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Quite worried there's something seriously wrong.

JHutton1994 profile image
28 Replies

This weekend I was hospitalised because of a 2 hour long episode of hyperventilation. They did an x ray and bloods both came back clear. Suffered heavy breathing for years been to GP a few times was told all was fine with no investigation or 'just anxiety'. 12 year smoking history. 29 now. Over the past month or so I have been more short of breath than usual and started wheezing. This is all rather frightening to me, especially the hyperventilation. Hospital weren't interested in doing much of anything. Didn't even refer to pulmonology. Asked for a chest CT was denied. Eventually convinced the doctor who thought it was 'Just anxiety' to refer me for spirometry. I don't feel like I can breathe in fully. Got phlegm on my chest. Laboured breathing. I have of course quit smoking now. Just very scared about what this may be because a lot of the causes of this symptoms seem to diminish life span substantially.

Medical history:

GORD

Hiatus hernia

Collapsed lung three years ago. No known cause for that.

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JHutton1994 profile image
JHutton1994
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28 Replies
Yumz199725 profile image
Yumz199725

Is it possible it's your heart and not your lungs?? X

JHutton1994 profile image
JHutton1994 in reply toYumz199725

I have had two 24hr heart monitors done. Most they seem to have picked up is sinus tachycardia. I could deal with it when it was just heavy breathing but this can feel suffocating almost. My hands turned blue during the hyperventilation episode. I'm still strugging to get my head around how dismissive the hospital were. Pulse ox is usually good but apparently that may not be the OK you're looking for because apparently it just measures how well the red blood cells are being utilised but not by what, whether that's oxygen or CO2, phoned GP today apparently they didn't even check arterial blood gas at the hospital.

Yumz199725 profile image
Yumz199725 in reply toJHutton1994

Ah wow sorry the hospital is being so dismissive? Why do they think it's anxiety I have anxiety and it does not do that, panic attacks maybe I've had a few of those but still needs to be looked into as it could a serious problem x hope they find whats causing it!

in reply toJHutton1994

The hospital's job is to patch you up and get rid of you. Some lucky people get referred on but not many. You need to see a good respiratory consultant to get the tests and answers to your problems. Find a good consultant at a big teaching hospital near to you. Take the name to your GP and insist on a referral. Do not take no for an answer.We do have to be very pro active in our interests and vociferous in sourcing the right care.

djbctla profile image
djbctla in reply to

Agree with Littlepom.

BERNARDINE

Bellaowl profile image
Bellaowl in reply to

I hope it goes well today.

Bellaowl profile image
Bellaowl in reply toJHutton1994

If you can afford it and there is somewhere near you, I would get a private plain CT scan of the lungs.

It’s quick, not usually too expensive, and will discover anything that needs attention.

Bella

JHutton1994 profile image
JHutton1994 in reply toBellaowl

Unfortunately I cannot. I am getting an urgent GP appointment today and if they think it may be cancer, I will get an urgent CT.

Bellaowl profile image
Bellaowl in reply toJHutton1994

Ask them to check for “ mosaic” lung condition and nodules which can only be seen on a CT scan. At least get it eliminated.

sassy59 profile image
sassy59

I just want to wish you every success in getting to the bottom of things. The hospital sounds pretty hopeless and Littlepom is right, they just want you out of there pretty quick without having put too much effort in. Get a referral as soon as possible. Good luck to you. Xxx

JHutton1994 profile image
JHutton1994 in reply tosassy59

Yeah I thought they'd at least to a CT of the chest but nope, but it's ok. Thanks everyone for the lovely replies. Seems I have some hectoring to do.

Alberta56 profile image
Alberta56

Sorry you're having so much trouble. Can anxiety produce sputum? Sounds improbable to me. Good luck in finding a more sympathetic person to consult.

Ern007 profile image
Ern007 in reply toAlberta56

Good point.

knitter profile image
knitter

the ALUK helpline is open again on Monday , they can point you in the right direction .

Meanwhile check out ALUK website , and dealing with breathlessness.I find Patrick McKeowen on you tube useful …handy hints for help with hyperventilation .

Check you are breathing through your nose, gentle gentle breaths low and slow , not big breaths . Check tight shoulders , no upper chest panicky breathing , relax relax your diaphragm .

Easy for me to write , but difficult to do sometimes ……gentle , gentle nose breathing , relaxed belly . Belly out on in breath , in on out breath . For years I did the opposite ….tight anxious upper chest breathing .

Also try a few rounds of pursed lip breathing ….breathe in gently gently through your nose , then out through pursed lips gently gently . Just a few times .

I am trying to break the circle of anxiety breathlessness anxiety and over breathing again after a number of chest infections . Meditation helps me and yoga alternative nostril breathing , but I learnt with qualified instructors first, to check everything was OK.

Contact your health professional again , they should check your breathing pattern , listen to your concerns and offer more help.

Nula2 profile image
Nula2 in reply toknitter

Brilliant advice, knitter 😊. I still need prompting about my breathing technique and I've been practicing for a good 4 or 5 years now. Wasn't aware there was a correct way to breathe before I was properly diagnosed and old habits die hard. xxxx

JHutton1994 profile image
JHutton1994 in reply toknitter

Will look into phoning them thanks. Also as I say will start with the breathing exercises.

Alberta56 profile image
Alberta56 in reply toknitter

Thanks for the reminder about the correct way to breathe. xxx

Patk1 profile image
Patk1

What triggered Yr hyperventilation? Sinus tachy can be unpleasant, if Yr aware of heartbeat.ru on medication

JHutton1994 profile image
JHutton1994 in reply toPatk1

They didn't really say what triggered it just that the xray was clear and so were the bloods. Anxiety was mentioned once, which does feel like you're being fobbed off.

Aside from lansoprazole for the hernia, no medication to speak of.

Patk1 profile image
Patk1 in reply toJHutton1994

Anxiety can impact breathing hugely.controlling breathing via pursed lips techniques is gd for steadying breathing & avoiding panic x

Mellywelly profile image
Mellywelly

I'm so sorry you are in this situation, obviously you know your own body and just have to keep pushing. Good luck 👍 😉

Lizzab profile image
Lizzab

Previous good comments to note.

Get your thyroid checked.

JHutton1994 profile image
JHutton1994 in reply toLizzab

Ah, they checked thyroid function a month or so ago said it was fine.

Numptybrain profile image
Numptybrain

so sorry you are being ignored as any breathing problems should not be. You’ve been given the correct advice here so don’t suffer anymore and do see your GP for a referral

Good luck

Wendy x

JHutton1994 profile image
JHutton1994

Yeah, better late than never. Will try breathing excercises. Thanks.

Patk1 profile image
Patk1 in reply toJHutton1994

Take a look on Aluk website - techniques and videos on " controlled breathing". Practise it frequently so u slip into it whn need it

Bevvy profile image
Bevvy

I have noticed you have a hiatus hernia and GORD. It could possibly be that, this is what is causing some of the issues you describe…. I mention that because both those conditions can cause protracted cough. Whilst I don’t know if could cause your breathing issues it could be worth exploring.

With regards your collapsed lung it is actually quite common for this to occur, especially in young males. No idea why but hopefully you won’t have any issues related to this.

JigsawAddict profile image
JigsawAddict

I agree with what's been said. You have to keep asking. My partner has COPD. His symptoms became really bad last year and it was as if nobody was listening. The helpline was really helpful and gave us really good advice. Hope things get better for you.

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