Diagnosed a year, feel worse today than ever

[keith9876]

Hi all, not had much to say Katey.

Doctors and hospitals, here there and everywhere, thought I was doing okay but felt a bit more off than usual last week, got 5 days of pred and finished them 2 days ago.

Since then I've been so short of breath and terribly tight chested, barely been able to drag my carcass out of bed.

About 20 mins ago I decided I really needed to eat something so made the journey downstairs to the kitchen, didn't get past the living room, heart was beating so fast I had to sit down, I checked my pulse and it was 150 🤔🤔, it's down to a steady 98 but it had me in a massive panic.

I live alone and don't really have anyone to talk to so thought a little message here always used to help my mindset.

Anyways, everyone have a great Christmas and New year 😁😁

[Vonnie50]

Hi keith, I live alone to and it can be terrifying I know. Not felt great for over a month had antibiotics and steroids felt a little better but soon as they stopped same again. Dr says there is no infection so confused. Hope we are both better very soon. Diagnosed this February

[keith9876 in reply to Vonnie50]

It's scary isn't it, I'm randomly texting old friends just for a natter 😐

[Vonnie50 in reply to keith9876]

I do the same although can get out of breath talking at the moment. Where do you live ?

[keith9876 in reply to Vonnie50]

Sunny Cheshire, not the posh part 😂😂

[Vonnie50 in reply to keith9876]

I am in Maidstone Kent shame we arnt a bit closer 🙃

[keith9876 in reply to Vonnie50]

That would be a hoot, comparing aches and pains 😂😂

[Vonnie50 in reply to keith9876]

Plus a good laugh at ourselves we are similar age. I thought only oldies got this

[keith9876 in reply to Vonnie50]

I only started smoking at 18 too, but had parents who both smoked, my poor mother had it for many years before she passed.

Not had a ciggie since diagnosed and don't ever want another, nobody thought I could give up my only vice 🧐🧐

[Vonnie50 in reply to keith9876]

I had no parents my nana brought me up she never smoked. I had given up 5 years before I was diagnosed ☹️ . I smoked 20 per day what a idiot I was . Anyway we must try help each other

[keith9876 in reply to Vonnie50]

Wish I'd never started, hindsight is such a wonderful thing 🤓

[Vonnie50 in reply to keith9876]

So true looking up magnesium looks promising

[keith9876 in reply to Vonnie50]

I've had a little gander, I'll try anything atm lol

[Vonnie50 in reply to keith9876]

Me too definitely. Off for tonight take care message soon 👍

[CLARAmay in reply to keith9876]

Hi there again yes both my parents smokesd. As soon as I was diagnosed I gave up straight away been 11 mths nearly now

[robert1957 in reply to Vonnie50]

hello vonnie 50 please research magnesium deficiency and symptoms of magnesium deficiency and you and Keith can compare findings goodluck

[Vonnie50 in reply to robert1957]

Thank you I will do x

[Ergendl in reply to keith9876]

Me too, south Cheshire. Hope you feel a bit better soon.

[keith9876]

Ty

[robert1957]

hello Keith please research magnesium deficiency and symptoms of magnesium deficiency goodluck it has helped me

[keith9876 in reply to robert1957]

Thank you, I shall do that right now

[HungryHufflepuff in reply to robert1957]

What magnesium do you take? Not wanting to hijack Keith’s post here (sorry Keith!) but I bought magnesium oxide 500mg tablets but they’re the size of suppositories and not coated and I can’t swallow them. I tried cutting them into bits but because they’re not coated they stick in my throat. Is there anything you would recommend?

