24 weeks pregnant no amunotic fluid poor lung development

[PhillipsE02]

Good evening , we have been told it is unlikely that our baby will survive at birth because of the no fluid it could mean poor lung development so when baby is born and the cord is cut the baby won’t be able to breath for itself and will pass away, the baby also has polycystic kidney disease which is causing the no fluid , we are due in February but are looking for some support for what we are dealing with and what we may have to go through I almost want to feel prepared . I'm not sure if this is something you do and if not could point me in the right direction . Thanks lizzie x

[sassy59]

So sorry to hear such sad news. The British Pregnancy Advisory Service may be of some help to you. If you press on My Hub and Communities you can put pregnancy in and it should come up. I hope you receive lots of support. My heart goes out to you. Xxx

[Alice70 in reply to sassy59]

I think you have said the best thing Sassy ,my heart goes out to this couple best wishes to them

[sassy59 in reply to Alice70]

Just so very sad Alice. Bless you. Xxx

[Patk1]

💕

[Dedalus]

What a dreadful situation for you. I hope you can get some good advice from The Pregnancy Advisory Service and you find some good support with this x

[Hidden]

So very sorry for what’s happening in your lives right now. It was for very different reasons, but we lost a little boy at only just shy of 24 weeks. Sands and Tommy’s are both charities that work around stillbirth and neonatal death, including where it’s known that a baby is unlikely to survive long after being born. However, I think your best, first port of call may be the Polycystic Kidney Disease charity. They have a lot of information around the kind of PKD you’re describing in relation to diagnosis during pregnancy and the disease in newborns, as well as a helpline you can contact for information and support:

pkdcharity.org.uk/arpkd/wha...

Hope that’s of some help to you. Take care.

[Damon1864 Volunteer]

Y heart goes out to you both and your baby, it must be so hard. You have been given some very good advice about different charities you can get help and support from, but if you ever feel you need to talk to someone or just let off steam a good listener. Hope you have a goodnight and please take care 😊 Bernadette and Jack 🐕 xxxxxx 🌹

[CDPO16]

Thinking of you at this heart breaking time.

[Kristicats]

Have the hospital takes about amino infusion at all?

So sorry to hear you are going through this. I lost my first child at 25 weeks, he lived a week on support. He was too prem for his lungs to support him. Feeling very sad for you and hope something can be done . Hugs to you and your little one .

[Hidden]

Oh no, lizzie, this is the saddest post I’ve ever read. My heart goes out to you both, and your tiny baby. To get this far & find out he or she can’t survive, what a horribly painful time for you. I can’t add anything, just wanted to say I’m so very sorry my dear xxx

[Caspiana]

Hello Lizzie,

I cannot even begin to imagine the sadness you are going through day after day. I would hope the hospital has offered some kind of support to help you deal with this. Do the doctors think you will be carrying to full term? With my second pregnancy she was in a funny position in my tummy and they warned there may be major complications. But both I and her father spent every day talking to her by name, reading to her and playing music for her, telling her how much she was loved. I thought, if she was not to live outside of my womb then I would make for her the best life I could whilst she was still there. It was important for me that she was a person with an identity and even more importantly I wanted her to feel loved. This is all probably unhelpful information and if so I am truly sorry. Although the medical professionals have a grim prognosis for your child, please know I believe a person is a person no matter how small or brief their life may be. Many members have provided good advice above. Please know that although we are strangers you will always find a kind ear and support here should you need it. Sending you and your child a very gentle hug and much love.

Cas xx🌹

[Karenanne61 in reply to Caspiana]

❤❤❤

[Oshgosh]

That’s just so sad.perhaps if you ring BLF HELPLINE,they may be able to point you in thdirection who can help and support you.I’m sending love xxx

[Katinka46]

So very sorry to read of the very difficult time you are both facing. Thank you for posting your story.Xxx

[pepparuby1]

I’m so sorry how sad

[vwtopaz]

My heart goes out to you at such a difficult time, admire your strength reaching out.

Contact details below:

ARC Antenatal Resource and choices

arc.org.uk

Thinking of you Lizzie.

