Hello everyone, I decided after the advice on here from many kind people to ask my Dr for a referral, I had been denied this for the past year. This was a new Dr, and my goodness what a difference! he actually listened to me. After carefully looking at all my notes he said that he would refer me to a consultant, but did say, "this is really so that you will not feel as though you have been abandoned. and not to expect miracles!" He basically agreed with the respiratory nurse, There was nothing more they could do to make me less breathless.
Not good news at all, but at least I feel a bit better having been told the truth by someone I had confidence in.
Thank you all so much for your advice and support xxx