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Stories from a hospital volunteer - Mon 23 January 2023

Greenthorn profile image
30 Replies

It's been a while since I last posted but Monday's visit produced a mixed bag of stories, some of which I just have to tell you about. For those unfamiliar with my role, I visit a London hospital every week and venture onto two wards dealing with elderly and dementia patients. I am designated a Ward Musician and play musical and song requests, downloaded from the Spotify App and relayed from a Bluetooth speaker.

I won't use real names in these accounts but would like to share some of the encounters, not all of which bore fruit . I took two huge risks last week; one paid off and one didn't. Lets start with the one that didn't. The patient was an elderly lady, a former concert pianist, but now living with dementia and clearly troubled, not knowing where she was. She was lying in bed and screaming out "get me out of here." In all the circumstances I should have avoided her. However I took a chance and asked her if she'd like to me play Chopin. But she said "No". And here I made an error of judgment for I decided to play Chopin anyway since it might have calmed her down. A good piece to play is Nocturne No. 2 in E flat major. And so I began to play and the lovely piano notes rang out around the bedside. For a little while she seemed to enjoy this and then asked "Is that my piano?" I answered "Yes," wrongly thinking that might please her! Yeah - how wrong I was. She came back at me, "What the hell are you doing playing my piano?" I squirmed back "It's a recording." But the damage was done, "I've never given you permission to play my piano." I faded the music out whilst walking backwards away from her. She became calm again, but fearing she would tell a nurse that her piano had been stolen, I felt obligated to explain what had happened to a nurse, apologising for any disturbance I may have caused!

By way of contrast, the next risk paid off. Another agitated elderly lady, lying on her side in her nightie, and propped up by an elbow. None of us could understand what she was shouting about for she was from Uzbekistan in Central Asia. A trainee nurse had her son's phone number and rang him in order to pass the phone to his mother, hopefully to find out what the lady's needs were. Some words were spoken to her by her son but she was still agitated.

I stood at the end of her bed and put my finger to my lips to signal "Ssh!" I also held both my arms out in front of me with my hands flat out, but completely still. This seemed to attract her attention for she became quieter and was gazing at my posture. And then instinctively I took the risk and sat right next to her in the bedside chair, and gazed into her face.

They say eye contact is good but this was pushing my luck. The lady began speaking to me in Uzbekistan whilst I listened intently, going through a range of facial gestures of agreement, sympathy and surprise. At one point the lady laughed. I held her hand whilst she continued talking to me, so relaxed and happy. This was a 10-12 minutes conversation. She talking and me making responsive gestures. Two nurses looked on and were astonished, as if I had magical powers. I don't think so. But what I did do was to show the lady I cared, and give her attention and time to talk to a listening face.

It was only afterwards that I remembered I had a faux fur hat in my bag and I could have worn that to give the impression I had come down from the mountain. But maybe that would have been a risk too far!

I think I will do a Part 2 for there were 3 or 4 more patients to mention, one of whom was a butler for the royal family. He told me "The King knows I'm here." He was 86 years old.

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Greenthorn profile image
Greenthorn
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30 Replies
sassy59 profile image
sassy59

Your hospital tales are brilliant David and you were right to take a chance with the 1st lady even though it didn’t work out. It’s not easy to know what to say or when but you certainly do your very best. I’m sure the nurses are used to not always getting things right also.

The 2nd lady seemed to really take a shine to you even though you had no clue as to what she was saying.

Looking forward to the rest of the story and carry on as you are.

Carole xxx

Greenthorn profile image
Greenthorn in reply tosassy59

Thanks Carole, usually my gut feeling is good but I do make mistakes. One elderly guy in a wheelchair accused me of wearing his shoes. I thought I'd be clever and I asked him what size shoe he takes but he again repeated "You're wearing my shoes!" It had no concern to him that my shoe sixe might be well different from him. I must just as well have told him, "Yes they are really comfortable and can I keep them for another hour?" 😂

One thing is for sure: logic goes out the window for a person with dementia.

sassy59 profile image
sassy59 in reply toGreenthorn

That’s so true. My late mother in law was difficult sometimes but we got round things. Xxx

Caspiana profile image
Caspiana

Hello David. So nice to see your latest news. As you know things are complicated with dementia patients it is so hard to know what will happen. They are very lucky to have you there to help them through their day. I would imagine for many and their families this is the worst time of their lives and volunteers like you help so much. xx 👋🙂

Greenthorn profile image
Greenthorn in reply toCaspiana

Thanks Cas, we are trained up on dementia and we never rush anything. My mother had Alzheimers so I have every sympathy with those that suffer, particularly the close family members. Sometimes I concentrate on talking with a family member who might be at the bedside knowing that dad or mum is listening and is often pleased their son or daughter is engaged in talking to a 'friend'. But for for sure, dementia is a crippling illness though we are taught to say "living with dementia" and not "suffering from dementia" as so much can be done to improve the quality of life and daily experiences. Thanks again for your response. I'm back on the ward tomorrow. I wonder if the two ladies are still there!

slram profile image
slram

Thank you!

