New to the forum.

[Judith56]

Hello everyone, I have been reading the posts for awhile now. So much wonderful information. Just like some of you shortness of breath gets me and no energy. I have stage 3 so they say. I have battled one infection after another this winter. I am 62 and trying to continue to work, it is so frustrating. I have always been the one they had to say you’ve done enough to. Now I feel trapped with my wings clipped. I feel guilty for missing work, not helping at home a multitude of things. I know from reading the forum I should not but I also know you all understand the feeling. Conversations with my God about how I have done in my life. I don’t want sympathy just needed to get it out. Thanks peeps!

[wheezyof]

Hello Judith,

We're here to listen. 'Getting it off your chest' is very apt for us lot. When you've always been busy, active, healthy it comes as a shock to be held down by a chronic condition. You are right that you should not feel guilty for time off or slowing down a little.

Think back to when you were fit, rushing about. If a friend had been struggling because of their health I bet you would have been supportive, told them to take the time they needed to get well. It's now time to be your own best friend and tell yourself, "Do what you can but if you need time to recover then take it"

Keep as well as you can xx

[Judith56 in reply to wheezyof]

Thank you for the kind words. Yes, it’s a bit crazy in my life right now as you well know. Stay strong and healthy wheezyof

[K-Kilcoyne]

Your welcome, we all go through the same, sometimes we just need to vent at the world but from this site that it's not the end just an adjustment to our way of life.

Keep thinking positive and having a go on here.

Take care Judith

[Maximonkey]

Hi Judith, we have all been in your shoes and we all need a rant now and then. Think what you want and need to do. Maybe you are trying too hard to be the woman who does everything. There's nothing like a lung disease to stop you in your tracks and make you revaluate your life. Take care and if you need anything we are here and willing to listen and help if we can. Maximonkey

[mskpjb]

HI Judith56 and welcome to the group. You won't be a newbie very long and I understand what you mean about taking stock of your life. I was always the one that people turned to and could rely on. The word " can't " wasn't in my vocabulary. Now I have to think about me, which seems very selfish till I tell myself that if I don't then I'm going to create problems for my family. Stop musing over the past and live for today. Take care, Sheila x

[Hidden]

Welcome Judith, this is a wonderful supportive group and somewhere you can vent, ask questions or just chat about anything. Take care of yourself now, you've had a busy life and can continue to do so but at your own pace. That way you can carry on enjoying life. All the best x

[Caspiana]

Hello Judith56 .

Just wanted to say welcome to the forum and I am so glad you've joined us. Have a lovely weekend.

Cas xx 🌹

[sylvnan]

Hi Judith, I know exactly how you feel, been there, done it, got the T shirt. I have Pulmonary Fibrosis, had it for a little over six/seven years now (stopped counting). When diagnosed the Lung Specialist told me (because I told him I wanted the long term prognosis) I COULD make three/five years. Well I am now on borrowed time, but have no intention of letting diseases such as this finish me off! I was terribly upset and felt that life was over, but with the support of a wonderful husband of 56 years and two children married and blessing me with four beautiful grandchildren, life is for the living. In my young days I was a dancer, in the end running a dancing school when I got married, so not being able to do "normal day to day" things came as a terrible shock. I have oxygen at home for when things get tough, and I have to pace myself with moving around. I am afraid I can't do any housework, or cooking, (good old hubby) and I have a lovely Macmillan nurse who calls in once a month to have a chat and check how things are going. Don't get out a lot as I have to use a wheelchair, and I am not a fan of than I am afraid, however, when needs must, I do put my pride in my pocket and use it. I am afraid my walking is not great as I have had two hip replacement operations.

Keep smiling, and enjoy the sunshine.

Love Sylvia

[Judith56 in reply to sylvnan]

Thank you sylvnan,

We will weather the storm together. I hope there is sunshine in your day!