Nebulizer

[Itsmeagain1]

Just wondered anyone else told this when the respiratory woman phoned yesterday asking I asked for a nebulizer I said I went to a n e at the hospital in April and sucked on the nebulizer for 10 mins and I felt I could then breathe she told me ifor I could suck on the nebulizer I didn't need it as I obviously that bad 😠

[sassy59]

That’s not a helpful thing to say and no, Pete has never been spoken to like that. Xxxx

[Itsmeagain1 in reply to sassy59]

Unfortunately she is the woman doing my oxygen assessment thursday told me to expect a walk I've not been well over Xmas and I can't take a deep breath if im honest I didn't like how she spoke to me and im not up for a damm long walk what is wrong with these people where did the symphony and care go to i feel vunable to be honest

[sassy59 in reply to Itsmeagain1]

I was thinking the same, where is the care? Doesn’t seem to be much around these days.

Stick to your guns, be polite and let her know just how you feel......again.

Good luck to you. Xxxx

[Itsmeagain1 in reply to sassy59]

Thankyou sassy

[Spacecat1 in reply to Itsmeagain1]

I have to do 6 minute walk before I am allowed onto rehab course. When I askedcifvi could have early afternoon I was told No they only do the walk 9am-11am. I know my breathing wont be good at that time of the morning she just said I had no choice. I am waiting to hear back from the manager. She was so rude.

[Itsmeagain1 in reply to Spacecat1]

That's disgusting we are all the same in the mornings mine said sometime between 10 and 3pm and made me feel like u should count yourself lucky I'm coming at all that is what I felt her tone talking to me was like 😠

[Spacecat1 in reply to Itsmeagain1]

Some of these nurses need to go to a school for manners. Surely they must understand it's hard for us. I push a little bit everyday.

[Itsmeagain1 in reply to Spacecat1]

Totally agree I wish I could trade places then maybe they would learn some humanity 😢

[pete45 in reply to Spacecat1]

I would think you want to do it when you are at your worst. That way they have a better feel for when you finish and do the walk again as to the improvement, I just finished Rehab and it was the best thing I have done for myself. Good Luck

[jimmyg23]

you should have told her you dont suck on nebuliser you wear a mask and just breathe the mist does all the rest was it the nurse at the nurse at the hospital that said it or the one at doctors surgery usualy the nurse at oxygen assesment centre in the hospital would not say that iknow mine would never say that they are there to help you any medication or anything else the respirotary nurse always get me it as she says they tell the doctor what i need not gp as that is all do all the time

[Itsmeagain1 in reply to jimmyg23]

It was the respiratory people who are coming Thursday said that u have a choice breathe it in with a mask or suck on this wide tongue look thing but I could breathe after 10 mins on it i want that again I am not looking forward to Thursday

[jimmyg23 in reply to Itsmeagain1]

Tell them you want the mask as it is easer to use are they coming to assess you for oxygen or just a lung assessment I thought you had to assessment for oxygen in the hospital ventolin I use in my nebuliser but I had to buy my own nebuliser which they are not to dear they just supply the nebs for it and saline

[Itsmeagain1 in reply to jimmyg23]

Thankyou hope all goes well Thursday I hate goingoing out in bad weather to jump over hoops roll on SUMMER 😊

[jimmyg23 in reply to Itsmeagain1]

yes cant wait for summer

[jckjanetrosalin in reply to Itsmeagain1]

I've just been in hospital and was given nebuliser for 3 days throughout each day and I had a mask with the steam that came out. Ive never heard of sucking a nebuliser !!!

[Itsmeagain1 in reply to jckjanetrosalin]

You can use the mask or mouthpiece I used it at the hospital

[Itsmeagain1 in reply to jckjanetrosalin]

Look on google put in nebulizer mouthpiece your learn something every day

[Collie4]

That is very upsetting, it is sad that these socalled compassionate professional people can have this attitude.

We , with our medical anxieties, feel vulnerable most of the time and sensitive. A kind word and patience go a long way.

Lots of friends on here who understand.

Take care.

