Cuban Girl lung volume reduction - Lung Conditions C...

Lung Conditions Community Forum

56,326 members66,957 posts

Cuban Girl lung volume reduction

T4vdub profile image
14 Replies

hi all , i recently read a post from 11 months ago by a lady called Cuban girl saying she was at Barts hospital gowned up waiting to go into theatre to have Lung Volume Reduction Surgery ( .which is being offered to me at Barts as well) , i was interested to know how it all went but can not find any more posts from her wondered if anybody knows any thing any info would be greatly appreciated or indeed anything about the operation itself personal experience or otherwise.

thank you for your time

Written by
T4vdub profile image
T4vdub
To view profiles and participate in discussions please or .
Read more about...
14 Replies
sassy59 profile image
sassy59

Hi, if you click on “members” and put in Cubangirl details will come up. Her profile is still there. Xx

T4vdub profile image
T4vdub in reply tosassy59

Thank you for your time will have a look , all the best

49dibs profile image
49dibs

Good morning. I have had lung reduction surgery on both lungs at Barts in 2018 and 2019I would certainly recommend the operation if offered. Barts is a great team. I don't know who your surgeon is but I have benefitted greatly from these procedures

mikebaker1949 profile image
mikebaker1949 in reply to49dibs

Hi 49dibs can I ask were you very active before your lung volume reduction surgery , and you mentioned benefited greatly ,did that take long to notice . Is the benefit still as good now.? Thanks Mike

49dibs profile image
49dibs in reply tomikebaker1949

I had difficulties walking for more than 10 minutes before the op. I struggled to climb even small hills and was generally breathless.I noticed an improvement within weeks and still feel much more able to walk further, take inclines and generally more positive day to day

I had no issues with the anaesthetics although the drains were painful to be removed. I was out of bed within 2 days and encouraged to walk walk walk

I don't know who Yr consultant is at Barts but if its David Waller you will be on great hands

mikebaker1949 profile image
mikebaker1949 in reply to49dibs

Hi thanks for reply I'm actually under Royal Brompton so with any luck they will be as good. All the best for the future Mike

Alfiebax2 profile image
Alfiebax2

I had lung reduction surgery in October 2018 at The Royal Brompton Hospital in London . Take your time in recovery . I got over it very quickly and it was a revelation as to how my condition was so much better . Its not a cure but it surely helps . I had an upper left lobectomy and I wish I could have the other lung done but I've been told it's not an option. I hope everything goes well for you . Oh by the way I was 70 years old when I had it done . Hope this helps you .

mikebaker1949 profile image
mikebaker1949 in reply toAlfiebax2

Hi hope this finds you well . I'm due to have LVRS surgery on a large bullae this spring which I deferred in 2017. Can I ask you how before the surgery you were . IE were you able to walk fair and were you on oxygen. Did it take long to the recovery from the surgery & was there any problems with the annaes thetic & drains. I'm still able to walk slowly fair distances but get very tight chested at times so it's a case of weighing benefits against risk..Many thanks for any reply Mike

Alfiebax2 profile image
Alfiebax2 in reply tomikebaker1949

Sorry I forgot to mention no problem with the anaesthetic or the drains . In high dependency unit for 3 days then back on normal ward . Then you start physiotherapy .Good luck .

mikebaker1949 profile image
mikebaker1949 in reply toAlfiebax2

Thanks again

T4vdub profile image
T4vdub in reply toAlfiebax2

Thank you .all the best

Alfiebax2 profile image
Alfiebax2

Hi my LVRS in oct 2018 went very well . Before the op I couldn't walk very far and I had ambulatory oxygen. I'm a fighter and my recovery was quite quick according to my surgeon . I basically was almost back to normal at 5 weeks past op . I fared very well after and wish I'd had it done sooner ..............but now I'm not good . I've moved from down south to up north and I'm afraid the cold up here is not good for me. I spent Christmas in hospital with respiratory failure due to a very nasty chest infection and I'm on oxygen fir 16 hours a day plus bottles for ambulatory use . I would still have the op knowing how I am now. Good luck and remember everyone is different . Bedt wishes Babs

mikebaker1949 profile image
mikebaker1949 in reply toAlfiebax2

Okay Babs thanks for reply wish you all the best for the future Mike xx

T4vdub profile image
T4vdub in reply toAlfiebax2

Oh so sorry to hear your condition got worse when you relocated up north . if it is mainly due to the weather there could you not move back down this way (south) and see if there is an improvement .and please stay warm thats the important thing .thanks again for the info on LVRS ,take care

Not what you're looking for?

You may also like...

Lung volume reduction surgery

Hi guys hope everyone remains well 🤗🤗I got phone call last week !!! I’m having my surgery 22nd...
Cubangirl profile image

Lung Volume Reduction Surgery

I have severe empyema COPD. I've been refused any treatment on the nhs and spend 22hrs a day in or...

Lung Volume Reduction

Diagnosed in 2011 had 58 per cent lung function at the time now down to 32 per cent been waiting...
T4vdub profile image

Lung Volume Reduction Valves

Good afternoon, everyone! I have not been around for about a year, I think, after been smacked on...
DecD profile image

Lung volume reduction

Hi I'm Tony. I have stage 3 emphysema and met the criteria for a lung volume reduction operation...
Tonyagm profile image

Moderation team

See all
AsthmaandLung profile image
AsthmaandLungAdministrator
moderator_AandLUK profile image
moderator_AandLUKAdministrator
Claire_ALUK profile image
Claire_ALUKAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.