Hi all, I need some real inspiration and advice from you, I have just heard I have a blood clot on my right lung and the doctor just jumped in without any professionalism, was just running off to another ward. I get heparin and oxygen, what's happening to me please?☹
Thank you for help, I know nothing and I am weak alone here and worried, please bolster me, thank you🤗🙏🏽🌟
Hi Bev,
Sorry to hear that. But pls know your rights! If you in hospital now demand to see the matron and express your concerns - regarding the doctor and lack of understanding of new plan. If that doesn’t work ask to see the Site manager! That always gets them scared and they start to deal with things properly.
I hope your ok xx
Thanks mix mix, I will do that. That helps, one needs to know a little more than just the results of a CT-PA, more in depth.
Thank you and hug!🤗
Have you had PEs before? If not then the statistics are on your side. 98% of people who get a blood clot in their lungs make a full recovery. Permanent damage is rare. How was it diagnosed? What are your symptoms? Have you a lot of chest pain? Does it worsen when you inhale? Are you coughing blood? Sorry... I can’t help getting nosey and interrogative when some gets this problem. You have had a CTPA scan, presumably.
Push for more support.
So sorry that you have had another set back.
Love and hugs, dear Bev
Kate xxxx
Lovely Kate!🤗
I have never had a PE, blood clot?
They just did the CTPA, tomorrow a jelly scan?
I have no chest pain. No inhaling problems, no pain, no coughing up blood, I just have some problems using my diaphragm to breath alone, I am on oxygen, 4, ?? Blood pressure is usually around 115/70, gas/oxygen finger pulse now 96%, temp 36,9. Just very tired and hot, and sleepy. I will push for more support!
Your reply has taken some Angst away and I am extremely grateful for your message, it raises me up a lot, before I wrote here I was thinking I am not going to get over this. You can see how much advice helps and know-how, I did not want to google this. I am indebted to you, Kate, thank you!
❤❤❤
I have had Pulmonary Embolism ( Blood clots in my right lung. I think I currently have more. Hopefully you will start to feel better once the blood thinners do your job. I did not receive any advice or support from Doctors I was scanned given thinners and sent home. I eventually saw a Respiratory Consultant who has given me some advice. .
This is an area that is — literally — close to my heart. When did you get them, was there a cause and what are your symptoms now?
I too was summarily dismissed from hospital. I would like to hear your story if you feel comfortable telling me.
All the best
Kate x
Good morning Kate,
I had a problem breathing because there was a blockage at my diaphragm, a football-like feeling in my stomach, hard and my diaphragm wouldn't move properly and I couldn't walk at all, no breath! The paramedics came, I had an up and down blood pressure, 83% blood gas. I do have a small tumour in my only lung, right, diagnosed on 16th July and that might have been a reason for the clot. I had had a lung biopsy too, so also a probable cause for the clot, biopsies are not without risks. I have quite normal sats now, taking Heparin and oxygen, but not ready to be taken off yet. I hope they don't throw me out before I'm fully independent of oxygen. I had been able to clean my house or cook in the weeks up to this. I have just the one clot but quite big.
I hope I have given you enough info and it helps any research you are doing.
You were a great help to me yesterday, when they hopped in and scared me about my condition. I feel better now after talking to the head nurse last night👍🏽
I hope you have a lively day, Kate and please feel free to ask me anything🤗
Lovely greetings, Bev💐🌹🎈
Corrections: Not been able to clean my house..just laying in bed with laboured breathing..
So so sorry Bev, ask to speak with a member of the hospital respiratory team for added support.
We are all here for you, hope the herparin fixes the clot in no time and you will be feeling much better soon.
Luv n Hugs
Hi you!!🤗😉
So nice to get your message! I'm home now and take Apaxiban twice a day. I've upped blood gas 95%, I'm exercising before my op.
I hope you have a great Sunday🤗🎈🌹😁💐
Hi spicy fruit Bev.standard procedure for P.E's is blood thinners such as Heparin and as Kate says more than 90% of them start to disolve within the next 24 hrs.they can sound quite scary but in the correct hands they are very treatable.shame they didn't give you a full run down on them and left you without the reassurance that all will be dealt with.
Rooting for you as usual.
Love Ski's and Scruff's xx 
Hi Skis,
Thank you!❤
I know Heparin from my earlier bone breaks etc. We used to administer the shots ourselves. Yes, I wish I would have more info or a bit of positivity but not today, perhaps tomorrow after the 'jelly scan'?🤔
I love that you're rooting for me, you are all I have at the moment, my dodgy lung buddies🤗👍🏽💪💪🤔😁
Hi lovely Bev, I just want to say what great replies you’ve had and hope you feel well and truly boosted.
