According to Nice Gold standerd those who suffer copd should be proactively treated investigated for issues around bone š density.
Itās amazing how cheap body analysis scales CAN tell me more in five mins than my lung doctor as done in 5 years.
Guess thatās why this not much done as to research cures for lung disease as no one is intrested CLEARLY bone density as lot more to do with lung health than anyone is prepared to investigate.
Top picture is results of 73 year old lung disease sufferās BOTTOM picture is my results Late 40 lung disease suffer.
You can see by results bone š density and lung disease are conected HOW why now thatās question
Clearly am not happy with having poor bone š density THAT of 73 year old.
Truly shocking what they know and fail to do CLEARLY am talking from my own persnol experience BUT am sure lot of other lung disease copd suffers Feel same especially when you ask GPS lung doctors stuff and they look at you like your nurotic.
So your PR sessions must have been lacking somewhat. For better or worse, COPD is self managed, the idea of PR is to educate and prepare you for this self management.
It is not just exercise on it's own, for the day. But to teach you what exercises are required, how they are done and you should have been told the reason for each exercise. This should also have included "bone strengthening" exercises. These exercises are to be continued at home after the PR course finished.
You should have also been taught what foods you should eat and again told what each food stuff was for and why. Dairy foods like milk, butter and cream are essential sources of calcium as is wholemeal bread. Those that are lactose intolerant are told to get "Calci-chew" on repeat prescription (contains vit D3 as well as calcium). Vegans and vegetarians are told that they also need a vit B12 supplement. (We had a nutritionist in for the day to explain it all)
You also get advised on taking a vit D3 supplement especially in the 6 months of low sunlight. All year round for those that are on steroids.
There was also a talk about mental well-being to help manage shortness of breath and any panic attacks. All in all it was a very comprehensive course, with 2 physiotherapists and a COPD nurse.
My course was extended for another 2 weeks because of an infection, no problem.
My God no on diet honestly oh my God. Had inhaler how to breath occi health. I missed 2 weeks though so maybe one significant thing nurse said which I realise was now I stopped smoking eat and avoid cold or jump on it I would be fine
I have osteoporosis due to many years on pred....but I am also underweight, and post menopausal . Fractured my spine too, and rib and toe ( toe ...that was kicking the vacuum cleaner in a fit of temper)
After my first bone density scan, the readings were not so bad, so my gp advised me to walk everyday, which I did ......now I canāt sadly, my confidence has gone. And eat calcium rich foods.
I also went to cardiac rehab classes at the local gym, that helped strengthen my bones. But be careful .
Now I take alendronic acid and calcium and vit D .
Hi Knitter last time I was prescribed alandronic acid I thought .... that as thatās dodgy stuff
Canāt remember what I was prescribed it for MUST been brake or fracture.
Anyway you would think stuff talked about would be under one roof GUESS thatās half trouble and why this no advances AS everything in U.K. is frangmented
Pete has had bone density scans but was told last time that he no longer has osteoporosis so neednāt take his weekly pill. So far so good but I think he needs to speak to the GP again especially in light of his back problems.
Pete canāt really do PR because of health issues but will be going to a meeting re COPD in January. Keeping bones strong is important as pred plays havoc with bone density.
Did Pete have osteoporosis at one time as I was under the understanding it could nit be reversed and the best you could do is keep it from getting worse. If his did reverse can you tell me what he did as that is quite encouraging.
Yes Pete had osteoporosis because of long term steroid use (30mg per day for a long time). He had a dexa scan locally and then saw our GP who said he didnāt need to take his risidronate anymore because his osteoporosis was fine.
Pete had not done anything different and tried to keep moving and eat properly.
Iām not really sure if he should go back to the GP to speak about it. Xxx
Hi Carole. I too didn't know osteoporosis is reversible. That's great news for Pete. I guess thinking about it, if you can lose bone density you can gain bone density. š¤
Iām not sure that it is reversible HH but for now Peteās bones are ok it seems.
Take care xxxx
I think that we women with lung issues are probably more fortunate than men because the possibility of loss of bone density it acknowledged as being a gazard of the menopause. There fore we tend to be investigated. Pre menopausal I had osteopeania so was put on HRT. My GP also thought that my history of bronch, antibiotics and low weight also put me at rusk. I came off that in 2008. I have been taking vit D 1600mg per day since 2016 and my bone density hasn't declined since I was 52.
I do agree that it should be standard treatment of lung conditions to protect bone density. Anecdotal evidence on this site alone proves that taking vit D and calcium certainly make a difference. They are cheap treatments too. Too few doctors use their initiative.
in reply to
Hi Littlepom agree with everything said especially about doctors ANY issues should be nipped in bud early BUT sadly to many doctors sit on fence till can no longer.
Morning JAS and here you are once again telling us how you've been able to do research and based upon your own illnesses,how the "system" continues to fail us. I do think that the failing is a cross the board with the NHS at present but if we believe Boris J,then we need to start praying each night that his Government does do what they put in their Manifesto and help the NHS and services across the board or else it's pumping money into a never ending pit.š
Always glad to read about our members experiences so no doubt you'll keep us informed. Love to your Dad,š
Hi SquirrelHolt doctors know how things work YET play it ignorant till can no longer then issues are worse to address.
I had patch of granuloma on right lung at TOP now itās englufed hole lobe HOW why Know one will tell me CLEARLY given all my test and how things are connected someone knows.
Itās like my heart the all said itās fine but will happen again CLEARLY canāt be fine.
Yet do I know cause NOPE just discharged like fit and well ... be nice if things was under one roof and not fragmented
Am no expert but am sure granuloma and osteopeania are same even feed each other SO do I be nice and wait till everythingās bushed or do I make clowns š¤” do the job
I have my bone density checked every few years Because of the amount of steriod i take. Im also given vit c and advised to exercise as much as i can my gp and consultant have both been very good at keeping me informed on complications ect
Wish I could say sane about mine SADLY have nothing nice to say about any of them BUT if I leave any complaints leave with you GUESS thatās why stick it out.
Probably no secret or rocket science to think low bone density and copd are related. After all people with copd generally use steroids more and are also more sedentary than the general population, two of the most important things to lower bone density, so no real surprise here. Also, doctors and the medical industry do not have all the answers, only the probabilities.
I donāt understand why you are comparing the two results ? They are completely different the top one is quite unhealthy while the bottom one ( yours ) is not bad . You can see the person at the top is short and carries excess fat with little muscle and you are lean . If your that concerned why do you not ask for a Dexa scan to measure your proper bone density?
As other people have said if you take oral steroids it is obviously going to effect your bone density so make sure you take chewable calcium and vitamin D tablet and your once weekly alendronic tablet to try to combat them .
Once I found that I had rhuematoid arthritis I read up everything I could and as much as they say keep away from dairy, which just doesnt make sense to me, I changed my diet completely and my supplements. I was the same once I found I had bronchiectasis, after reading peoples posts on here I went onto vit d, magnesium, vit k2 mk7, along with all the other bits that help. I do think we need to be responsible for our own health at times. I have never had a bone scan or had any talks from people regarding this, but do ask when I think it maybe an issue. The health service does a great job and although things get missed we just have to ask, or investigate and then take it further. Perhaps ask your gp for a bone scan to put your mind at rest x
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Decreasing supplemental oxygenā¦
ļ»æCcopd and high blood pressure
update: tomorrow Iām at the hospital for suspected head & neck cancer
Persistent Cough and upper back pain
Hyperinflation of lungs