[robert1957 in reply to HungryHufflepuff]

magnesium citrate is what I take magnesium oxide is very poor at getting into your system if you take 500mg only about 10 mg get's into your body if you take 500mg of magnesium citrate about 200 mg will get into your system

[HungryHufflepuff in reply to robert1957]

Thanks. I'll look at magnesium citrate 👍

[robert1957 in reply to HungryHufflepuff]

goodluck

[HungryHufflepuff]

Well I don’t have any answers but I just wanted to say hello and wish you a happy Christmas too. Take care of yourself 🎄

[keith9876 in reply to HungryHufflepuff]

Thank you so much and the same to you 😇😇

[Vonnie50]

Message anytime and I hope you have a great Christmas whatever your doing x

[keith9876 in reply to Vonnie50]

Thanks, you too to all statements 🤧🤧

[CLARAmay]

I hope you have a loverly relaxing Christmas, I calm my self down by my breathing 4 slow breaths in relax 6 slow breaths out plus I have meds to use only when I have a panic attack

[keith9876 in reply to CLARAmay]

Thank you very much, have yourself a good Christmas too.

[Deedee111]

hi Dee here it sounds to me u need to go back on the steroids . I am on 40mg a day more or less all the time there's bugs going around every where and if ur like me catch it all I got another chest infection get them all the time. So maybe u might have an infection as if u have a low imune system it might be that wish u nice xamas

[Vibraphone]

Best wishes to you. Hop you are feeling ok.

[watergazer]

sorry you're having such an awful time- hope you're feeling better soon - I wonder if parents smoking is a cause to all our lung problems? merry Christmas

[Sampson18]

Take care Keith

[katieoxo60]

Hi there, Don't get down that is what this site is for . I am one of the living alone members who dreads being ill too. My Granddaughter brought me a Xmas cake yesterday baked by my son. And I pop up to a freind for a chat and coffee tommorrow, its her day off from diaylisis today & tommorrow. Boxing day I will be with my family as thats their only day off work besides Christmas day with their Children. So I wish you a lovely Christmas hope you feel better and a much healthier new year. Had a massage myself this morning but the backs still painful, but thats an everyday thing especially in this cold ,damp weather. Have a look at Dons joke for the day might cheer you up xx

[Martinack59]

Hi Keith must be terrible for you whereabouts do you live

[goat-lady]

Hi yes another lung sufferer living solo. Husband died just under 2yrs ago. Have a host of critters to keep me going. Now I have completed my last batch of emergency meds n feel a bit better I'm planning to walk my billy kid round the village. Hoho could be chaos. Wishing u a good Xmas.

[keith9876 in reply to goat-lady]

Happy christmas

[keith9876]

Decided as bad as I feel, to brave a visit to my daughter's, a little walk around the town too.

Heart is ten to the dozen but it's only going to get worse over time if I don't do these things more often.

Sat on the bus with a nice bag of chicken chunks from Morrisons to eat when I get in

Happy days 😁

[Burbagegran]

I hope you manage to have a nice Christmas, Keith and that 2019 is a healthier and happy year for you.

[keith9876 in reply to Burbagegran]

Happy Christmas, have a good un

[Burbagegran in reply to keith9876]

Stay safe!

[Ern007]

Hi, Panic will cause a high heart rate. Living alone with these problems do not help. You maybe need something to calm you down,or at least lower your heart rate.. Maybe seeing a Dr with these specific symptoms would be a good idea, also may be a good idea to spend your time downstairs rather than in bed, would stop you having to climb. You probably by the sound of it eligible for a stair lift.. I moved to a bungalow as I could not cope with stairs which was not suitable for a chair lift. Take care and watch the stairs and try and watch TV, sometimes it distracts you from how you are feeling.. Happy Christmas.

[keith9876 in reply to Ern007]

Thanks for the reply, I'm normally great at getting up and downstairs, think I've just got a little bit of an infection, was getting bad over the last few days and hadn't eaten much either.

Still feeling a tad painy today but feels like I'm on the mend 👍

[Ern007 in reply to keith9876]

Glad you are on the mend. My bad time for infections is Jan and Feb. -

[Deedee111]

sorry to hear u had a bad time of things do u think the weather being up and down doesn't help.