Abnormal CT Scan - Final Update.

[Ern007]

After several CT scans, 2 XRAYS and 1 PET SCAN - I finally have a result.

Sixteen Months of Hell on Earth finally has a result.

I have Emphysema, Heart Disease Rhythm and CHD

CKD Stage Three. Various Bone/Joint conditions, NOT RA. High then low thyroid, this is a pain of an illness, been hospitalised twice.

So Specialists finally conclude NO CANCER for which I am delighted. He mentions SCARRING do to Chest Conditions, also I have in my life been exposed to Cold Dust and Asbestosis. Also GERD which can allow vomit to enter lungs causing problems , tell me about it the times I have choke/coughed with just this,

Looking at this diagnosis I was told I had a scar on my lung in 1998 - So this is new scarring.

So what are my symptoms disregarding and COPD flare up which are not no worse than other years at the moment.

Breathless or Air Hunger is a problem -SPO2 in day not bad, with walk and sometimes at night drops. again can be quite low,

So have I got Idiopathic pulmonary fibrosis? or just pulmonary fibrosis? I don't know. I have scarring on lungs from 1998 and don;t think this is connected/

Again I have clubbing of toes with the floating toe nails, anyone got that will know what I mean. and fatigue

So at least I know - Well no - Heart disease can cause that also.

Not much different to before all this - but hey I do not have cancer they say.

in short I am happy knowing that but now the quest for what I do have??

At least the dread has gone and after 16 months, I am back to square one..

Finally whatever - I do not have cancer, I had all the symptoms of the rare aggressive Pancoast Tumour, well thank God that is back in it's box.

I dreaded that but a moral here, never self diagnose, Google will drive you potty - I KNOW, I did not follow my own advice.

This CT Saga now ends, Sorry for the long boring post.

[Hidden]

So sorry you have had to experience all this Ern007. At least the good news is you do not have cancer. What an ordeal.

I agree never self diagnose.

Hopefull from here on things will become more stable for you and you can look forward to enjoying some ok and good health days ahead.

Best wishes BK

[Ern007 in reply to Hidden]

Thank you, things (can) only get better, Stay safe - Ern

[Tracy12]

First time I’ve posted on this forum

This is great news regarding the dreaded C.

I am at the moment tying myself up in knots. I have self diagnosed myself with lung cancer all because of the wonderful Dr Google. I’m awaiting a result on a CT scan as they found a lesion on my liver and thanks to our friend Google ive convinced myself that I have lung cancer which has spread to my liver.

With the symptoms I’m having it continually comes back with that

Your post has helped me and probably lots more people to see a light at the end of a very dark tunnel

I thank you and I’m very pleased for you

I do hope you have relief from your other conditions

Tracy

[Ern007 in reply to Tracy12]

Glad you got back Tracy.

Not all lesions are cancer like in my case not all shadows are cancer, and I had two, spread over this year, but scars, no cancer.

it's hard but try not to worry, that makes a bad situation worse.

"Noncancerous, or benign, liver lesions are common. They don’t spread to other areas of your body and don’t usually cause any health issues. But some liver lesions form as a result of cancer.

"

I am going to post a link to that paragraph. Good luck Tracy

webmd.com/hepatitis/liver-l...

[Tracy12]

Bless you thank you for that info. I’m trying to look on the bright side. The ultrasound was my first real test I had. It showed multiple gallstones which I’m hoping that is why I’m getting the pain and a liver lesion. Within a couple of days my dr referred me on the 2 week cancer pathway and I had ct 2 days ago. I smoked for 30 years packed it up just over 6 months ago but I’ve had chest pain on right hand side for a couple of years. Was too scared to go get help but because of the severe attacks from the gallstones I had no choice.

When you type in chest back and shoulder pain it comes back with Really awful results. So me being me I’ve got it in my head that it’s lung cancer and now spread to my liver.

Your post was so good to read. Made me think that maybe it can be something other than that x

[Ern007 in reply to Tracy12]

Yes Dr Google has fooled many Tracy, I hope you manage to stay as positive as possible, google does not help that.

[Tracy12 in reply to Ern007]

So right. I wish you all the best Ern. Maybe your fatigue may ease slightly now you don’t have that worry now x

[Ern007 in reply to Tracy12]

Thank you and please post how you get on.

[HungryHufflepuff]

It wasn’t a boring post. Sometimes google is great, and the internet can be a wealth of information. But it can also be alarmist, giving you only statistics and tales of woe, and contradictory, for most things you google you’ll get completely contradicting search results. Self diagnosis is a tricky thing, as most symptoms will fit a whole range of ailments. It’s good to know you don’t have cancer. Hopefully you will get a diagnosis of what it actually is. Sending you best wishes.

