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Lung Conditions Community Forum

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How to find this forum

Difficul profile image
14 Replies

I have been looked at the Asthma & Lung website but can't see where this forum is mentioned. How do potential new members find it to sign up please?

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Difficul profile image
Difficul
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14 Replies
knitter profile image
knitter

hi and welcome .

I have just looked through the ALUK website ( after by mistake looking at Aluminium doors and windows web site ) and can’t see this HU site mentioned either .

I joined when it was still British Lung Foundation BLF in 2013 I think .

I can read your post OK , I hope you can see my reply .

Difficul profile image
Difficul in reply to knitter

Yes thank you I can see your reply, Knitter. I also joined when it was BLF.

peege profile image
peege

It seems to me that you're already on the forum! This is AsthmalungUK (used to be the BLF forum). You wouldn't be able to post if you weren't already a member.

Once someone has found asthmalunguk you just click the 'follow' button

Difficul profile image
Difficul in reply to peege

Peege - thank you for replying. Yes, of course, I am already a member. I was actually thinking about how a potential new member might find the forum.

Ergendl profile image
Ergendl

There seem to have been a few issues since the British Lung Foundation joined the Asthma UK charity. This is one of them.

They also removed a lot of the support groups from their website list of support groups, without telling the people running them that they had done so.

I have been running my singing for lung health group since 2015, using my skills as a retired dietitian, teacher and present church Director of Music (with qualifications to back my practice), and the support of local respiratory physios. My group was listed on the British Lung Foundation website, but dropped without warning as part of the amalgamation. A representative of the charity has told me I have to do a £500 course before they will list my group again. This is because they want to ensure standardisation of services.

Lee_Scoresby profile image
Lee_Scoresby in reply to Ergendl

I have just searched on “singing for lung health” and a lot of info and access information came up.

asthmaandlung.org.uk/condit...

Difficul profile image
Difficul in reply to Lee_Scoresby

Did you click on it?

Lee_Scoresby profile image
Lee_Scoresby in reply to Difficul

Yes - and it's a copy of the URL from that page.

Difficul profile image
Difficul in reply to Lee_Scoresby

Interestingly it works within the forum but not from my email inbox.

Ergendl profile image
Ergendl in reply to Lee_Scoresby

I've looked the page over, and can see my group would be considered as an Independent Group for listing. Thanks for this.

Lee_Scoresby profile image
Lee_Scoresby in reply to Ergendl

Good luck 🙂

AsthmaandLung profile image
AsthmaandLungAdministrator

Hello Difficul

Here is the link to the forum. It is listed on the bottom of our Helpline Page

asthmaandlung.org.uk/helpline

Or you can find the link under Healthunlocked- Lung Conditions

healthunlocked.com/asthmalu...

Best wishes

Helpline Team

MoosterMoo profile image
MoosterMoo

Hi Difficul, I joined a year ago. I googled ' lung disease forums' and luckily, this one popped up.

Difficul profile image
Difficul in reply to MoosterMoo

Thank you, MoosterMoo. It's reassuring to know that people can still find the forum. How would we all manage without the internet.

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