Steroid inhaler which doesn't raise a... - Lung Conditions C...

Lung Conditions Community Forum

56,325 membersโ€ข66,956 posts

Steroid inhaler which doesn't raise anxiety!!

Ami40 profile image
Ami40
โ€ข28 Replies

Hi All,

I've been on the search for a decent steroid inhaler with minimal side effects and mainly not to mess with anxiety Etc!

Latest one I've tried is Symbicort! Raised my anxiety along with other horrible symptoms! So I'm guessing its formoteral at fault, as had same issue with Fostair!

Any body who has anxiety successfully managed to get on with a steroid inhaler!

As I've almost given up hope.... ๐Ÿ˜ญ๐Ÿ˜ญ

Tried QVAR, FOSTAIR, SPIRIVA (anticholinergics dry me out and raise heart rate ridiculously! So no go!) and now SYMBICORT...

ventolin is the only thing I can take but need a decent preventer!

Please help

Written by
Ami40 profile image
Ami40
To view profiles and participate in discussions please or .
Read more about...
28 Replies
โ€ข
Solily profile image
Solily

I sure wish I could help you as I am going through inhaler issues. Advair gave me a horrible rash and hives and Spiriva dried my eyes out so bad it's been three weeks since I stopped the Spiriva and have gone two times to the eye doc... now on steroid and antibiotic drops which do not seem to help. So I know what you are going through !!! It's horrible when you have side effects from the inhalers that are suppose to help you !! Hope you get some answers. Take care!!

Meme50 profile image
Meme50โ€ข in reply toSolily

I had to stop Spiriva too due to excessive dryness of mouth/nose and eyes.

Currently on symbicort which I had been on for ages and Ventolin but sometimes feel I need more.

Solily profile image
Solilyโ€ข in reply toMeme50

Did it take awhile for the extreme dryness to go away after stopping Spiriva? It has really dried out my eyes and sinuses. Now Zi have an eye infection due to the extreme eye dryness!!

Meme50 profile image
Meme50โ€ข in reply toSolily

Yes it hasnโ€™t gone away. Try using some liquid tears each day after your eye infection has been treated.

Solily profile image
Solilyโ€ข in reply toMeme50

Thank you!! I will try that . Do you think the Spiriva caused you to have permanent dry eyes?

Meme50 profile image
Meme50โ€ข in reply toSolily

I really donโ€™t know but Spiriva seemed to be the cause of dryness for me re: mouth, throat, nose and ears.You need to discuss everything with your doctor .Our eyes naturally dry out a bit as we age too.

Solily profile image
Solilyโ€ข in reply toMeme50

Thanks again!! I know that eyes get drier as we get older!! But... 2 weeks on Spiriva and my eyes, sinuses , mouth and even my hair dried out!!! I hope this does reverse soon. Have a good day... I know it is early morning where you are ... and here it's 11:20 Pm so I will be going to bed soon. You have a wonderful day!!

Acryls profile image
Acrylsโ€ข in reply toSolily

I was on Spiriva and Fostair for some time and when I thought I needed something else I was sent to a COPD consultant who suggested I try Trimbow,. I have been on this for a year or two now and get on with it very well. If you look up the constituents and have a word with your advisor about trying it, you might find that it suits you very well. I see that no-one else has suggested this, but it might be just what you need. I think it isn a good idea to try different ones - I wonder we get too used to just the same one all the time.

Meme50 profile image
Meme50โ€ข in reply toSolily

Good luck Solily wishing you well. ๐Ÿ˜Š

knitter profile image
knitter

I have tried many preventers too ....the combined ones like Fostair and Symbicort donโ€™t suit me ....I now use Qvar which is ok . Others do well on them , we are all different.

I still get one weird dream a night , but they are better than the many nightmares I got with a high dose of Clenil.

Anxiety is a problem , but it is bearable now I sleep better.

I use breathing techniques, relaxation, meditation to help deal with anxiety.

Try the 5 finger breath exercise with Jud Brewer or gentle pursed lip breathing .....ideas on you tube .

Gentle, gentle relaxed breathing ....relaxed diaphragm, relaxed shoulders ....nose breaths to warm and filter the air ...at other times .

Best wishes.

Spacecat1 profile image
Spacecat1

Might be worth speaking to your respertory nurse who will know what is available for you. We all have experiences with different inhalers .like myself I have Fostair and have no problems at all. Were as someone on this forum last night had problems. So speaking to your nurse would be be more helpful .Take care

Perhaps this page may help you; asthma.org.uk/advice/manage...

coughleigh profile image
coughleigh

I was put on Spiriva 18months ago .Only take 2puffs daily and it works for me really well.I was tried on so many before this one and had all the bad side effects but have had no side effects with Spiriva.All the best of luck if you go on it .Best wishes

Bronchi1 profile image
Bronchi1

Hi, I'm on Clenil modulite without difficulty . Good luck , hope you find something suitable.

