Iron infusion error.: Hi all, Be... - Lung Conditions C...

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Iron infusion error.

Mrbojangles profile image
51 Replies

Hi all,

Be extremely alert if you ever have to have an iron infusion as misplacement of the cannula can have severe consequences.

In my case the needle didn’t fully enter the vein so the fluid dispersed around the tissue resulting in permanent staining which has made me look like an orangutan.

Only way to address this is dozens of laser therapy which will only reduce the shade or a tattoo.

Any suggestions for tattoo theme would be extremely grateful!

Stay safe all xx

Photo attached.

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Mrbojangles profile image
Mrbojangles
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51 Replies
sassy59 profile image
sassy59

OMG Mrb! That looks terrible. What were they thinking. It already looks like a hand with a finger pointing up to me but what sort of tattoo? Not a clue.

Wishing you well. Xxx😘

helenlw7 profile image
helenlw7

That looks awful. Didn’t anyone check up on you while had the infusion? No idea for a tattoo.

Mrbojangles profile image
Mrbojangles in reply tohelenlw7

I had to bell them when the infusion had finished about an hour later.

helenlw7 profile image
helenlw7

Were you wearing long sleeves at the time?

Mrbojangles profile image
Mrbojangles

no, short sleeve T-shirt..

peege profile image
peege

Goodness that's a horrible mistake someone has made MrB.I do hope everything else is going well 🙏

leo60 profile image
leo60

Oh Mr B! That's awful. So sorry xx

Zand60 profile image
Zand60

I see a wolf with it's mouth open, you just need the fangs 😂. It's good to hear from you even if they are abusing your body! Stay well 💖xx

madonbrew profile image
madonbrew

A giraffe 🦒?

Oh,that's not good Mr B! Hope you're kind of doing ok otherwise?

I'm just waiting for one...hmm

sassy59 profile image
sassy59 in reply tomadonbrew

Good luck Dee. Hope no mistakes are made. Xx🩷

Alberta56 profile image
Alberta56 in reply tomadonbrew

✌🏿🤞🏿🤞🏿

Suzie42 profile image
Suzie42

I've had that....2 years later its finally gone. I noticed within 5 mins as pain was terrible, but still had horrid mark

Nula2 profile image
Nula2

Wow that looks painful! (I can see a Troll.......just need to have a bridge over him 😈)xxx

Troilus profile image
Troilus

Just wear it proudly !

Corinne-Amy profile image
Corinne-Amy

That seems like a very careless mistake that you now have to live with. No idea for a tattoo. Would love to know how you are doing generally after your transplant. Really hoping your breathing is improving after all you have been through xx

Mrbojangles profile image
Mrbojangles in reply toCorinne-Amy

Hi Corrine,

Re transplant not great to be honest.

Stroke has possibly damaged both eyes and legs so on a stick now.

They also have to re operate as the sternum hasn’t healed and is extremely painful and rattling away.

Stay safe…

Izb1 profile image
Izb1 in reply toMrbojangles

So sorry to hear you have not been doing too well after your transplant Mr B. Do you have a date for the sternum op, here's hoping that will bring you some relief x

Patk1 profile image
Patk1 in reply toMrbojangles

Yr having a tough time Mr B. I hope surgery helps x

Corinne-Amy profile image
Corinne-Amy in reply toMrbojangles

Your sternum not healing is even worse than the staining - (I’m assuming the stain doesn’t hurt or irritate) at least you can cover it up. You must be in a huge amount of pain. I hope that gets sorted for you as soon as possible. I have to say, you are a trouper, you never moan!

I had a cannula put in my arm in March 2020 in A&E a couple of weeks before lockdown and that went wrong. I was admitted and the cannula was in for a week. I was left with intense neuropathic pain in my left hand and forearm, which did go away eventually, took a year or more.

Anyway, thinking of you and hoping things start taking a turn for the better xx

Mrbojangles profile image
Mrbojangles in reply toCorinne-Amy

All these other issues they throw at me I liken to compost as eventually beautiful flowers will grow and bloom.

Corinne-Amy profile image
Corinne-Amy in reply toMrbojangles

I sincerely hope so!🙏

Obviously you need to make an official complaint. The infusion will be of no benefit to you at all lodged in the soft tissue. It has to go directly into your blood stream. Don't be scared to go to the top. Those who made this mistake will try to make light of it and distract you to save their own skins

battison profile image
battison in reply to

I agree, the PALS system lets you give ‘feedback’ in 2 ways either informally or formal complaint. A consultant advised me recently to go to PALS so they can give a body of evidence to govt for proper funding. There are too many mistakes going on! It’s what the nhs strikers are telling us, NHS is becoming unsafe.

in reply tobattison

PALS were a great help to me after I nearly died because a cardiologist gave me a pneumothorax during a pacemaker procedure and did not act on it for 3 hrs. They can help get an enquiry going. Unfortunately after the enquiry is published they tend to disappear. I now have a specialist local lawer who has decided to do it no win no fee for me.

