Oxygen fostair

[Alice70]

Hi ,had oxygen assessment last week was told I didn't need oxygen jet which is one good thing ,saw private consultant yesterday told him I've never been happy with trmbow as effects only last few hours ,and that I do realise it could be progression of the desease ,he has put me back on fostair which is more or less the same as trimbow only he has increased the dose to 200/6 also ordered scan ,blood test ,breathing test all at cost ,isn't it awful you have to go private because haven't seen nhs consultant for three half years ,lm trying to console myself by saying I would spend it on my car if broken down ,anyway is anyone here using fostair at higher dose and do you get on with it thanks Alice

[Lyd12]

I am the same Alice, seeng a private doc arranged by my son. Have appointment on Friday following ct scan.

[Alice70 in reply to Lyd12]

Hope things go well for you Lyd

[CDPO16]

Hi Alice. I have been on fostair 200/6 for over 3 years. At first I had a slight sore throat and middle ear irritation but this gradually settled. It helped me breathing wise a great deal at first but the effect has gradually lessened over the years. I hope that you find it beneficial.

[Alice70 in reply to CDPO16]

Hi Carol reading your introduction as I wasn't sure if you had emphysema, I was diagnosed 2015 ,looks like we are the same age to ,I'm looking forward to the increase, just hope I get on with it ,my last breath test at gp surgery laSt year said my breathing was 29%, I felt sure I needed oxygen, but oxygen assessment said no ,I think I've read in past post that you have oxygen, I hope very much it helps ,also hope you are feeling g better than you were ,thank you Carol x

[CDPO16 in reply to Alice70]

Hi Alice, I am feeling considerably better than I was a few weeks ago thanks.

I am stage 4 emphysema now but was first prescribed Fostair 100/6 in 2015. It was increased to 200/6 a little over 3 years ago. I have been on short burst oxygen since September 2020 and ambulatory since June last year. I'm expecting it to be reviewed next month.

Diagnosis or degree of lung disease has little bearing on the need for oxygen therapy. It is how well your lungs absorb oxygen and transfer it into the blood vessels that determines the need. Not all people with lung disease need oxygen therapy.

My oxygen treatment just maintains an adequate blood level to protect vital organs, it doesn't stop me being breathless.

[Alice70 in reply to CDPO16]

The assessment nurse explained how oxygen works exactly as you have ,I am finding out .more about this illness lately, I wish I new then what I know now I would never have smoked ,so much for being a sixties girl

[CDPO16 in reply to Alice70]

We are all blessed with hindsight Alice. Just have to try and make the best of things now. xx

[Alberta56]

I hope the higher dose works for you, Alice. It's not good that we have to go private to get what we need. xxx

[Alice70 in reply to Alberta56]

Thank you Alberta it's isn't good ,but at least I've had meds increased

[Caspiana]

Hello Alice. The good news is not needing oxygen yet. That is really good news. And yes, it is very unfortunate you have to go private which really is unacceptable. My sister has to as well for her sinus issues. The wit list on the NHS is something like eighteen months. xx 🌿

[Alice70 in reply to Caspiana]

Yes caspiana good news about oxygen,having to go private is not ,the main thing is I feel happier now ,just having someone medical to listen really helps

[Caspiana in reply to Alice70]

I completely understand. I have recently been helping my middle sister with getting an appointment with a Rhuematologist in Yorkshire. To cut a long story short have finally had a bit of progress. 😓 Because I am not there I have to write emails to her doctors etc. But at least we are getting ahead a bit now. xx 😑

[Alice70 in reply to Caspiana]

Well done for being persistent