inspiratory muscle training

[LungNRestless]

Well after working my ‘lungs off’the past few months, as I finally found my disease trigger and have been able to stay away from it’, my breathing has improved dramatically. After a chat with the specialist physio (worlds nicest physio) on Friday, he’s requesting permission from the consultants for me to try inspiratory muscle training.

He demonstrated…it looks brutal and tiring 😅 but I’m intrigued to try it and see if I can get any results! More out of curiosity than goal.

I’m a suitable candidate but consultant review and permission is needed as the resistance training can cause lung collapses.

I’ve had 1 pneumothorax before post biopsy, which is a know cause. So hopefully this shouldn’t be to my detriment!

I’d have to start off training in the hospital for a few weeks before being allowed to use the device at home.

I have 48% lung function and 1.5 litre lung capacity but can maintain really high sats. I’m also 34. So this is very intriguing. I love a good challenge and regularly surprising my consultants/ making them swear 😂 * not reckless though!

Although I’ve had viruses etc the past few months, I really feel my hard work is paying off and helping me live my life well. The disease isn’t going away ever but I’m living better.

if this isn’t for me, it’s not for me. No harm, no foul. But it’s lush I’ve got myself to a place where they’d even consider me.

I also start pulmonary rehab soon 😊 to add to my wild array of fitness I already do!

Just wanted to celebrate a win as I feel like I’ve been fighting the tide since being diagnosed.

[leo60]

Fantastic! Well done you, your efforts seem to be well worth it! I hope your couple of weeks doing the training in the hospital goes well and that you continue to surprise the pants off your consultants! 😂😂 xx

[LungNRestless in reply to leo60]

Haha thank you! I love being the loveable rogue in clinic!

[Alberta56]

Sounds good. i hope they let you try it.

[LungNRestless in reply to Alberta56]

Thank you!

[Patk1]

What an inspiring post.im sure U will love pulmonary rehab. Ru still doing Yr pilates classes too x

[LungNRestless in reply to Patk1]

Thank you Im not teaching at the moment but hope to be again next spring. I am however still going as a participant in reformer pilates with a physio which has been so beneficial for my lungs, breathing and general strength.

[TG58]

Well done, it's often hard to consider fitness when you have a lung condition, and you do have to fight. What was your original prognosis ?

[LungNRestless in reply to TG58]

My original prognosis isn't known but overall isn't good. The disease is progressive and transplant is still likely in my future. I luckily discovered my trigger at the start of the year, since i've avoided that i have stabilised for now. My prognosis still won't be ideal but if i can stabilise as long as possible i am happy with that. The way i look at it, if i can be as strong and healthy as possible it only stands me in good stead, especially for operations etc. It also keeps my brain healthy as this is all very heavy isn't it. Its very difficult for respiratory patients to find suitable help with fitness, this is something i am trying to work on. I've found a few things that have helped me

[Izb1]

Well done. I think you are young enough to take this on with a good attitude x

[LungNRestless in reply to Izb1]

Thank you, i have my moments like we all do. All feelings are valid, but i'm a stubborn one. Im lucky to have found my trigger this year and since i've remained away from that, i'm seeing more positives

[Mellywelly]

Well done you chook 😁 you sound really positive and upbeat, I say if it works for you keep doing it. Sounds pointless to say take your time as I don't think you will 🤣🤣🤣 nothing ventured as they say. 👍

[LungNRestless in reply to Mellywelly]

Hey! Are you a fellow collie owner? Judging by your photo? I do have my moments, like we all do and i have had a bad time mentally with all this for some of the year BUT im making a come back and like you say, finding the things that work for me and allow me to live as well as possible with this. I am trying to pace myself and do have lush nurses and physios who keep me in check. As well as friends! Gotta throw myself at stuff and see what sticks though don't i!

[Mellywelly in reply to LungNRestless]

Well put. I was a collie owner, sadly he passed away. Alfie was his name and he was a legend. Have 2 cavapoo s now. And boy do they keep me going 🤣🤣🤣 keep at it chook, sounds like your determination is paying off 😉

[LungNRestless in reply to Mellywelly]

Oh i am so sorry for your loss of Alfie ❤️ I recently lost my rescue collie Dale (white face), i only had him a year but he had a good year with me. He had been kept in a shed previously. I now still have Teddy & Bear. They do keep you going don't they!

Me, a young women sat on the floor surrounded by 3 large border collies.

[Mellywelly in reply to LungNRestless]

Cracking picture. Happy days 😀

[MoyB]

Great news! If you don't mind me asking, what have you found is your trigger?Xx Moy

[LungNRestless in reply to MoyB]

Hi lovely, Its a cleaning product. I can't say too much at the moment as there's a legal issue. x

[MoyB in reply to LungNRestless]

Well, YOU know what it is and that's the most important thing. I did wonder if it might have anything to do with cleaning as I find some things affect me more than others. I don't often use things like spray polish as they seem to contain something that sets me off and years ago my daughter used to buy a cheap hair spray in Superdrug and that used to affect me, even though she used it in her bedroom with the door closed. I tend to avoid aerosols in general.

xx Moy

[Loopylorre]

WoW well done 👏🏻 you! Fingers crossed your a good candidate & the answer is yes, you seem to know exactly what you want & the pitfalls, so also know when to take a step back & look at what you’re capable of, good luck to you & keep us updated on your progress! 👍🏻💐💐😊 xxx

[LungNRestless in reply to Loopylorre]

Thank you ❤️ Im stubborn and enjoy a challenge. Especially when i get to defy the normal going. I hope they decide i'm a candidate to, as i do love giving things a go. I'm defying expectation so far, and hope to continue to do so for as long as possible. I try to keep paced and balanced. I push things but without recklessness. Have definitely weighed up the pros and cons, as with everything. I'm going to be blogging/Instagramming everything to i think. Especially my new gym antics as well Hopefully might be helpful to some. Thank you for the lush support xx

[Loopylorre in reply to LungNRestless]

Will look for you on instagram, xx