Zack

[Collington]

I had C.O.P.D.and Bronchiectasis 9/12 years brought large scab up pneumonia 3 times on top level off medication .Have bone problems

But main thing is COPD Bronchiectasis I have infections i don't go out until finished 14 days and feeling better .I live my life round weather make sure its right for me befor go out

My life has i new it has gone but life goes on in a different way .Doesn't help when i have lost so much though having it lost home i lived in and loved my house but could not get stair lift due to wall not being solid half way up ,We have to pay rent full at that ,Anyway just had infection had antibiotic 14 days .

But for a while know i been so tied i can not get up i want to sleep sleep all time dont get up most day till afternoon when i have got up morning i am like zombie so so tied my Dr is the best did all bloods all fine had xray something showed up think may be a deep seated infection got to repeat 6 weeks time see if can pin down what it may be . My breathing is so bad my lips go blue my eyes red and nose cheeks grey Just dont know whats going on 94 oxygen level .walking from one side off room back and back again proofs do not need oxygen

My Dr sending me to hart people see if that could be something .

If i go out one day only about 1 1/2 hours i can't go out next day

i was wondering is anyone else like this please let me know nurse who does my yearly opps said 3 rd stage so i dont know but soon be 10 years

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Are you seeing a consultant with a special interest in bronchiectasis? If not, you should be. From what you say, this is beyond your GP's management and definitely outside the knowledge of a nurse.

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Aren’t you going to hospital to see a consultant? I would ask for a referral if you haven’t...Heart and lungs are all connected yes, you need that oxygen to keep going..94 is not bad. Under 90 is no good.

Pneumonia and infections take a lot out of you..

Having a good rest in between going out is normal...

Once you go to your heart specialist you should be in good hands. You have to keep pushing for specialist help.

I hope you don’t have to wait too long.

Phone the BLF helpline in the meantime to get extra info and help.

Take care x

[Carnival567]

I have heart and lung problems as well as osteoporosis and depression and my GP did blood tests for vitamins and minerals. As a result I now take a variety of supplements, some prescribed, some she recommended, so it might be worth asking for a check for these. The main deficiencies were folic acid and vitamin D3. Worth a try if it hasn't already been done. You have to fight for yourself a lot of the time. I hope you feel better soon.

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Have you been checked for sleep apnea? If you wake a lot in the night and snore, get your other half to see if you stop breathing for a minute or so. Apart from being very dangerous it will make you like a zombie in the day time as you never get that depth of sleep that refreshes you. Answer is a CPAP machine you use at night. I believe it also helps my bronchiectasis as I now get a decent sleep each night.