Symes profile image
Symes

Hi Ami, Iโ€™m on a preventer called AirFluSal Forspiro. That works fine for me, might be worth asking your Doctor or respiratory specialist about.

โ€ข in reply toSymes

๐Ÿ˜

โ€ข in reply toSymes

๐Ÿ˜

โ€ข in reply toSymes

๐Ÿ˜

nottowell profile image
nottowell

I take Relvar which you only take once a day and just one inhaler that works better than the others but it is just keep trying .hope you find something soon. I also have Spiriva here but that doesn't work so well on it's own

โ€ข in reply tonottowell

๐Ÿ˜

tricia51 profile image
tricia51

Hi Ami40, I've been on spiriva for many years. Mine is a capsule that you pierce, then you just suck it out of the deliverer. My main 'helper' is seretide. I was taken off that about 2 years ago only to be dogged by water infections and extremely dry thin skin on my arms which meant the slightest knock would turn to a huge bruise or the skin would break and bleed. I asked my doctor if I could go back to the seretide. So I am now back on the medication I was originally given at diagnosis. I understand that there is a new one now called trimbow. It's a triple action inhaler. I'd ask your doctor if you can try that. I hope this helps. Good luck.

โ€ข in reply totricia51

๐Ÿ˜

2bluegrunty profile image
2bluegrunty

I am on ventolin plus trimbow trimbow has 3 in one treatment been on it for 2 years I guess if your copd is worse as each years go you to see if a new inhaler is available ..but at the moment itโ€™s difficult to get into doctors unless itโ€™s emergency

Hello. Yes it seems I only get help when I go as an emergency patient. The last time the Ambulance treated me outside our flats then they insisted I went to the hospital as well and came home in the early hours of the morning. I get seen by the Practice Nurse annually.

Dubba61 profile image
Dubba61

That's a shame. I have Spiriva too and it does make my Mouth dry. Also, have Combisol, which I find o.k. But I don't think is strong enough for me. Trial and error, isn't it? Till you get the right one for you. I have been on various ones 16years.

janice01 profile image
janice01

Hi Ami, lve used spiriva for 15yrs. Yes some drying of the mouth but no other negative symptoms that I can find.Gp has tried to change me over to cheaper versions of many meds.

Asthma nurse put me back on Ventalin and Serotype.

The cheaper versions have different molecular sizes and trigger breathing gproblems for me personally.

Even brand ventalin works better than other Sulbutamals.

With Spiriva I take it at night and very rarely miss a dose.

If I'm coughing early hours l take it earlier in the evening.

Re causing anxiety....

I take amitriptylin as a migraine preventer and 50mg is enough to calm and sedate for sleep.

Its a low dose of an old antidepressant. Its sedative effect helps a lot with pain or side effects from other drugs.

I have been on Prozac 2 daily for over 25yrs and these make sleeping difficult.

I have asthma COPD bronchiectasis too.

I had encephalitis in 1993 and strive to keep meds as stable as possible.

Go and asthma nurse very helpful and I'm a patient at The Royal Brompton. No admissions there for 15yrs .

Do have Hospital at Home if needing intravenous antibiotics or steroids. It a service where hospital come to the house several times over a 10- 14 day period.

Its a rare service and only works on those who can manage their treatment well and saves NHS costs too.

A similar service exists in one or 2 other areas of the country.

My own feeling is that you may be helped by the amytriptalin as it has sedative effects.

Hopefully your doctor would help you with this.

Side effects of that are drymouth and dozy in the morning until you get used to it.

I use salavix pastilles to increase saliva production.

And take care if driving until into your system.

Hooe this may be of some help to you. Dont give up there are other ways to tolerate medication.

Good luck Janice x

janice01 profile image
janice01

Sorry the spelling is so bad! X

I am on trimbow seems to be working well so far

Not what you're looking for?

You may also like...

ANXIETY SUFFERERS - WHICH INHALER? Asthma/COPD

Hi All, I suffer from anxiety issues and formoteral (Fostair, Symbicort) seems to make this worse,...
Ami40 profile image
โ€ข

Steroid inhaler

Hi does any one know of a inhaler for copd that doesnโ€™t contain steroid I am so depressed on...
Petrie21 profile image
โ€ข

Steroid Inhaler

Does your skin go thin with seretide steroid inhaler?ย  The skin on my legs is so thin and dry
irenec profile image
โ€ข

Cpap and inhaler interaction

Cpap and Fostair inhaler interaction For the last year or so I have had problems with my CPAP...
โ€ข

Im not sure if fostair inhaler is working as well for me as flutiform inhaler did , anyone else had same experience with this ?

Im not sure if fostair inhaler is working as well for me as flutiform inhaler did. I don't feel...
Polly44 profile image
โ€ข

Moderation team

See all
AsthmaandLung profile image
AsthmaandLungAdministrator
moderator_AandLUK profile image
moderator_AandLUKAdministrator
Claire_ALUK profile image
Claire_ALUKAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.