Oxygen drops

[Hometeam2016]

hi guys

I haven’t come across anyone similar to what I’m going through but I still keep trying to find out , basically I have a constant cough 2019 consultant said on ct was emphysema changes so basically he said my issues r emphysema well had covid twice the last year I’ve been breathless at work but result sometimes in a coughing fit when walking home cough and heart rate increases , but deep breaths I was ok , oct went in hosp only because dr phoned ambulance as my oxygen when coughing it was 85 then it went to 93/95 within few minutes and that’s what I’ve been like since when I walk around my oxygen drops to 85/87 I sit down then it goes in the 90s I’m not sob never wheezy never had infections on ct now saying no definate emphysema , it does say I have scattered cysts which could b pulmonary nodules I am under a London hosp but at mo it’s a mystery lft showing restrictive not obstructive so is anyone going thre anything similar ? Anyone have any restrictive conditions ? Thank you

[tomc]

My sats are like my wallet.

One day got 95% next minutes later down to 85% then back up again.

I too have Emphysema. But it is what it is and you have to accept that and get on with life.

The one thing NO governments can tax or take away from you. BASICALLY.

Don't be a sitting bull .. ... Be a raging bull.

[BrigidsFire]

I have interstitial lung disease caused by an autoimmune condition (lupus). It was diagnosed after I saw a pulmonologist for a persistent cough that started in Dec 2019 and was still hanging around 18 months later (should have done something about it sooner, but getting an appt for a cough during the first year or so of covid was nigh on impossible 🙄).

ILD is a restrictive lung disease, not obstructive.

My cough is often hanging around when I’m inactive, but is horrific when I do anything physical, to the point I have to stop moving, cough my lungs up and wait to get my breath back before continuing on my way. It is also so violent that it has caused me to become incontinent. Tena is my new best friend

My heart rate increases significantly when I cough. I even saw a cardiologist because I had regular tachycardia episodes.

My sats drop to the 70s/80s when I’m active and jump back up to 95ish when I stop and get my breath back.

My CT shows “ground glass effect” patterning on my lungs (scarring from the ILD).

I find dextromethorphan helps with my cough. I have a letter from my rheumatology team recommending I take it regularly and I take the letter with me to the pharmacy so that I can buy more than one bottle at a time.

I am 46.

I tried to get a diagnosis of lupus for about 15 years before giving up (different areas of the country). If it wasn’t for this one lovely lung doctor who asked thousands of questions then I probably still wouldn’t have a diagnosis, although it took the lupus damaging my organs to find this doctor!

[Patk1]

It's q normal,with lung disease for 02 to drop during activity,especially when struggling.its good that it soon returns to normal. If Yr coughing on walkng, listen to your body - slow down to a pace U can breathe without coughing + focus on controlled breathing technique.pulmonary rehab physio told me this many moons ago + it's been a godsend." Move your goalposts"

[Biker88]

I have emphysema and used to have a constant cough, eventually the cough was diagnosed as an allergy cough and I was allergic to excess vapour from stomach acid irritating the lungs. Gaviscon stopped the cough almost instantly and I’m now on Omeprazole due to hiatus hernia which causes reflux. There is also anxiety coughing which I do have if I’m in certain situations so it may be worth exploring other causes for your cough

[Hometeam2016 in reply to Biker88]

Hiya , oh I’m waiting for a camera down the throat also been on omeprozale for over a year low does and 7 months high dose they put me on it mentioning acid reflux but all I have is the cough don’t have any heart burn or reflux etc

[Biker88 in reply to Hometeam2016]

I didn’t have heartburn or reflux just a cough, I eventually got a sputum sample which was tested and came back clear of any type of infection which got me started looking at the allergy option. I also ended up with inflamed oesophagus which stopped me swallowing, this was also caused by the excess acid after a couple of gastroscopies identified the inflammation

[Hometeam2016 in reply to Biker88]

I have allergies and I always fill like it’s from my throat I have hayfever and I have to walk past loads of heathers and grass fields strong weeds flowers etc so I always said it was that making me cough but I’m still

Dropping oxygen on walking even tho now I get a lift so I’m not sure

[Patk1 in reply to Hometeam2016]

Do u take antihistamines

[Biker88 in reply to Hometeam2016]

Oxygen levels dropping when exerting is normal with emphysema and most lung conditions, it’s how soon they come back up again that’s important. I now use a mobility scooter for anything more than a few yards as I get so breathless I just have to keep stopping.

[Hometeam2016 in reply to Biker88]

Mine comes up within seconds I’ll show u from a health app

[Hometeam2016]

yeah 180mg a day (fexofenadene )

[Patk1 in reply to Hometeam2016]

I have them too.whn v irritated by hayfever etc I have to add in loratidine too x