having a flare up of my Bronchiectasis

[Julie14]

been ill since Thursday, have the recovery team treating me at home which has helped me avoid having to go into hospital. Im seeing I'm having more flare ups & this worries me as i never seem to recover quite as much as i did previously. Is this part of the condition, i know theres no cure & I've had this for 10 years now but its realy taking it out of me x

[TG58]

Hi Julie, sorry to hear you're unwell, but it's good your getting treatment at home, particularly at Christmas time.

It may be because of the cold spell we have had of late, as the cold air in my lungs has really played havoc, when I have been outside, it's difficult knowing what to say, because everyone's situation is different, I know I was originally diagnosed with mild Bronchiectasis, but I have recently had covid, and am now suffering from long covid, and I know this seems to have changed my situation completely, I won't go into it to much, because this is about you, but I do hope you feel better soon, try and stay in the warm, and put your feet up, and hopefully get some TLC.

Have a lovely Christmas 😊

[djbctla]

Sending you best wishes Julie, I can’t help I’m afraid, except to hope u improve soon. Bernardine 🥰❣️🤗🤗🤗

[CDPO16]

Sorry I can't answer your question specifically Julie as I haven't got bronchiectasis. I do know that I had one flare up after another last winter which did leave me with reduced lung function. I hope that you soon begin to feel better and I'm glad that you are getting cared for at home. It makes a big difference. Carole xx

[Alberta56]

Sorry to hear you're unwell, Julie. I have bronchiectasis. I find it takes me quite a long time to recover from flare ups. It's 4 months since the last episode and I don't feel quite right yet. I'm not sure whether it's taking me longer to recover from these episodes- there are so many other factors involved. I was diagnosed 3 years ago, but i feel I'm still learning about this condition, mainly from Health Unlocked. I hope you can take it easy and give yourself time to recover. Best wishes for the best possible Christmas.

[Mooka]

Have you had your sputum tested? Are you having 14 days of antibiotics each time. It could be the same bug that keeps coming back because you’re on the wrong antibiotics. When I was having one after the other it turned out I had the dreaded pseudomonas and only ciproflaxin can sort that apart from ivs. Getting worse isn’t part of Bronchiectasis- I’ve just had my first infection for four years. Wishing you well.

[Patk1]

I've been same past few years Julie.its hard but I've so much going on in lungs and airways in addition to bronchiectasis. Do jump on infections immediately u think its starting.do put sample in too,after antibiotics,make sure it's cleared.between lung clearance etc,do rest up x

[B0xermad]

I have bronchiectasis and asthma and copd, 6 weeks of antibiotics on and off as 5 day courses until changed to Co amoxiclav for 15 days a trip to respiratory department for the consultant and nurse to push doctors to get 14 day courses in the future currently on antivirals for covid positive test day 6 whilst immunity is low picked up it last week. Your body has a way of fighting the infection but it takes its toll .I have had bronchiectasis for almost 9 years now .really wish you better soon and a healthy 2023.

[Egpa]

Good 🌄, I have bronciactsis and asthma, the last big flare up I had was a bug in the bottom. Of my left lung, went on for about 1 year as they could not seam to cure it, changed antibiotics lots of times, had to keep sending in sputem tests as it kept changing, it was a nasty bug but we got there in the end, This damp, wet weather is no good for me, been coughing for a few weeks, I use saline nebs through my nebuliser to help clear the muck at present I take ventolin, then saline and fostair after that I use a AerobiKA to help clear the muck. Chin up you will get there in the end. Tahe care stay safe.

[GintyFerguson]

I have asthma and bronchiectasis, the latter for 15 years . I've had some grim times with recurrent infections to the point where I left work but am well at the moment . I think this illness can be very mixed with no rhyme or reason. I worked hard to establish all relevant causes such as being around under 5s ( who carry lots of bugs which don't bother them but do bother us, such as haemophilia influenza ) perfumed plug-ins, cut flowers in vases, cold, paint and above all, smoke! Then, I looked up supplements and read loads of research to discover taking zinc would boost my immunity and vit D would reduce inflammation. I also take evening primrose oil and vit C . Staying well hydrated and wearing a mask everywhere are two things I do automatically. Finally, I try to enjoy what I can, exercise and be positive and hopeful. I believe our minds are our greatest ally . I wish you well and hope some of the above is helpful.

[Julie14 in reply to GintyFerguson]

thank you & like you i take the above vitamins but due to my work I'm around children & families daily. I think i need to look at our policy at work (i do work for the council, so hopefully I'm protected as it is a long term disability) my issue in the past is ive gone back to work to soon (often before my course of antibiotics finish) this time i don't have the energy im totally wiped out xx

[GintyFerguson in reply to Julie14]

It is a long term disability . I know this because I used the Equality Act when I had to leave work . I could say more that might help in a private message.

[Julie14 in reply to GintyFerguson]

if its not to much trouble i would welcome any advice x

[GintyFerguson in reply to Julie14]

I have pm'd you.

[GD53]

Hello Julie. I can empathise with you; many antibiotics later, about 3 months worth intermittently, my breathing had improved but not completely. It does wear you out. Many times I felt what is the point and really felt like giving 😕 up. BUT you will beat this! 💓

Many nasty viruses going round at present, I try to stay indoors away from folk and the cold weather.

You will get there pet. Keep yourself safe indoors and warm.

Wishing you well and better health for 2023. Dawn. xx 🥰

[Lutontown]

I have bi-basal bronchiectasis since having a bug infection in March 2014 until the November. It was Staphylloccus Aureus. Oral AB's wouldn't shift it. My own GP came back from having a new hip, and sent me to the consultant at the hospital, who got me CT scanned. This shewed the bronch, and he put me on a course of intravenous AB, who knocked the bug out. I think it was the months of that infection caused my bronch. In 2016, I had loads of chest infections, so in 2017 I kept a diary, and recorded 18 chest infections. In March 2018 we had our bath changed for a walk-in shower. When the bath came out, black mould was found to be covering a large part of the bathroom floor, due to a leak in the bath drain. So the floor boarding was changed thereby eradicating the mould, and since then I have had no chest infections, except for a bout of pneumonia and pleurisy in Nov 2019, which put me in hospital for 10 days. With I think, correct medication, sitting almost upright in my adjustable bed, my lung problems are keeping well in control, touch wood.

[Wheezysister]

My chest condition means loads of intentions and I also am never quite as good after as before. I think the downward trajectory is a fact if life for most chronic respiratory conditions.

[watergazer]

Sorry to hear you’re unwell. Hopefully you’ll be feeling better soon. I think the cold weather has affected us more than usual this year. Take care. Keep warm xx