Thinking of you and wishing you well.
Love and hugs. Xxx💞🥰
Hi C🤗
Thank you for your reply, and yes! They were great comforting messages with real advice, I was pretty scared, thought that was going to be the straw that broke the camel's back and not my forthcoming battles💪😉
Have a good day, hope it's not too sticky where you are. Love and hugs, Bev xxx 🤗🎈🌹💐😘
😎🌹🥰👍😘🌈 take care dear Bev. Another hot day ahead. 🔥🔥🔥xxx
Hi Bev, big hugs to you what a horrendous time your going through, speak to one of the nursing staff for more information, if that doesn’t work ask to speak to a senior member of staff. It’s very hard when your not feeling 100% and your on your own.
Fragmin and oxygen are standard treatment for clots of any sort, especially if you’ve not had a clot before.
I have a weird blood clotting disorder and have had at least half a dozen clots in the lungs amongst others places. I’m still here as will you be! Try and relax, I know that’s difficult but do try.
Love and big hugs
J and the furries
X
Hey judes💐. and the furries😁🤗🥰
Tardy reply, sorry. I so much appreciate your message. Yes, oxygen and now Apaxiban. Are you not anxious about your clotting disorder, that must be horrendous for you! My first one and I almost jumped out of the window! There are some things I cope with and some make me react like a lemming!! Do I need to watch what I eat? No leafy greens, no green tea? I hate Googling but sometimes that's all you have 😁
BIG hugs and love to you on this weird looking Sunday🤔😉😁🥰💐🌹❤
Hi Hon I’m on Warfarin so slightly different with Apaxiban to put it simply blood tests to test the thickness of your blood is not required same with Fragmin.
As for green leafy vegetables, you can eat them but as with everything in moderation and the same amount each week. I always have broccoli with my Sunday lunch and cabbage same amount each week.
I’ve lived with this clotting disorder for over 20 years I had my first stroke when my son was 6 months old, tough times but I got through it, I’ve learnt to live with it.
Make sure you rest now your home and take things easy.
Love and hugs
J
Hi Bev 💙 I don’t know much about this one, but from what the others are explaining, it sounds do-able, and shouldn’t take too long to sort. So quite good news really 💕 😊
Hope you can find some cool in the hospital, a fan or something. It’s mighty hot everywhere this week. 🏖🏝😎 So miserable for you with no visitors either 🙁
Hope you’ve at least had some news about when your Christie’s treatment can start??
Lots of love 😍 We’re all with you, Penny 🌸💕
Hey Penny,
How are you? Thank you so much for your message❤Home now and doing really well. I expect to go to Wythenshawe next week to hear about Pet scan results first, I am not impressed already, oops 4% battery😁. Catch you later Penny❤🌹💐🥰
🤗🤗sending hugs to you Bev. You have had some great positive replies and it sounds like this problem will dissolve away for you. Take care Anita x
I know nothing about this but keep asking questions till you understand. This is your body and you have a right to know as much as you want to know. Not everyone wants facts, numbers and probabilities but in my (limited) experience if you show you want to know and understand, they will take the time to explain.
It’s a good idea to speak to the respiratory tram.askte staff to refer you.
It’s really hard in hospital ,the Drs are supposed to cover so many wards,.
You would be better off asking the staff nurses when they give you medication.
You may have to ask a few times,but don’t let that put you off.
Make sure you keep your fluids up and eat a bit.
I’m tinkig of you.
🌹💐🥰Hi Oshgosh,
Thank you so much for your message. I am home now, 95% blood gas, eating normally, exercising and cleaning a bit. I give you BIG hus and Love, Bev xxx
I had a blood clot on the lung but I was coughing up blood with mine. Mine was diagnosed with a d dimer blood test. Then a ct scan. Was then given blood thinner tablet Eliquis (apixaban) twice a day. Seems this tablet is easier than heparin as there are no monitoring to make sure you have the right dose. Told I will be on it for ever now but since taking had no other problems at all.
Hope you are soon on the mend and feeling much better.
