Hello everyone. It’s been a while since I’ve asked for advice, but I find myself almost at the end of my tether…
Last year I completed a course of pulmonary rehab and joined the gym and felt great for a few months. I then had a series of chest infections from the beginning of December, including the dreaded pseudonymous. Ive had multiple courses of antibiotics & steroids. I’ve only just had a sputum sample returned, “bug free!”
All these infections have created a new issue. Excessive sputum production. I wake between 3am and 5am every night with lungs full. It takes all of my willpower to stop panic setting in as I try to expel the secretions and still breathe. I have an AerobiKA device which does help but I find the whole process ….. which takes about 2 hours….. very traumatic. I’m just not sleeping. The sputum is always there. I’m clearing it a few times each day, but it’s stopping me doing anything. It’s debilitating.
I drink plenty of water. I sleep propped up a bit, probably about 45 degree angle.
I just wondered if anyone else is woken at night for chest clearance?
What is your story?
How do you cope?
What aids do you use or have you managed to turn it around?
Thank you in advance for your thoughts and any advice or comments. It’s just nice to know we’re not on our own isn’t it?…💕
Hi Lynnetp, just wondering..... do you do mucus expelling sessions before you go to bed? A friend who has bronchiectasis now does three physio sessions daily to get rid of mucus.
has your gp never offered you a respiratory physiotherapist to learn how to expel, if not I'd ask for one. I've not had to deal with this problem but it must be exhausting for you. Hope you get some informative replies soon. P ××
Hi Peege, thank you so much for your reply.
Yes I have at least 3 clearance sessions a day, the last of which is just before bed. My pulmonary physio recommended a flutter device which I use to help loosen the mucus too.
It is exhausting. I rarely sleep again once I’m awake from 4ish. I’m hoping to speak to my consultant this afternoon so I’ll bend his ear about it too & see if he has any bright ideas!
Thanks again xx