So I left a message to the respiratory specialist and said I am seeing the hospital doctor on the 8th do you have an comments?
He phoned me yesterday I thought ho ho what’s up..he said he didn’t like it, he wants we keep an eye on it, it has to do with white blood cells? So I said what? cancer? So obviously he didn’t want it to discuss over the phone on a Friday night after work 😃 but we have known each other for a long time now. He said talk to the clinician and we keep an eye on it every 6 months.
So I start googling Immunofixation and I see it could be indeed first stage of a myeloma. Wonderful I thought that’s all I need..but I’m no doctor to form a diagnosis based on Wiki reading😉
Wrote to my Lammies friends. Quite a few of them are having this problem. One of them is having gammaglobulin IV every month it dropped so low..So could be LAM related I thought..
Anyway got to be proactive guys I will write to the LAM specialist in Lyons and send him my results and see that he thinks.
Thanks for reading friends x
Sorry if I vented..
We deserve a pretty picture..the Eiffel tower for a change 🌸🌷🌺
Happy Fran,the fact that he said we will keep an eye on it every 6 months sounds like he is not overly concerned,i think if it was any more drastic he would be elevating procedures and investigations.Keep that happy smile and positive attitude going my lovely lady ................skis and optimistic scruffs xx
Hoping it's not going to be serious but totally understand your concern. Good that you have other people with LAm that you can consult with. Fingers crossed for you.
Yes I joined the association. It is a good thing to do. So few of us and a woman only disease you see. Quite strange. A few girls and I are meeting on the 18th for lunch.
Are your white blood cells very low Fran? Mine dropped dangerously low about 2 years ago, I was referred to a haematologist because of suspected Lymphoma. He performed a bone marrow biopsy, not pleasant!!, but thankfully I got the all clear. Not sure if this is any help to you.
Now you mention it I am looking, my blood cells are just within the norm.
Proteins are low but C reactive is higher, immunology is low. And this immunofixation where it is written As per 24.08 analysis discreet abnormality IgM Kappa hardly visible to confirm the presence of a monoclonal Ig. To control in 6 months.
You cannot worry and everyone in God's little green earth knows we shouldn't google symptoms! I am preaching to the choir here every 6 months does not sound that forboding. This is something I do too much of. Best to take a wait and see attitude. In the meantime get some cat therapy. 😺
Hi...the six monthly blood test means one of the IG s is up a little . But at this stage it could well NOT be myeloma.....If myeloma is one end of a price of string the other end is Benign paraproteinemia...... Six monthly blood tests are the norm..... There is a strong possibility that the next test will be normal . The diagnosis of myeloma is usually confirmed with a positive BJP urine test along with the blood test. Apart from which If there's been a hiccup in bone marrow cell production you will be on six monthly blood tests for ever more. Even though the results are normal each time.
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Update - cavitating lung lesion 3.7cm
View from the Hospital
Bronchiectasis update
