Hi all new here I have been diagnosed with emphysema for around 2 months now from a x-ray then a CT scan with contrast. I have a long wait for spirometry through the NHS so I booked a private one and had it today. it shows my fev1/Fev is 71% which now has me confused as my breathlessness and symptoms don't match up to my score. For example I do one flight of stairs and need to catch my breath or walking normal pace for a few minutes leaves me breathless. Does anyone have any advice on what could be going on? I have also had 3 spontaneous pneumothorax and a pleurodesis done in my very late teens.
Hi, Reach86. Sorry to hear you've had such confusing results. I'm not a doctor so I can only comment from my experience. I have emphysema with asthma overlap. When I took the Pulmonary Rehab course a few months after diagnosis in 2015, the physios helped me realise I had disordered breathing - I was deliberately hyperventilating before a more challenging task like climbing a hill or digging the garden. I started diaphragm singing exercises to get greater control of my breathing and no longer do that now. With other healthy living changes, my results have moved back into the normal range from moderate, I still have my conditions, but they don't affect me as much in day to day activities.
You can look up diaphragm singing exercises on YouTube or check the Asthma Lung website for singing for lung health groups in your area to see if this will help for you. Do ask your GP for a referral to a Pulmonary Rehab course too.
Thankyou for your reply and the information and I will take a look at the diaphragm signing.Thanks again