[Ern007 in reply to HungryHufflepuff]

Hi, I think Google is problematic when the symptoms of a nasty disease copies a condition we already have - That got me and others, Thank's for reply.

[watergazer]

Good news that you don't have cancer and I think many a person has self diagnosed from Dr Google- it's just too easy x Take care

[Aingeful]

My chest consultant told me not to Google after I'd scared myself to death several times! I have IPF (Idiopathic Pulmonary Fibrosis ) stage 4 kidney disease and Anca Vasculitis. Re your scarring of the lungs many things can cause this but IPF causes significant crackling in the lungs. From what my GP says it is unmistakable. He once asked me if I wanted to listen to it. I remember being relieved that I hadn't got cancer as well!!

[Ern007 in reply to Aingeful]

Interesting because my first scar was in 1998 and I had lots of crackle but COPD flare can also cause that, I was always at high risk from scar, mainly I smoked from 12 until 23 years ago, I also worked with Asbestos, Coal and silican as a young man. Then as a grower was in contact from fungus from acres of tomato's - However like Google I am guessing at causes, Thatnk you for your post

[Aingeful in reply to Ern007]

I smoked from being 19 to 42. I was married to a builder who worked with all the things you did,he was also a master plasterer. I breathed all that stuff in myself when washing his overalls and working in their builders yard etc. He eventually developed asbestosis and lost a lung. I also kept birds and spent a lot of time with a friend who had a parrot. None of these were found to be the cause,hence the title Idiopathic Pulmonary Fibrosis.Idiopathic means cause unknown.

I have Anca Vasculitis which can attack your lungs and other organs. This was only diagnosed this year and could have been the cause.

[Ern007 in reply to Aingeful]

We kept birds also, budgies and cockatiels - 50 + - A lot of white powder from their

feathers made it hard to breath, one reason after years we had to get rid of them..

I don't know yet the cause of scarring as not received letter yet. His secretary read the oncoming letter and the jist was, no caner so discharge but scarring possible due to asbestos, smoking and possible acid from GERD which having low mobility in upper abdomen , acid can enter my wind pipe which it does.

However I have to be sceptical because of the time of my first scar - Also this scarring moved from L Apex to R Apex. - Day after my PET scan, hospital phoned me and told me that but, the secondary scarring is just never been mention since that day, My specialist in 1998 said from my COPD, I never will find out the cause,.

[Ergendl]

Hopefully the diagnoses will lead to some more successful treatments for you to help you be the best you can be.

[MoyB]

It's good to know you don't have cancer even though you still have other things to cope with. I hope they are now able to treat the issues and give you a better quality of life. xx Moy

[Ern007 in reply to MoyB]

Thank you for your kind post.

[B0xermad]

Hi Ern007 best wishes with your health and dr google has been my undoing on several occasions, I never learn lol .so pleased you are cancer free what a scare for you .take care

[Ern007 in reply to B0xermad]

Thank you

B0xermad, Google have lots of wanted info on many thing, when it come to health, we are relying on opinions much of the time, because they don;t know or can't see you. Mind you with COVID, neither can doctors

[B0xermad in reply to Ern007]

Too true Ern007

[Lfcpremier]

So pleased you are cancer free though so many other conditions to deal with!

Wishing you all the best!

Linda. 🤗

[Ern007 in reply to Lfcpremier]

Thank you, I am used to coping but this has been on another level.

[katieoxo60]

Ern007 , this is not a boring post it displays your concerns about time it takes to illiminate a cancer doubt. Happy for you that it is not cancer, now as you say its time to concentrate on what is wrong and the treatment needed. Sounds like it might still be some time before you get your health issues under control many of these things can only be managed not cured and with the corona virus still around that often just means telephone consultations. But you will eventually get things under control I am sure and thank you for the tip about not turning to Google. Hope you feel reasonably well right now to spite your ordeal. Have a lovely weekend.

[Ern007 in reply to katieoxo60]

Thank you for your kind post

[Alberta56]

Fingers crossed that both you and Tracy will soon get answers to your problems and be on the way to getting them sorted.🤞🤞

[Maximonkey]

Hi Ern, take care of yourself, so glad you finally have a diagnosis, that alone makes you feel better. Maximonkey

[Ern007 in reply to Maximonkey]

Thank's Maximonkey - I now know what I don't have, unsure just what, but hey, better than the Big C,

[Tracy12 in reply to Ern007]

Just thought I’d update you Ern. My lesion on the liver was .... wait for it ........ fat. 😆

I also have gallstones and a kidney stone. So dr Google was wrong again.

Hope you are well?