[Itsmeagain1 in reply to Collie4]

Thankyou empathy dosent take much but can make someones life bettet

[ProudYorky]

Such a shame to read this your comments send a chill down my spine to think you have been talked to in this way .At a time of life when you are very vunerable and need a cared for . I'm so luck with my treatment and care all the professional care staff at Pinderfields Hospital involved in all my treatment have treat me with the utmost respect and can't do enough for me . You need to complain I know we don't like complaining but it's maybe the best way forward for you

Take care

Kakariki

[Itsmeagain1]

Thankyou I just want to shout I'm scared sometimes if something happens to them maybe they would be more compassionate we are given this rotten diagnosis then given inhalers then I ferl left to get on with it it's wrong I want my life back and im not alone

[PaulineRich]

My daughters and I had spent several years asking about a nebulizer and kept being told that it was not a good idea as if I over use it, it would stop being useful for me. I told them I was not stupid and would only use it if/when I needed it. After a severe bout of chest infections during which I had been lent one by the hospital respiratory at home team, I was surprised on their last visit I was told that I was being given a nebuliser on loan from the hospital as I obviously needed one available at all times and that my GP would be informed to put the liquids on my repeat prescription list.

[Itsmeagain1 in reply to PaulineRich]

I was told the same absolutely assuming I'd over use it I can buyou one but if they refuse to give me the Meds inside I can't use it who are they to tell me how I feel and if i need one I know I'm worse like u I'm not stupid what is wrong with them I've packed up the ciggies but apparently I'll have to wait a while if i need oxygen to use it as I may go back and blow myself up jeez I have a lung condition dosent make me a idiot I don't need to be stressed but they rub me up the wrong way do we all get treated like children or just me

[Jaycee40 in reply to Itsmeagain1]

I use colloidal liver in my nebuliser.

[Jaycee40 in reply to Jaycee40]

Sorry it should read colloidal silver in my nebuliser which incidentally my daughter bought for me.

[Response]

Only someone who doesn't really know much but likes to feel important would speak to someone like, especially as she hasn't asked about your medical details or know anything about you!

My mum is on a nebuliser and can "suck it" (although she normally uses a mask). Most nebulisers come with mouth pieces so does she think that no one who uses it needs it - that isn't logical.

I suggest you speak to another person who may have better people and medical skills

[Itsmeagain1 in reply to Response]

Bless u i dont suposse u want to assess me you have more sense than her 😊

[Response in reply to Itsmeagain1]

Ha Ha!

[jmsutt73]

Here in the states, I often get follow-up surveys from my medicare provider regarding how I perceived my doctor's treatment during my last office visit. Medicare is run by the government, but we do have to pay for it. It is a good deal, since many participants help keep costs down. Just curious, but does anyone in countries with government funded medical treatment does anyone ever do follow-up on patients' treatment? J

[Itsmeagain1 in reply to jmsutt73]

No is the simple answer 😢

[stamford1234 in reply to jmsutt73]

I sometimes get a text asking "how was my experience at the Drs today". I guess from a polling organisation. Probably set up by the Drs office rather than the NHS. It is definitely a new thing

[Itsmeagain1 in reply to stamford1234]

Not for yrs but i remember years ago a temp doc came around mine half of both of the inside ofor my legs by my knees had turned black he came out asked if I smoked I said yes then preceeded to tell me people like me who abused their bodies should get medical help and left leaving me in tears the nurse phone me not long after and asked how I find him I was crying my eyes out she must of known what he was like but she said oh ok i won't send him again

[Itsmeagain1 in reply to Itsmeagain1]

Shouldn't get medical help damm phone

[stamford1234 in reply to Itsmeagain1]

Perhaps they had their suspicions and were checking up on him. What a nasty experience. When you are poorly the last thing you want is a lecture on your life choices.. Obviously never been down the stop smoking path himself. I gave up 4 years ago before diagnosis, and it was murder.

