Pulmonary Langerhans cell hystiocytosis

[Artybb]

I've just recently been diagnosed with this lung disease. Does anyone know anything about it?

[Katinka46]

I know nothing about your disease, but I just love the painting. The courage of the colours is wonderful. And the emotional journey in it. Well done.

I shall google your disease. It is a familiar name here. I am sure there are others who will share their experiences with you.

All the best

Kate x

[Artybb in reply to Katinka46]

Thank you so.much Kate. My GP said he had never heard of it either and I wonder why he is receiving a doctor's salary! It's a rare disease, related to smoking and Mr Google isn't the best place to look as it s a bit overwhelming. I'm so pleased that you like my painting and this has been my saviour throughout the loneliness of lockdown. We all have things to be grateful for and this helps us to cope through adversity.

My favourite poet, Seamus Heaney said "If we can winter this one out, we can summer anywhere. "

This is my new mantra.

Warmest wishes

B

[sassy59]

I also no nothing of your lung disease but hopefully someone will reply soon who has knowledge of Langerhans.

Love the painting by the way. Xx

[Artybb in reply to sassy59]

Thank you so much for your support and your kind words.

B

[Corin1950]

There have been a few previous posts about this disease so if you put it in the search box they will come up and you can read other people’s experiences. I looked it up online and there’s lots of info. It seems it’s primarily caused by smoking so if you are still smoking you must get some help to stop. There’s so much help available now to do this.

Take care

X

[Mrsclh]

Hi i was diagnosed with plch last year as well as a long list of other things. Iv had a complicated time of things under 8 different consultants for all sorts of issues but my rheumatologist was the only one that explained things to me which was months after leaving hospital my lung dr that found it and diagnosed me was useless.

Look forward to hearing from you

Mrsclh

[2greys]

radiopaedia.org/articles/pu...