Bronchiectasis

[Fern27]

Hello all I have been reading all your posts with great interest for a while now and have found it inspirational. I was diagnosed with Bronchiectasis in Jan of this year and just haven’t felt the same person it also caused me so much

Anxiety as it was just before Covid and Drs just kept giving me antibiotics which made me feel worse. I am much better now but it’s all the other symptoms that I’m finding hard to live with bad

Headaches getting hot and sweaty on face and body and the aching of my legs and back which

Is stopping me from exercising enough the fatigue is just awful I’m trying to clear my chest

everyday but it’s just drip in the throat all day

and constant huffing up little sputum. Are all these symptoms caused by this condition?

Drs can’t seem to tell you anything I just get by

on pain killers which isn’t ideal I have been referred to a Neurologist for the headaches but

That wait will be a very long time

No temperature or cough and don’t want to take

Antibiotics unless sputum is green (mostly yellow)

Be grateful for any comments

Thank you 🙏

[Hidden]

I think your symptoms are mostly not related to Bronchiectasis, but several could well be connected with Anxiety which your doctor can treat separately.

Antiobiotics for Anxiety? that doesn't sound right perhaps you had a lung infection when the anti biotics were prescribed?

If you have been reading a lot of posts, you will know you need to drink plenty of water and perhaps ask your doctor for a prescription of carbocisteine.

Be sure you stay hydrated, could be why you are getting the headaches,

Other symptoms you should discuss with your doctor.

more information on bronchiectasis here:

blf.org.uk/search/site/Bron...

Hope you are feeling much better soon.

[Fern27 in reply to Hidden]

Thank you so much for your thoughts.Yes I understand the breathlessness and keeping

chest clear I also have a respiratory nurse that

encourages me with the exercises.

I will ask for the Carbocisteine I’ve got inhalers

and nasal sprays

It’s just all the other symptoms that are driving

me mad lol

I thought id got over the Anxiety but clearly not

quite!

Thanks again

[Hidden in reply to Fern27]

Yes discuss with your doctor 'all the other symptoms'

[Cheriebobo in reply to Hidden]

Hi bkin cheriebobo here. As usual wrote a long post... But lost it. Could you please give me any info on side effects of bronch. Thankfully chest and coughing blood cleared after 3 wks Cipro. But left with dj h painful burning lung pain. Across whe of back. Also loss of sensation in fingertips hence the mispelling on tx. Headache and unbelievable fatigue. Thought i was coming through it. 2nd ct scan results show shadow i. Right lung same size but another scan in 6 mth. Is this all part off sajd side effects. Cant find a comfortable sitting position because of burning pain.. And blooming frustrated at loss of connection in fingertips. Took 2 hrd to place my cljck a d collect food order. Does anyone else have any of these side effects. The fatigue is unbelievable. I usex to feel lkme this yrs ago with ME.. Luckily I have face to face appt with my Dr on wed. But still no appt with bronch specialist or phydio. And has anyone heard how littepom is getting on. Ik ow frkm experience how frightening coughing blood is. Merry Xmas bah humBug to all. Xx margarita

[Alberta56]

With bronchiectasis it takes a long time to get over an infection, at least that's what I've found. I was diagnosed a year ago, so I'm still fairly new to this game. I was ill most of the summer, and it seemed to go on for ever, but I feel pretty human at last, though I still get tired very easily. I hope you will soon start to feel better- it's rotten to constantly feel low. Alberta

[Fern27 in reply to Alberta56]

Thank you for your message yes I was only diagnosed last January so stillTrying to get used to dealing with this condition but I will say it knocked me

for six and I still feel horrible even though I don’t have an infection so am dreading the next one lol Got to keep positive though there are so many

people on here that are sooo poorly I must think myself lucky it could be worse

Keep safe everyone!

[Alberta56 in reply to Fern27]

Hi Fern, I totally agree you. Knowing another infection is likely to crop up is horrible. Have you been issued with a rescue pack of antibiotics? if not ask for one, so that you can start to deal with the infection before it really gets going. Also agree that seeing how brave some of the people on this web site are makes me think I really must stop whinging. I was lucky enough to get on a cardiac rehab course before lockdown. The nurses running it and most of the other people on it were so jolly and positive it made me feel better. They made me feel I could do a lot more than I felt I could. I hope these classes can restart in the not too distant future. Best wishes and good luck in keeping the bugs at bay. Alberta xxx

[Lfcpremier]

Hi Fern... Yes! You are right. I was told Bronchiectasis wouldn't impact my life.. .. by a Consultant.. gees.. He was so wrong!!Firstly.. You need to find a good consultant (I changed that one almost straight away!)

As its a chronic condition it is very manageable but you have to find the most suitable course. I've had it 9 years & because I kept getting infections was put on azithromycin 3x weekly. Helped a lot.

Daily routine..(twice)Take 2 carbocisteine. Ventolin inhaler to open airways. Nebuliser saline7%then C try to clear lungs.. Postural drainage. Finally Symbicort inhaler.

Hopefully, you won't need all this. Sounds as if your other symptoms are stress related but you should follow up on them. Wishing you well!

Linda x

[Lfcpremier]

Ps. You must get flu jab & pneumonia one. X

[Fern27 in reply to Lfcpremier]

I had my first Flu jab this year 👍

[skipwork]

Can anyone answer this question please? I have brochiectasis and am vulnerable...Nick Hancock's letter, etc. On Wednesday when I am in tier 2, can I get on a bus and go inside a café and restaurant for coffee and food?

[Patk1 in reply to skipwork]

I decided way back,that im taking responsibility for my own protection frm covid,colds,flu. Personally, we understand our own conditions + risks. Stay safe xx