I just wanted to say that I am not a softy as regards to all the procedures which I have had over the nearly 11 years of me having this lung cancer which is in both lungs. It will be 11 years in December 2019. Over the years I have had many Ct scans, MRI scans, and pet scans, I have coped very well. I have had many biopsies taken under local anaesthetic and general anaesthetic when they need to get in to my lungs and take larger biopsies. In 2008 I had half of my left lung removed which is very invasive and then again in 2010 the cancer had returned but this time in both lungs so my surgeon decided to knock me out and take larger biopsies from the right lung. Since then I have had Ct scans every 3 months for coming up 11 years. I thought I was doing well until they did another needle biopsy while I was awake and then it all went terribly wrong, I was relieved that the Radiologists had managed to get the biopsies but then I felt like my chest was being crushed and I was struggling to breathe and then that is when I asked the team of radiologist and nurses , I asked if my lungs had collapsed? They said " No, why do you ask"? the nurse asked me, I said that I felt like I couldn't breathe and that I was disappearing or they were disappearing and I just went out like a light. I woke up hours later paralysed all on my left side and I could not talk and no one could understand me. I knew then what had happened to me. I knew that I had a stroke but later on they informed me that I had a cardiac arrest and I was out for 5 minutes or so. They said it was caused by a air embolism which was brought on from having the needle biopsy. Since then I have heart flutters and there is nothing the doctors can do as I don't have a heart problem as I went for a second opinion privately. Yes I think anxiety can bring these heart flutters on and then when I go for certain procedures I get tensed. I must tell you all that I never used to get anxious about little procedures until one day after having my usual CT scan, one of the radiologist asked me " how are you feeling"? I replied " I am ok thank you" then the Radiologist said " well that's good and he went on to say that they had a few that went wrong that morning. Since then I have learnt that the contrasting dye can seep through our veins into our bodies and make us feel poorly and if this happens well then they have to stop it immediately. I just wish that the Radiologists had never mentioned that it went wrong for other patients. I see my Oncologist tomorrow Wednesday and I will ask him if I can have a CT scan either every 6 months like I used to have or in the future have no Contrasting Dye.
Sorry to babble on but I needed to get this off my chest.
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angels5454
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Morning Hun, WOW, you have certainly had your extreme Treatments. You are a Fighter and Have got through bad Procedures. My Sister in Law has been Diagnosed with Lung Cancer & COPD all at Once, She has had her Extreme First Chemo lasting 6 hours which will repeat in 3 weeks, she was put on Oxygen immediately for the COPD, This all came on so quickly. happy to say at this moment she seems to be managing ok. I haven't seen her as She lives in Spain and receiving fantastic Treatment. I cannot travel just yet as I am waiting for another Valve procedure myself, here in UK, Once I can have my "Fit To Fly" Letter, I shall be seeing all my Family in Spain, The sooner the Better. I wish you all the very Best and carry on Fighting Hun, Stay as strong as you can. Love n Hugs. XXXX
You have done really well and have been through such a lot. You have my admiration and very best wishes. Xxx😘
You should come and 'babble' on here more often if you think it helps you.😉 Your fortitude is a fine example to us all. My very best wishes for tomorrow. 😘(I'm allowed to throw kisses because of my advanced years.)
Good morning, you really have been thrown a very bad curve ball but your determination and fortitude shines through. Hope everything goes as well as can be tomorrow, wishing you all the best and thinking of you. Best wishes. X
Well done it’s good to talk. It is tough living with lung disease. I hope like me you look on the bright side because I like your positive attitude. Good luck
Thank you all for your kind words of support. I am apprehensive as to what the Oncologist will say to me today but I think of it like this I am but a drop in the ocean and there are millions of people who are going through the feelings and thoughts at the same time as everyone of us. It's just that we at the think we are the only ones going through these uncertainties and anxieties. It's just life we are not alone. It's just a process what we all go through. Whether it's good or bad news nothing last for ever.
Anyway I will put on my warrior amour this morning and go and face the world. Love and best wishes to you all.
Just thought that I would keep you in the picture as to how I went on yesterday at the Oncologist, he was happy to say that " it's good news, very good good news" was his words. He said that some of the tumours had disappeared completely and that some of the other solid nodules which have been there for a long time, he said " these nodules have decreased in size as well." So as you can imagine I was excited and felt good.
Although this is good news for now, the drug sometimes makes a significant reduction in size the first few months of taking it but then the next CT scan sometimes doesn't show any reduction but it is and does still hold the cancer back blocks it for some time. I just thought that I would share this with you all.
Excellent news Chris and lets be positive and hope that the reduction continues at the same rate and that you will eventually be cancer free,think it may be time to crack open a bottle or two.
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Idiopatic pulmonary fibrosis 
Worried and waiting
CT scans
Hospital again aggghhh
Has this happened to anyone else?
