Good Day to all of you- Thank you for sharing & holding on-wishing you all the very best in your futures. I am so touched by your stories, I have to say, that sometimes it's difficult for me to log in. I have I.L.D. (Interstitial lung decease). In 2015-2016 I surely thought I was dying- Since then, I've been well looked after by a wonderful medical team here in BC. Canada. Recently, with lower doses of prednisone, & the higher doses of mycophenolate I feel so much better. I had pneumonia a few times since the beginning- still hard to breath- Not on the transplant list as yet,- tying to stay as positive as I can to carry on with what is left. Since my decease has not progressed recently- & still have 42% lungs left, I have slowed down considerably, there is still lots of chest pain and coughing. But I lam very fortunate to have my husband who stands by my side & is there for me. I'm not on the computer daily, but do try to look-in when I can with ya'll. Stay Positive. Take care. Sincerely.
Hi MicBel here, just checking-in - Lung Conditions C...
Hi MicBel here, just checking-in
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MicBel
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Welcome to you MicBel and feel free to chat anytime you want to. Take care xxxxx
Hello to you and a warm welcome.
Hi I saw your original post from 8 months ago. Glad you are stable. I too have an interstitial lung disease. Glad the medications are doing their best for you.
Big hug to you and your lovely supportive husband x
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