Greenthorn profile image
Greenthorn in reply toslram

Thanks slram. I enjoy writing these accounts up.

djbctla profile image
djbctla

I admire u greatly for the thoughtful time and care u give on your visits to the Dementia patients. 🥰🤗🥰Bernardine

Greenthorn profile image
Greenthorn in reply todjbctla

Bernadine, thankyou. I appreciate your reply.,

Izb1 profile image
Izb1

I suppose sometimes you have to take chances and with dementia you never know what the outcome will be. At least you will have brightened the day for some and thats always a good thing. Its wonderful that you are helping out x

Morrison10 profile image
Morrison10

well.done.cant.say.more!Jeanx

Greenthorn profile image
Greenthorn in reply toMorrison10

Thanks.Jean. Appreciated.

Alberta56 profile image
Alberta56

I hope everyone will have someone to help them in the last stages of this dreadful disease. As Ophelia said 'We know what we are; we know not what we may become.' A sobering thought for someone of my age. xxx

Greenthorn profile image
Greenthorn in reply toAlberta56

Thanks Alberta56. Yes, a sobering thought indeed. Whilst I have a 3/4 set of marbles, I try and use them productively and not bowl them all at once!

Alberta56 profile image
Alberta56 in reply toGreenthorn

My brother used to say of my dad, 'It's not that father has lost his marbles; they've just gone a bit elliptical.' I feel very elliptical at times. xxx

Stratos20 profile image
Stratos20

l love your stories Greenie. I await the second part 😊

Greenthorn profile image
Greenthorn in reply toStratos20

Part 2 has just been posted under the title of "Ring for the Butler." You will like.😂

Otto11 profile image
Otto11

That’s a lovely story. Don’t beat yourself up about the first lady I’m sure she will have forgotten about it but shame it didn’t work as planned as it was a lovely thought.

Greenthorn profile image
Greenthorn in reply toOtto11

Thanks Otto11. I did see her again last Monday but she was in a different bed. Thankfully she was asleep!

Otto11 profile image
Otto11 in reply toGreenthorn

😆 x

dunnellon profile image
dunnellon

I've known a few people with dementia and I fear being on either end of it, the patient or the caregiver. Blessings to you for having the compassion to bring some pleasure to their day and thank you for sharing your stories.

Greenthorn profile image
Greenthorn in reply todunnellon

Thanks dunnellon. It isn't everyone on the two wards with dementia. But all are elderly, and quite a few in their 90's still kicking and with a glint in their eyes!

Thepainterswife profile image
Thepainterswife

What great tales you bring ! I really enjoy reading of your encounters . I loved working with dementia patients in the care home , the joy and satisfaction of a break through as you describe can hardly be put into words . Your post reminded me of a special memory I have ; I once took half a dozen residents to a specialist hotel by the sea for a long weekend , on the second day we noticed a small lounge that obviously wasn’t supposed to be in use ,it was untidy and in need of decorating but someone had left the door open so we ventured in . One of the ladies who had quite advanced dementia spotted an old piano , made for it , sat down and played beautifully for a minute or so . I was absolutely amazed , this lady who struggled to string a few words together was able to produce such beautiful music ! “ I didn’t know you could play “ I said “ neither did I she replied “ and we both had a good laugh 😂

Katinka46 profile image
Katinka46 in reply toThepainterswife

What a beautiful story. Thank you

Kate xxx

Thepainterswife profile image
Thepainterswife in reply toKatinka46

it’s one of many Kate , I worked in the care home for 14 years One of my biggest challenges was a man who came in after his wife , his main carer died . Tom ( not his real name) didn’t have dementia but had lost his sight and most of his hearing in later life. When his wife died he had attempted suicide. It took six months to get a breakthrough with Tom , it was so difficult to have a conversation , but it came about when I discovered he used to write poetry and had a suitcase full of wonderful poems in his wardrobe . There was no stopping us then , I would give him a theme and he would recite the poems which I wrote down, I got him to join other residents and although it was difficult for him to converse he could hear them clapping when he read his poetry ( which he did from memory !) and he did establish a few strong friendships. We had 5 lovely years together , we attempted to learn braille together not very successfully but we had some laughs 😂, he joined the weekly quiz , me shouting the questions directly into his good ear and he invariable won ! He had a decent voice and after some persuasion he began to sing for the other residents who for the most part really enjoyed his recitals , sometimes someone suffering from dementia would shout “rubbish !” but it didn’t matter because he couldn’t hear 😃 he only heard the loud applause when he finished 😊 Happy days x

Greenthorn profile image
Greenthorn in reply toThepainterswife

👏👏👏👏👏♥️

Katinka46 profile image
Katinka46

Sorry to be late with this. Two wonderful tales. Thank you so much.

Love Kate xxx

Greenthorn profile image
Greenthorn in reply toKatinka46

Thanks Kate. Did you read the Painter's Wife's story above. Its just brilliant!

Thepainterswife profile image
Thepainterswife

I’ve just added another of my special memories David , I do apologise for hijacking your post and hope you don’t mind . I really should write my own posts I have so many good memories, some of them hilarious, like the time I had to separate two gentlemen in their 90’s squaring up to each other , for the love of one of the ladies 😂 x

Greenthorn profile image
Greenthorn in reply toThepainterswife

Oh please don't apologise. Anyone is welcome to share a related story on this thread. And yes you should post more, even write a book. Imagine ... two guys squaring up to one another in their 90's all for the sake of a young lady in her 80's no doubt!

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