Evening everyone, hope you are all safe and well.
I filled out and posted away my PIP forms late December 2020, i get the usual text to say they received it etc, had my PIP telephone assessment yesterday, i thought most of the questions were clutching at straws and could have been more specific related to my conditions.
I suppose it is what it is.
Stay safe every one.
Fingers crossed 🤞
Good luck 🤞 hope you get, please let us know. Have a good day 😊 Bernadette and Jack 🐕 xxxxxx
Good luck to you David. Xxx👍🥰
Hi , I'm waiting for pip to call me I received an email from them saying I could expect a call within a week or two . It makes you laugh though with these people because doctors say c.o.p.d is irreversible and progressive and when you get to stage four it's terminal , yet the dwp still think that your going to either recover from it or its going to go away 😂😂 I had fresh CT scans done two days ago and the pulmonologist said that they have found more problems and need to go for an emergency appointment tomorrow morning at eleven thirty . I know being stage four comes with problems just wish dwp would finally acknowledge that c.o.p.d is serious and stop messing people around .👍 These independent adjudicators aren't always used to dealing with some health conditions and don't see the real issues people face .
Hope the decision goes in your favour. If not, appeal.
I hear you, (sigh) but the guidelines and protocol (right or wrong) the professionals have to follow states it's not about the diagnosis it's how it impacts you as an individual on a day to day.
They have a list of descriptors for each question so your answer fits into the descriptor that best matches, each descriptor is "worth different points" .
Anyone going through PIP I highly recommend looking at CAB, turn2us etc for specific guidelines that help and inform to complete the process.
Everything in healthcare is evidence based so if gp or hospital can't supply evidence to support what individual is stating becomes tricky and may not get entitlement you deserve to help meet daily costs of living with a disability.
The best advice I can give to anyone is do a diary sheet for 5+days look for examples on m.s charity page sadly there aren't any for lung conditions (sigh). Where you may not have continence issues like m.s you could change that box to meds - dossit box for safety/ dexterity. Does it take you an hr to take as so many struggle with inhalers, nebs, oxygen - trip hazard?
If you manage a shower, do you need to sit is there grab rails? Do you improvise? Can you actually was top and bottom half do you have to stop to catch your breathe between? Do you manage to dry properly? Do you have to que down for a rest to recover does it wipe you out for rest of day? Does steam in bathroom implicate things? Do you need carer/partner help? Mentally does it finish you off for hours? Do you dread it? All these little things we go on autopilot with we literally have to spell it out to them. On each question.
If you live with someone or someone close to you that sees you regularly writes a supporting statement backing up what you've put in original form.
Don't send appointment letters (they'll be disregarded ) but discharge letters consultant letters etc. Letters with information about you as an individual.
Sorry its ended up a general info post and long but hope it helps even a little for someone. X🙂
I am on PIP and prior to that DLA. Whilst I sent some letters /reports to PIP these were very old and not sure how much help (if any) they were.Just saying this because would hate for someone to think no point in applying because no supporting official letters. Is very much to how completing form and emphasising difficulties with daily life.
Oh absolutely just meant actual appointment letters I know it's not even looked at its taught in training to be an assessor. Appointment letters don't generally contain supportive evidence, mine never have an I've never seen a patient with any thats all I meant. 🙂
Hope everything works out in your favour after such a long wait for assessment
I hope all goes well and you get your PIP. The DWP is not good with hidden disabilities. If you've got 2 arms and 2 legs in reasonable condition it can be hard to convince them you qualify for PIP. If they do turn you down, be sure to appeal. Good luck.
Dreading my son's PIP investigations because he does have two arms, two legs and can walk across the room to open a door. However he does suffer with Asperger Syndrome and Neurofibromatosis which are conditions which you just have to get on with. Very little help available especially now he is adult. The N/f is progressive and comes with a set of various complications. Asperger Syndrome has affected him more because he is seen as different and therefore has never been able to obtain full time employment. Can't imagine how he will cope with any telephone assessments because social communication is one of his biggest problems. He hates the telephone and will go out of his way to dodge people when he is out rather than talk to them. He definitely will be unable to fight for PIP when his DA comes to an end. I will do whatever I can. Life is very unfair sometimes.
These telephone assessments are hopeless.They cant see your physical problem over a phone and if you have anxiety your nervous answering questions. do it properly DHSS and with more sympathetic examiners.
Pip assessment done !!
PIP Assessment
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PIP Assessment 