Hi Grandmatojack,
Thank you for your wishes, it's so nice to get them. I am now on Eliquis, 2 a day. I was injecting Heparin but the doctor thought the pills were better, seems to be. Do you still eat normally? I googled and it seems you can't eat leafy greens and green tea🤔Googling not the best thing😁
Have a lovely Sunday💐🌳🎈🙂
Glad the pills seem better for you. I wasn’t told not to eat anything and have just carried on with the normal diet. Admittedly I don’t drink green tea but any green veg I eat as normal and have had no ill effects. Hope you are feeling better and home soon.
Hoping the treatment gets you back to your normal and back home very soon.
Sorry to read this Bev. It’s just one thing after another for you at the moment. I’ve no further advice to add to those above more knowledgeable in these matters but I just wanted to say I’m thinking of you and wishing you all the best for a speedy recovery and return to home soon
X💐
Thank you Corin, I truly appreciate that! Love and flowers🤗❤💐😘💪
💐💐🎈🙂🌹❤🤗
Morning Bev, hope your feeling more feisty this sunny morning sorry I'm late but your post has only just come through, I'm not very techno, in fact like you I'm not much of anything most days lol. When I had a very awkward consultant and nurse my daughter got in touch with PAL at our hospital, they were very quick and helpful and we all had a chat within 24 hours. It helped. Hope you can feel better soon ..hugs..Jane
Morning chubby🤗🎈
Ah, morning Jane😁👍🏾
I am home now and taking blood thinners, yuck!! But I'm good, blood gas (oxygen) is back up to 95%, cleaning and bike riding😉😁I'm preparing for future battles.
I hope you're having a lovely Sunday although only 7:55😁😉Hugs and love, Bev🤗❤🌹🎈
Great to hear from you bev, stomach pains are a bitch so this week I am going to be very acertif on the phone, she says lol. Lung man says I'm good for surgery so we'll see if I can at least move forward with the surgical team . Do not fall off that bike.🤪. Enjoy .jane
Hi Bev, Yet another worry for you, I believe that most of the the time a Pulmonary Embolism does not originate in the lungs but has traveled from another part of the body getting caught up in what are extra fine capillaries in the lungs. The where and how that origin could well be from the amount of time spent in a hospital bed causing a thrombosis. Have you been having an anticoagulant injection in the stomach during your stay.
Good morning 2greys 🙂
Yes, I have an injection in the evening, which I am administering myself, practicing for when I'm home and on oxygen 0,3? And hoping they'll keep me a bit until I can breathe on my own. They said people with cancer often get blood clots 🤔
Hi 2greys,
I have pills now Apaxiban 😔Who needs that😔I know it'll help but I don't really want to be on them for life.
I suppose the blood clot will interfere with my lung op🤔Anyway, I hope you're both well and enjoying the cooler weather. Happy Sunday🤗💐🌳🌱🌾
Sending you hugs (((💖))) and love Bev 💖💖💖💐💐💐xxx
Hi Shirleyj🤗
Thank you for your lovely hugs, I love hugs and love🤗🤗❤❤🌹🥰I hope you'll enjoy your Sunday👍🏾🌟🎈🌹
Hi Bev. I have no experience of clots at all so can't offer any advice, but I can see many of your friends here have already done that. We are all rooting for you. Get well soon.
John
Thank you very much johnderby!🤗
It's also great to hear good wishes from people. I appreciate that so much. I hope you're feeling good this morning 💐🤗👍🏾
I found it hard to get a full picture off the
Consultant when I was in hospital. I voiced my concerns to a Staff Nurse who spoke to the Consultant on my behalf and got him to spend some time with me explaining test results and answering my questions.
It's hard standing your own corner especially when feeling unwell and without the support of family visitors.
Thinking of you and wishing you well. xx
Thank you CDPO,
I finally asked a doctor and he explained. It is difficult when you have no one in your corner. The hospital, too, looks pretty skeletal without visitors, just staff and now slowly building up various appointments.
I hope you're feeling good this morning. Hugs🤗👍🏾💐
I'm glad that you got an opportunity to speak to a doctor and get your questions answered. There were times when I found it hard not being able to see family during my spell in hospital last month but some of the staff were lovely and one or two had a great sense of humour which often brightened the day.
I wasn't feeling good yesterday but today has been a bit better. That said I don't have anywhere near the health problems to contend with that you have.
Quickly reading back, I see that you are now back at home and feeling much better which is good news. I wish you well when you next go to Wythenshawe.
