Whats happening?

[janice01]

Hi all, this is my first post on here.

10 or 11 weeks ago l had inflenza (yes l did have the flu jab) . Temp 102 for 8 days... usual antibiotic cipro etc...

Have asthma, Bronchiectesis, COPD.... with 32% lung function as of 2005. Oxygen says steady at 89 - 94. Using neb a.m and p.m. Producing a little white secretion several tines daily. Take cotrimoxasil daily, usually with antibiotic 'holiday' June - Sept.

Problem now is with exhaling and it's not improving. Have gone from1.2 on spiromitary to .6 and can do very little. I was told the problem is with the tubes.

I'm to have a CT scan at Brompton next Wed and am anxious as to what will happen from then.

Having been fairly stable over last 12-13yrs and bouncing back from chest infections, it's not happening now.

What could be next step? Thanks all....

[Lilian226]

Welcome Janice. I can't help with your questions but someone will come along and know what they are talking about. These awful infections! I hope you can get it all sorted out. Lilian xxxxxx

[Caspiana]

Hello janice01 .

Welcome. 😀🌹

It's so understandable to be worried. I have a lung function test on Tuesday and I'm afraid of seeing the results although I've told myself it's okay if it doesn't go too well. 😬

I too have trouble exhaling. I have air trapping and some hyperinflation. I have a disease of the small airways called Obliterative Bronchiolitis. This is basically the scarring or obliteration of the bronchioles. I am awaiting a lung transplant. Basically, there is nothing they can do for me.

However!! This may not be the case for you. 😊Please go to the Brompton with an open mind. I hear they are an excellent hospital with a marvellous respiratory team and you will be in very good care.

Please do let us know how it goes.

Sending warm wishes.

Cas xx 🌞

[Lilian226 in reply to Caspiana]

Best of luck with your function test Cas. Lilian xxxx

[Caspiana in reply to Lilian226]

Thank you very much Lilian. xx 😘

[Annie31 in reply to Caspiana]

Good luck on Tuesday Cas! xx

[Caspiana in reply to Annie31]

Thank you Annie31 . xx 😍

[Hidden in reply to Caspiana]

Good luck for Tuesday Cas, hope you are eligible for that transplant soon enough xx

Fran

[Caspiana in reply to Hidden]

I will wait patiently Fran, thank you. xx 😘

[Dedalus in reply to Caspiana]

Good luck for Tuesday Cas - try to stay as calm as possible (I'm the same - I stress about the results as if I'm trying to pass an exam lol). Please let us know how you get on xxxx

[Caspiana in reply to Dedalus]

Thank you. I will. xx 😘

[Hacienda in reply to Caspiana]

I will be thinking of you Cas for Tomorrow. Love n Hugs to you my Dear. XXXXX

[Caspiana in reply to Hacienda]

Thank you Carolina. *HUGS* xx 🙋🐕

[janice01 in reply to Caspiana]

Thanks Caspiana x

[Covenham]

Hello Janice 😊

Regarding your Post on Ciprofloxacin, I have to say it has been a good drug for me over the past 8 years.

I use it alongside Fostair and Ventolin (both are puffers) and I nebulise with Promixin (aka Colomycin) twice a day (am & pm) using the iNeb.

I have Bronchiectasis and Asthma and I’m currently ‘stabilised’ with my conditions, thankfully.

I hope all goes well for you at The Brompton.

Best wishes.

[Stumpy55]

Hello janice01, I can understand your concerns but try as hard as it is not to worry too much, because at the end of the day it might not be as bad as you think🤞welcome to our forum Janice, please let us know how you get on? 🌹🙂

[janice01 in reply to Stumpy55]

Thanks Stumpy

[Hidden]

Welcome Janice 🌸

Flu threw you back..sometimes we go through bad spells and it is difficult to pull through but you will. You will be in very good hands at the Brompton and they will sort you out.

Take good care of yourself and let us know how you got on xx

Fran

[janice01 in reply to Hidden]

Thank you Fran...

[Annie31]

All good wishes and hope things turn out well for you at the hospital. xx

[Dedalus]

Hello and welcome. Hope you 'll get the answers you need after your CT scan at the Brompton on Wednesday x

[Hacienda]

Welcome Hun, 12 / 13 Years, you have managed to control your Breathing, well done you. Yes, the exhaling for me is a problem, though I do Breathing exercises every day and I have a salt Pipe along with my Oxygen. As I have got Older the COPD worsens, I'm on the Transplant List, have been for 2 years now, also awaiting valve insertion hopefully very soon. Take each day and make the Best of it, Now we have this Glorious weather I'll be out Sunbathing Under my Parasol. Off this Morning to buy some Plants and we, me & hubby, will plant some lovely colours. that makes us feel a lot better. take care Janice, everyone on here is your Friend and will listen and help as they can do. Love n Hugs, Carolina XXXXX

[janice01]

Thank you so much Carolina x x