[teddyd]

I cannot imagine what you are feeling. I can see people have provided you with some helpful contacts. Bliss is another organisation that could provide support and direct you to other appropriate service. ❤

[Mary-Jo1]

So sorry Lizzie - my heart goes out you. X

[Croydonia]

My heart goes out to you and your husband, life is so sad sometimes. The others have given you good advice, I have none, except I’m thinking of you and how unhappy you must be. Take care of yourself.

[MoyB]

I have no helpful advice to offer but am sending virtual hugs to you and your little one in the hope they may give you some support. ((((( ❤️ ))))) xx Moy

[B0xermad]

Oh my you have had such a hand dealt to you ,so sorry to hear about your situation, I can't offer any advice but feel for you right now x

[Alberta56]

So sorry to read your sad news. I'm thinking of you, your husband and your little one and hope you get lots of support to help you through this sad time. 💓💓

[Walkwalkwalk]

Love and strength for you to follow the lovely advice given. 💗 Grace

[crashdoll]

I’m so very sorry to hear about what you’re going through, Lizzie. I don’t have any specific advice but it seems you’ve had some from people who’ve also been in a similar position. My heart goes out to you and I hope you’re getting a lot of support in real life too. 💗

[katieoxo60]

So sorry to hear of your sad news and the trauma you are going through right now. So kind of you to share it with us I am sure some of the links in the post will help you find some of the answers you need. I cannot image what it feels like for you both. Take care you are in my thoughts.

[Mooka]

My heart goes out to you. Over 40 years ago my first son was born with under developed Lungs and kidneys. I had no idea until he was born as we didn’t have scans in those days. He lived for 12 hours. Sadly in those days he was taken away and we don’t didn’t get to spend time with him. A few years ago on reading my hospital notes I found a letter from my GP that said he had Potters syndrome. I think this maybe what you are describing and feel sure they have a charity to help people in your position. If I can find it I will post a link. I truly hope you get all the love and support you need.

[Mooka]

There is a FB potters syndrome parents support group. I’m sorry I don’t know if it will be of help as you have to join to see the posts. If I can help in anyway please message me.

[BP135]

I am so so sorry about this devastating news. I can't imagine how you are feeling. I expect you know of the pkd charity? Just mentioning it in case. Im sure they can offer you some support. I have pkd in my husbands family. I'll be thinking of you xxx

[leo60]

Sending love and hugs, Laurie xx

[CaptainPugwash]

My Heart Goes Out To U Both I’m Thinking The Same As Others Pregnancy Advisory Service Hugs N Love 🖤🖤

[Carnival567]

So sad to hear of your difficulties and your baby’s situation. I just want you to know, like many others, that I am thinking of you with love xx

[watergazer]

Hello I feel for you and your families for what you’re going through and the possible outcome. I can only say give your little one all your love now. There is some good advice for you in previous posts. I too have had to support our children who have had unsuccessful pregnancies and pregnancies with lots of worries. Sending you love and gentle hugs 🤗🤗🤗 xx

[GingerCatJayne]

I have had 4 premature babies. My first born was delivered at 27 weeks and was given 48 hours to live: he is now 18 and will be 19 this year. With my twins and then my 4th baby - I was told that I had no amniotic fluid at all! The midwife explained that the fluid comes and goes. In fact on one of the scans of my twins - my daughter didn't have any. Just make sure you (your partner) has the injection that helps the baby's lungs to develop. Good luck and I hope you have a positive outcome. x

[Nicholatracy]

Prayers to you 🐞

[r0yalalbert]

Oh bless you both,stay strong.much love, Rose x

[strongmouse]

Sending love for you and your baby. So hugely difficult for you. Find out all the information you can, take care of each other and this unborn little one. Life can be hard, all we can do at such times is to live each day with gratitude for all that is still good in spite of the sadness and grief. Be gentle with yourselves. xx

[HighGables]

I’m so sad to read your post and I will be thinking of the three of you and sending love and hope. Jax

[Delamere]

My heart goes out to you.No words are enough. I am thinking of you and sending you hugs and love xx