Love and hugs, Carole xx
Hi
Before I was diagnosed with Bronchiectasis I was in A&E several times, they thought I had a blood clot on my lungs and I was sent me home with a pack of 5 injections which I was supposed to do every day, by day 3 I was back in A&E I collapsed in there, which incidentally I did the first time, I then insisted on a CT scan which they really should of done on my first visit they only did an x-ray and came to that conclusion, anyway it turned out it wasn't a clot, so again I was sent home, I think in my case being in hospital was part of the problem, I hate being there and I tend to panic which makes me pass out, so I have some idea what your going through, but it's imperative you insist on talking to someone else and not be fobbed off by one particular doctor, something I should of done the first time I went in, I think sometimes we don't want to be seen to be going over the top, but I have learnt it's your life and health, if one particular doctor can't be bothered quickly move on to another one and insist on a second opinion, I do hope you get it all sorted soon. Take care ☺️
Thank you TG,
How are you feeling now? Have you got any joy from another doctor? Or your GP?
Hi Gingerapple
The experience I spoke about was about 18 months ago, as I mentioned I have since been diagnosed with Bronchiectasis in early April of this year, I think I really need to get a face to face appointment which is still difficult, I seem to get infection every 2/3 weeks so not great, I actually started another course of antibiotics on Thursday, I am just coming to realise it appears life has now changed for me permanently and this is what will be happening going forward unless I can get better help soon. I plan on phoning the surgery this week and demanding a face to face appointment, and get a proper examination and maybe get a chest x-ray at the hospital. But as I think I said before their are far worse cases than me here, and I really wonder how people cope, I feel for them as it's not a great quality of life.
How are you getting on have you made any further progress with your condition ?
Hi TG,
I have found at my surgery that the GP's are not really interested in my health but I hope you have a good one. I think of all the children who have cancer, also terminal, and I wonder what the hell is this??? You know, makes me feel better or rather not as bad off. I have 2 tumours that need to be attended to, but I'm not too enthused, I had the left lung removed in 2005 but I was younger and fitter, so now I'm totally not sure what they will do about this. I shall find out next week. I certainly hope you get some satisfaction with your GP. Keep me updated👍🏾Have a lovely Sunday, TG🙂👍🏾🍀🎈🌟 Bev
A friend had a blood clot on the lung after flying back from America. He was told the blood thinner was to prevent further clots, and the original clot would probably dissolve over a period of time. That was a couple of years ago and he is fine. Sorry to hear you are in the wars again. Lots of hugs and kisses.❣💐❣💐
Thank you Angela,
I'm glad your friend is better! I feel better now, but still on oxygen, soon be home though. I hope you have a nice weekend, a bit cooler might be nice. Thanks for your message, I really do appreciate it and them. Hugs to you🤗💐😘
Hi Bev, how horrid for you, to be alone and coping with so much, wish I could visit, I would sit and hold your hand and do your cleaning in between visits. After reading through the other posts it sounds like the medicine will disperse the clot. Know that we are all here for you, sleep safe surrounded by your good lung buddies . Love and hugs Irene x
Hi Irene,
How are you today? You made me smile with visiting and the inbetween cleaning😁The blood thinners help the blood to flow easier and the body absorbs the clot, apparently.
I love my dodgy and good lung buddies😁🤗👍🏾I'm glad you're here for me, the battles are starting soon.
I send you some wooly sheep hugs🤗🐑🤗🐑😁🐑❤
Having a new washing machine delivered today, so having a mad Sunday morning. They said anytime between 8-12 so have been up early moving everything that can get in the way. Its sod's law but have so many electrical items on the blink and have been leaving things but I really need to get on and replace them. I got a new lawnmower last week, so perhaps the fridge will be next week. It all seems so much of a hassle, but thank goodness for the internet.
Thank you for the wooly sheep hugs, fingers crossed you get home for Wednesday x
I am so very sorry to hear of your struggles and experiences in 5*. Sending lots of love and hugs and wishing you a speedy recovery. I inject Heparin daily but just to keep a midline viable.
Hope you start to feel better soon.
Love and hugs
Cx
Hi cofdrop,
Thank you for your message, it really cheers me. I have been injecting too, today I start with blood thinning pills, so also good. I expect to be going home next week Wednesday, I hope. Have a great weekend!💐🎈
Dear Spicy Other Bev I’m sorry to know you’re still having so much going on and so much more to deal with. Sending you lots of love and sheepy hugs 🐑
Hello Huffle,
Thank you for your sheepy hugs, I love those🤗I will be doing other battles soon enough. Have a great weekend🤗💐
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