Spiolto is working. For me... - Lung Conditions C...

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Spiolto is working. For me...

Skatergirl1 profile image
22 Replies

Had a great time on the ice today, 3 hour skate and even learning some new jumps, salchow, cherry flip and stag jump (get me lol)... But pleased to say no breathlessness....combination of getting fitter and new inhaler....happy days 😄

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Skatergirl1 profile image
Skatergirl1
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22 Replies
sassy59 profile image
sassy59

That’s great news and sounds like you had fun. Xxx 😘

Skatergirl1 profile image
Skatergirl1 in reply to sassy59

Thank you sassy, I certainly did, shame I have to wait a week to do it again xx

skischool profile image
skischool

Scruff's after 2 puffs on her Spiolto ,she has not tried it on ice yet lol :)

youtube.com/watch?v=X3w5AoW...

Skatergirl1 profile image
Skatergirl1 in reply to skischool

Haha....omg that is amazing....p.s. Keep her off the ice or she will put me to shame xx

Yatzy profile image
Yatzy in reply to skischool

GO, Scruffs!! ;-)

Vee70 profile image
Vee70

Brilliant news, i’m on that too, glad it’s working for you. Does seem pretty good, i have this weird throat (feels cold) so no ice skating for me.

Happy skating x

Skatergirl1 profile image
Skatergirl1 in reply to Vee70

Thank you Vee, I have been on it a month now and can feel the difference for the better and at the moment no side effects xx

Vee70 profile image
Vee70 in reply to Skatergirl1

I’ve been on that & Fostair 100/6 for 2wks. Not that much difference but giving it time 😀

powderpuff profile image
powderpuff

Sounds very impressive! Well done, glad you’re feeling fitter & sounding better ⛸

Skatergirl1 profile image
Skatergirl1 in reply to powderpuff

Thank you xx

jackdup profile image
jackdup

That is certainly good news. Did you ever get your full lung function test or are you still waiting for it?

Skatergirl1 profile image
Skatergirl1 in reply to jackdup

Hi Jackdup, the app has been made for 12th Nov, so still got a long wait, so just getting on with life xx

jackdup profile image
jackdup in reply to Skatergirl1

Hopefully your FEV1% of predicted will improve as much as your breathing.

Skatergirl1 profile image
Skatergirl1 in reply to jackdup

Thank you....that's the irony....its dropped from 43% to 35% in a few months and I look and feel better than I have done In years lol xx

Fennella02 profile image
Fennella02

I think Spiolto is amazingly effective and I’m glad you’re getting the benefit. It proved ‘too’ effective for me and I couldn’t tolerate it at all but I wish I had been able to x

Skatergirl1 profile image
Skatergirl1 in reply to Fennella02

Hi Fennella, thank you....what a shame you couldn't get on with it, I hope you have something suitable now xx

Ergendl profile image
Ergendl

Great news. Glad the new inhaler is working so well for you.

Skatergirl1 profile image
Skatergirl1 in reply to Ergendl

Thank you, yes I am enjoying the benefits x

watergazer profile image
watergazer

Great news All that skating sounds very energetic x

Skatergirl1 profile image
Skatergirl1 in reply to watergazer

Thank you, and I love it...and it makes me feel like a kid again lol x

Spacecat1 profile image
Spacecat1

Spiolto is this a new inhaler is it good for copd. They just put me on foster and om not sure about it. So trying to see what's out there before I see my consultant next week

Skatergirl1 profile image
Skatergirl1 in reply to Spacecat1

Hi, I don't know if it is new... I have only ever had incruse illipter before, which I felt clogged my lungs, it was a powder inhaler. When I mentioned this to my new consultant, he gave me Spoilto restimat, and it has made a world of difference. Good luck with your consultant xx

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