Blood clot?

[Hhkk]

I have recently really been querying my dysautonomia diagnosis, personally feel as though I may have been misdiagnosed with just “orthostatic intolerance”. People with orthostatc hypotension that I have spoken to say they do not have any of the symptoms I experience. Moreover, I am not improving with exercise, it gives me chest throbbing.

I feel very short of breath, sitting or standing, severely heavy/tight chest at rest, when I lie down to sleep it feels like a rock is ontop, and when I sit up, it’s alleviated. I have severe stabbing chest pains throughout the day, tests normal for heart. A dry cough too and lightheadedness. With exercise I feel i can’t breathe well or take a full, comfortable breath in. All asthma inhalers haven’t done anything and my sats are always 99%.. It is just a feeling of difficulty breathing. No way is it any form of anxiety, I feel unwell permanently and know that is an entirely different, less worse feeling!

I am 20, normal weight, no prior health issues, all of this supposed “dysautonomia llness” began after taking two contraceptive pills 11 months ago. My symptoms have got much worse recently, can’t lie flat in bed at all and chest pain worse all over. I have never been given a CT scan. I know in my gut something more is wrong that could maybe be an easy fix. The doctors are really fobbing me off. I can’t even leave the house to go to my classes I feel so unwell and weak. I really don’t know if its dysautonomia, I never experienced a specific “flu” or “virus”, just the birth control pills (which gave me awful symptoms at the time so stopped them).

Any comments welcome x

[Ergendl]

Is your breathing shallow, from your upper chest, or deep, from your diaphragm?

[Hhkk in reply to Ergendl]

It feels like the breathing difficulty is coming from my airway, when I lie down my chest is very heavy and tight

[Ergendl in reply to Hhkk]

That suggests an asthmatic response, perhaps an inhaled allergy. Try a symptoms, diet and activity diary to see if you can spot something which may be causing a problem.