics and steroids which alleviate but it starts again as soon as I stop.

my previously respiratory support wanted to look at a change of treatment but this new doctor hasn’t even referred me yet. He just treats the flare up and sends me away. I’m getting more and more frustrated with the different doctors I see not listening to me.

It’s like they just want to get through their list of patients without trying to find a better treatment plan that may improve the situation.

[Lutontown]

You've changed health authority! Does this mean you've changed your home? If so, has your "new" home got any Black Mould?

[Maximonkey]

Hi Mama-bear60, so sorry you feel you are not being listened to. Have you asked for a double appointment so that you can discuss you needs and worries with the doctor without being rushed. This is definitely worth trying. You do have the right to be referred to your consultant or if you do not have a consultant you need to find one who deals with Bronchiectasis. Try asking on here, the forum are great with helping others. Don't forget to say where you live etc. Take care and good luck, Maximonkey