Hellooooooo

[Febe4567]

Hi im fe

I have IPF which is currently stable. I was also diagnosed with pulmonary arterial hypertension in Oct 2019 so double whammy 😁

[RoadRunner44]

Hello, What is IPF? I'm not sure of these shortened versions and trying to build up a list so that I have more understanding. Thanknyou.

[2greys in reply to RoadRunner44]

Idiopathic Pulmonary Fibrosis. Idiopathic pulmonary fibrosis is interstitial lung disease for which no obvious cause can be identified (idiopathic). Interstitial = relating to spaces between cells, tissues, or organs in the body.

[Hidden]

Welcome to this group of friendly and informative group of folk, some of whom have Idiopathic pulmonary fibrosis (IPF) and will no doubt be along shortly. 🙂

[sassy59]

Welcome to you. Xxx

[Febe4567]

Thanks all

[AngieB72]

Hi

I have both PF and PAH too.

[Oldspark]

Hi Febe

I have advanced interstitial pulmonary fibrosis and hypertension along with type 2 diabetes, I am 74 and not in any pain as such, with care and the right information and oxygen, you can go on for a very long time, alas too late for me as I have been given months rather than years,but I have a positive attitude and keep smiling, also great support from my family and friends.

I agree all these abbreviations are a real pain.

It's the same with everything else.

The emergency services RTA (road traffic accident)

Electrician's S/S/O (Switched socket outlet)

Keep at it. You will get used to it and Google helps too.

Regards

[RoadRunner44 in reply to Oldspark]

How I agree with you. It would be useful if the full explanation was used. I know its easier nowdays to use shortened version of words but it can be irritating at times. Im trying to make a list of these to help me understand and build on my knowledge.

[Whitechinchilla]

Welcome Febe.

My close friend has identical issues to yours. She too was only diagnosed a few months ago and I am constantly amazed when I meet her to see how strong she is and how she copes. I hope that is a little encouragement for you as I don’t have any first hand medical knowledge myself but others here will be able to support you that way. Good wishes and keep posting as this is a “ life changing forum” by way of support.😊 x

[Izb1]

Hi and welcome to the site Febe4567, there are quite a few with IPF and am sure they will come along soon x

[Dedalus]

Hello and welcome