A little history. My resting oxygen was 95, my Fev1 30%, I stayed at that level for a good couple of years. 2020 I suffered from a bad flare up and was in hospital for 16 days.
I didn't really recover and despite trying to get help and failing (no surprise with the covid crisis) I became so ill I had to have a home visit from a doctor. Back in hospital a mucus sample had been taken because I begged for it. I told the doctor that my antibiotics didn't seem to be coping with infection, a mucus sample proved I had the same bug in my lungs. So a year with a lurking infection.
New antibiotics were found, not easy as I'm allergic to some.
I was told it had been suggested I was assessed for ambient oxygen therapy. As my oxygen level at rest rarely made it to 90, dropped drastically as soon as I moved and my Fev1 was at 26% that seemed fairly urgent.
A nurse came to assess me in early March (18 months from when it was first suggested) but delayed prescribing oxygen as she thought my swollen legs were caused by heart problems and that I was almost hyperventilating.
Friday 6th of May she assessed me again and this time said yes to the oxygen. Phew!
The oxygen (some of it) arrived Saturday. (the rest came Monday and Tuesday (shortages).
So starting on Sunday I set myself a target, Using my rollator and oxygen I'm going out and walking the length of the block of houses and back every day. 105 yards including my garden path. If the weather is really wet I'll stay in and tackle the stairs because my feet are still swollen so I'm wearing slippers!
For 18 months I've struggled to walk to the loo and back so 100 yards is like a marathon. By the end my heart pounds and my lungs feel like I've been running a long distance race. I'm hoping the walk will get quicker and easier.
I'm still doing a little gentle armchair exercise on and off throughout the day.