Need answers

[Dion3844o1]

Hi everyone not posted for a while just been looking through but now wondering if anyone else is having the same trouble ,well on this site they would be it's really getting me down now for prob 3yrs IV had repeated infections every other week even before IV finished the antibiotics so used to my body I know the next 1 is coming IV been told I have different things or when I go see a Dr or specialist they say it in different ways which confuses me more I feel dizzy most the time ,I told the Dr she just said well it's part of your illness ,o ok so I'm just gonna have to carry on feeling as though I'm walking sidewards am I,at the moment I'm on a 10 day IV at home due to finish Sunday I can already tell the infections still there if this don't work it's long term antibiotics ? I have rumathoyd artiritus /mixed connective tissue disease and ild I'm waiting for my infection to clear so I can go on immune suppressants to get rid of the inflammation in my lungs I can't see a way out of this IV tried thinking positive but my life revolves around my illness I can't do anything as anyone been in a similar situation?x

[Katinka46]

Hello Dion

You seem to be having a thoroughly miserable time. Have you been given a diagnosis for your lung condition? I see you have Lupus. And has this resulted in bronchiectasis? Or another airways disease? It must be a nightmare trying to make sense of conflicting advice.

All the best and jeep us informed.

Kate xx

[Dion3844o1 in reply to Katinka46]

Hi I have another lung disease but the drs keep calling it different things so it confuses me and the mctd they say it's not lupus is so confusing x

[Katinka46 in reply to Dion3844o1]

I was curious because I know that autoimmune disease, (such as Lupus, RA) and connective tissue diseases can cause the condition that I have: Obliterative Bronchiolitis, which is also known as Bronchiolitis Obliterans, and Constrictive Bronchiolitis. I don’t get infections, wheezing, congestion, mucus production, or coughing. Which made me wonder if you had bronchiectasis. I know it’s hard but the doctors should take time to explain things.

Kate x

[Superzob]

You say you're on antibiotics, but not whether you've actually been tested for a bacterial infection. I was on antibiotics last year for months (for a different bacterial infection) and was constantly getting VIRAL infections as a result. Antibiotics tend to alter the balance of pathogens in the body, so you're more likely to suffer from viral and fungal infections. If it can be determined that you don't actually have a bacterial infection, you could get off the antibiotics and might find the infections clear up because they're viral in nature. Worth having a word with your GP about that.

[Dion3844o1 in reply to Superzob]

I have a bacterial infection always the same x

[Superzob in reply to Dion3844o1]

Sorry to hear that. Which antibiotic are you on?

[Dion3844o1]

Not really sure of name as it a IV x