[Itsmeagain1 in reply to stamford1234]

I was told 15 yrs ago if i stopped I wouldn't progress unfortunately after over 3 yrs stopped it progressed then stupid nurse said we'll I know I said that but u have donever the damage u don't tell a smoker who at thst time had made such an effect well u done the damage and progressed on I started again been on and off smoking for yrs I was so angry and let down I'm off of them again how long for i dont know I need posit ive people from medical team not oh well u done the damage not had a lot of luck on good a medical team so far have i

[stamford1234 in reply to Itsmeagain1]

Gosh, please don't even think about starting smoking again. I get my "reward" from not stinking like an ashtray! And the benefit of more cash in my pocket. Your immune system is broken so take extra care not to get infections. It is a progressive disease, all you can do now is try to slow that progression by not smoking having a good diet and exercise. Keep washing your hands and stay away from crowds of people and people with colds. It's disappointing to be told you are getting worse, just try and be positive and enjoy life as best you can. x

[Itsmeagain1 in reply to stamford1234]

I try but if your knocked back after doing so well she obvously didn't know me very well I smoked from a early age so after not smoking and really thinking I'm not going to get worse to be told that we need positives I'm not smoking but feel dreadful didn't feel this bad when I smelt like a chimney 😊 still got sense of humour just

[stamford1234 in reply to Itsmeagain1]

Ha Ha! A sense of humour is a must. I had my annual check a few days ago and I am much the same as last year, but still serious. However, I don't actually feel as good as I did a year ago, I fear I have to factor in the general ageing process. I am afraid depression creeps up on me and I think lack of motivation has got as much to do with that as my COPD. Feeling good today. I hope you are having a good day to

[Itsmeagain1 in reply to stamford1234]

I'm trying to but I'm a loner so spend my day with my 4 cats I let a stray in 9 yrs ago oops 🐱🐱🐱🐱 I love watching send up films and weepies if im watching one I'm down if im watching a comedy I'm trying to buck myself up love watching escape to the chateau or place in the sun I imagine I can get there lol I have bloody good imagination always a must if like me your a dreamer

[Rostom]

I note comments regarding Respiratory courses in this thread.

I was referred for assessment for the course and assumed I would have been told I was too well as that day my breathing was fine.

After various tests and a 6 minute walk (at ever increasing speeds) I was shocked to be told that I needed the course! I start a six week, twice a week course at the end of the month.

Shame I have not had it already, as, as is usual at this time of the year, I have a lurgy and am struggling with my breathing. I just about have it under control. Just about!

Wishing everyone good breathing through this grim (well it is for me!) time of the year.

[lKeith]

Itsmeagain

Hi, Nebulisers are useful but ideally they need the right solution, the saline only mixture is not all that great, have you tried Salbutamol 2.5mg nebuliser solution. Problem for is your doctor doesn't seem that helpful and the above solution needs to be prescribed. This solution is far better, what you Dr [probably doesn't know is that hospital oxygen is often mixed with a standard saline. Do try to get the better solution. I have used it for a number of years and find that it helps to some degree, & at least it makes you "rest" to take it. Nebulisers are expensive tho', I had to buy my own, try Boots or on-line ebay, Amazon. The expense to the NHS is possibly why you aren't getting one from the surgery practice.

IKeith

[stamford1234 in reply to lKeith]

The saline works for me, COPD serious, well it helps shift some mucus if I am a bit congested. I sometimes use NAC in liquid form [small vials, over the counter in Italy). That's good too. I was told to use nebuliser by the nurse (if I had one) when I have an exacerbation. No offer of a loan of one, or a prescription for something to use. Hence I use saline. I got an Omron Nebuliser from Amazon for £55 - not cheap really.

[Itsmeagain1 in reply to stamford1234]

They don't want to help do they wish I could give this to them when I'm have a kick off maybe they will feel whats it's like and act like a concerned human being I am so short of breathe getting angry I'm not smoking so why am I feeling so damm lousy I know what I'm like and ive never felt this bad whats going on

[Itsmeagain1 in reply to lKeith]

I'd like the opportunity to get any help just keep getting no be better if u done have a nebulizer nurse tells me better for who im the one struggling not her 😠