battison profile image
battison in reply to

Oh that’s terrible what happened to you, I’m so sorry. It’s awful getting injured by NHS, makes you loose all trust. Yes PALS can be good but eventually I think response is mainly to protect the Trust. If we have the energy we must go on to Health Ombudsman, Care Commission etc. if we don’t stand up it’s only going to get scarier? But takes a toll tho. I’m afraid I’m loosing my old sense of all NHS are skilled,loving, caring…but then we know they’re so up against it ☹️

jhorsf profile image
jhorsf

Looks like claim to me , get one in

Mrbojangles profile image
Mrbojangles in reply tojhorsf

If it were an independent private doctor I wouldn’t hesitate but as it’s NHS and the hospital has to see me 4 times a year for life and i don’t want any grief.

in reply toMrbojangles

This is how they get away with it.

garibaldon profile image
garibaldon in reply toMrbojangles

I concur with your ‘no grief’ I had a triple bypass that haemorrhaged and left me with almost a ltr of blood between my rib cage and plueratc plates it was a week before sent me to a lung honpital for remedial surgery after several botched attempts to drain the clots. I was told to sue them but just complained bitterly. Had it been private care I would have screwed ‘em.

Ern007 profile image
Ern007

That is terrible - A tattoo could make it worse, the area looks big. Really it does, long sleeved shirts maybe,

garshe profile image
garshe

Thats definitely cause for complaint. So sorry you have to put up with this. Not acceptable xxSheila 💕

Hezy-86 profile image
Hezy-86

Hi I had an iron infusion yesterday,they did however explain the risks of skin staining that if it happened that it would be permanent xx

Mrbojangles profile image
Mrbojangles in reply toHezy-86

Sadly mine didn’t…

How you feeling now?

Mellywelly profile image
Mellywelly

They don't do things by half do they. I actually see a lions mane. 🦁 😁

Alberta56 profile image
Alberta56

I'm sorry you're not feeling too great. I hope things will gradually start to get better. I asked my daughter, who has more tattoos than bare skin, for ideas. She instantly suggested an animal, a bear perhaps. As an afterthought a Gambian pouched rat- actually not a rat, but they're the good guys which can detect landmines and some human illnesses.

Kittiekatz profile image
Kittiekatz

That’s so careless of them. However you seem to be taking it well 😊 Is it your arm or your leg, I’ve not got my new glasses yet & can’t quite tell 😆 (note to self, I must get to Specsavers) lol

Kittiekatz profile image
Kittiekatz in reply toKittiekatz

Duh, I’ve just realised you had a cannula in, so obviously it’s your arm 🫣 excuse me, it’s too early in the morning for me to start functioning properly 😆

watergazer profile image
watergazer

Oh my Mr B.!! At first I thought you were in the shade of a leafy tree. How about a spiders web? Though it looks like s dog from one angle. Hope it’s not sore. Cx

Mooka profile image
Mooka

OMG that is awful. Didn’t it hurt. Whenever I’ve had misplaced cannulas the have been extremely painful. Looks like you need a crocodile tattoo to cover that great area. Sorry to hear you’re not doing so well after you op. I hope your op improves the healing and 🤞for your eyesight.

Biofreak profile image
Biofreak

That's really careless of them. I would complain via PALS. Don't assume your care will be affected if you complain. In fact your care should improve as a result because they will know you won't tolerate mistakes because you have no fear.

Patk1 profile image
Patk1

😱 x

Germantara profile image
Germantara

Yes what you say is true iron treatment s can stain you're skin my daughter when she was a baby I had ta give her iron but was liquid I accidentally dropped just a spot it went between her fingers it was pure accident on my part it stained she still has it today luckily only a spot I'm sorry that's happened to you they should have taken much more care when they 9did that

LMEI profile image
LMEI

Lovely to hear from you. Was wondering where you were. I am sorry about your setbacks. Keep getting up and keep strong.

Linda

Ern007 profile image
Ern007

This happened to my wife years ago Not with iron but with saline - No staining just her arm swelled , Saline is colorless lucky for her it seems.

Mickymoo profile image
Mickymoo

I had iron infusion a few weeks ago also. They mentioned it can stain your skin. I would at least expect them to pay for the later treatments. You could look into a claim and explain what u want it for. I would be fuming 😤. Hopefully you'll get sorted out. X

Ergendl profile image
Ergendl

How awful! Tattoo theme? Animal from the Muppets band? Or add a sun peeping out from the clouds, to remember every cloud has a silver lining. Big virtual ((((hugs))))

Patk1 profile image
Patk1

A volcano beneath it + sparks added to edges+ top of stain = volcan exploding x

jackdup profile image
jackdup

that’s awful, could they not have stopped it before it got this bad or did it happen almost immediately? Is this really permanent as I have seen other times when they did get an iv in improperly but it slowly goes away, but have not seen it with iron so don’t know,

jhorsf profile image
jhorsf

I doubt anyone would ink over it , as the ink will react with the stain

Stratos20 profile image
Stratos20

I have been thinking about you and wondering how you were. So sorry you’re having problems. I guess all you can do is keep positive and enjoy your family. How are they doing?

Best healing wishes, Diane 😘

Biscuitface profile image
Biscuitface

Which hospital was it? I'm having my first I.v of iron on Tuesday in London Do you have any advice?

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