Thank you everyone, I do keep as active as possible, I just feel like I could rest all day but trust me I don't. It is Kartegeners syndrome I have, very rare apparently although my brother had it as well.
Thank you all for your replies, I have spoken to a GP but none seem to understand the way I feel, likewise my respiratory team, it would seem it's all pretty normal and get on with it. So that's exactly what I'm doing, onwards and upwards.
Good luck to you NUTZ. That’s quite something to be dealing with. A GP wouldn’t really understand your health problems and being rare as Kartegeners is just makes things worse. I hope you can find a specialist soon.
Take care xxxx
I wish you the best also. I had never heard of this so googled it. I had no idea cilia hairs had such an important function in the body. As far as I was aware they just automatically helped clear the lungs and are a minor body part.
Do you have the inversion of your internal organs? I have heard of very rare cases of this.
I love your attitude and this will carry you a long way. x
Yes hypercat54 I have the inversion including spleen and liver which is very rare, I was about 63 when it was diagnosed and taken seriously. I tried telling an ambulance crew that my heart was possibly on the right and that my pain was down my right arm etc, they do look at you in disbelief but it was quickly realised I was having a heart attack and so followed the complete diagnosis. Lol.
I’m staggered you were 63 before you were diagnosed. I do know a lady who, along with her sister has pcd with situs inversus. With proactive consultants now in specialist centres working on our behalf, bronchiectasis and all its causes are at long last being taken more seriously. Funding is still a problem for pcd and bronch when compared with cf and copd but we live in hope.
Cx
Thank you for letting us know. I thought the cause of your bronchiectasis sounded like PCD (Kartegeners syndrome). I wonder was it diagnosed when you were a baby. I reiterate I hope you are with a respiratory team who specialise in cf/pcd/bronch. Believe me it makes all the difference. You need to feel supported by a proactive specialist team. Check out what your consultant has a special interest in online.
Good luck and hope you feel better soon.
Love cx
You seem to be doing all the right things. I hope you can find a suitable specialist soon. Best wishes.
I have an autoimmune disease the symptoms include severe fatigue. This link was posted recently to help with the fatigue. versusarthritis.org/about-a...
You could also look up the spoon theory written by a lady with lupus. Fatigue is very real and shouldn’t be dismissed by doctors.
Tired
Hello !
feeling tired and fed up
Sadness 
