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I'm new to this community , but not to Health Unlocked

john-boy-92 profile image
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I'm John and for several years have posted in HealthUnlocked about atrial fibrillation and stroke. In 2014 I had pulmonary toxicity (cryptogenic organising pnuemonia) secondary to dronedarone and amiodarone. It took three hospital admissions before it was correctly diagnosed. I had read the American medical papers and knew it was not the diagnosed community aquired pnuemonia. My GP had measured my blood oxygen (SpO2) at 76% before the third admission. The third admission was timly, as in the early hours I had to robustly argue against being sedated in ICU and put on mechanical respiration. It took 25 litres/minute of oxygen and a steriod injection to stabilise me. The medical team did a great job and despite a depressing prognosis, I'm still here and ambulant. Whether that, atrial fibrillation and inverted yoga poses contributed to a stroke in 2016, I don't know. The consequences were scarring of the lungs that I now know is pulmonary fibrosis and as of yet, does not have a treatment path.

I participate as a stroke lived-experience person in various university studies, and maybe there are opportunities through this forum. I'll sit back for the time being and absorb your knowledge.

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john-boy-92
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Patk1 profile image
Patk1

Welcome to the forum

Ergendl profile image
Ergendl

Welcome to our lovely supportive group. Hoping you find the support and answers you seek here. All the best.

Nula2 profile image
Nula2

Hi john-boy, just wanted to say hello and welcome to this lovely supportive forum xxx

leo60 profile image
leo60

Hello john-boy and welcome 😊 xx

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