APS

[Carkaisabellacolin]

Hi everyone

Hope you are all keeping well in such challenging times. Its been a while since i last posted . Seems not only shielding literally but metaphorically as well🤣

Well i had my lung segmentation in December and recovery has been slow but infection free and breathing better .

Able to exercise again so starting to feel stronger. I did want to ask as i was tested recently for numerous blood disorders as i suffer with clots and after surgery experienced one in my leg. Even while on blood thinners..

They found out that i have APS . Does anyome else have this condition . I know its treated with thinners but its an other thing to add to my list and would like to know how you feel? Anything at all.

Thanks x x

[HungryHufflepuff]

I don't have APS but just wanted to say it's good to see you again. I hope you continue to make a good recovery and keep getting stronger 🕊️

[Carkaisabellacolin in reply to HungryHufflepuff]

Thank you Take care x x

[sassy59]

Hi, good to see you again and glad your breathing has improved. Pete doesn’t have APS and I hope it doesn’t cause too many problems for you. Something to be kept an eye on.

Take care xxxxx

[Carkaisabellacolin in reply to sassy59]

Thank you x x

[Hidden]

I Echo what HH has said, so glad you are breathing easier but so sorry about the APS.

Unsure if you have been made aware of UK help for APS, there could well be a dedicated community here:

aps-support.org.uk

Keep with your recovery, best wishes BK

[Carkaisabellacolin in reply to Hidden]

Thank you x x

[judes]

I was diagnosed with APS some 20 years ago when some docs didn’t know a lot if anything about APS it has got better

There is community here on health unlocked where members can prob answer any questions you have.

APS is generally treated with anti coagulants of different sorts. I personally take Warfarin.

If you need any further info feel free to pm me

J

[Mollie01]

Hi

I was diagnosed with APS/Hughes Syndrome 2013. I was under Prof Hughes (the doctor who first found the condition) for a couple of years as my local Trust couldn't decide how to treat me following a brain haemorrhage. He prescribed Clopidogrel for me and have been on it ever since without any problems.

Like Judes says there is a community on healthunlocked called Hughes Syndrome with many members.

Any questions feel free to ask.

Mollie

[Carkaisabellacolin in reply to Mollie01]

Thank you very much. Its all very new