Hi I haven't posted for a while so I thought I'd let you know how things have Been I actually done a post last night it took ages then I don't know what happened to it so here goes again .After a lot of chew I got a loan of a IGo portable Concentrator and 4cannisters to use at our touring caravan I did ask for more canisters they don't last long having been put up to 3and4. I've Been trying to get in touch with my oxygen nurse for weeks because she was going to sort it out for me so I telephoned her but got no answer then left message on her phone no reply then phoned and got a message saying she is off all of August so phoned O800 number 3Days on a trot kept being told would be ring back by this this time I was so frustrated Then decided to write a letter and gave it to Frank to take to where they do the walking test finally I got some feed back and now have A lone of 4 canisters need at least 2 more and Concentrator till September I find it a bit of a struggle with canisters but no aLternative because I'm on liquid I'm dissapointed that I can't use POC with wheelchair to big and I'm a mouth breather So we took caravan to a quiet country site not far from home not many there only 6 vans including ours and only saw 2 people in distance fine by me bit of a bind that Frank couldn't put the awning up hard standing pitch he was going to cook in the awning whilst I sat in van or vice versa But I had to sit in car while he cooked not very nice .On the Saturday we went into the little market town where I encountered a few stares of little girls the heavens opened so I bought some first defence then back to the van .There was a little country pub on the site and Frank really wanted me to go in son had popped up to see us so Under duress I went in after I had sent them to check it out found a little corner to tuck myself in with wheelchair only 2 customers it was tea time only stayed for 1 drink started to have panic attack and could not Breathe I wanted to go home but Frank had had a pint so couldn't took ages to recover .and lay awake all night this is so hard .Since finishing PR I'm afraid I've not kept excercises up so I took the proverbial by the horn and found a Breathe easy group 10 mile away that do light excercise in chairs so I went along then the next week my Bad luck started again my chair lift packed up I was stranded Frank phoned singe nets at 8am and they assured him they would be here soon told them we needed to be at a appointment at 11am and told no problem they turned up at 1am so obviously didn't get .I am still getting lots of pain had my morphine dose put up again at the hospice it's a struggle .The nurse practitioner has arranged for me to have a matron again for a further 12weeks which I am pleased about I know I need support getting lots of breathing problems and panic attacks trying hard to cope but not sure I'm getting anywhere .The other week at the hospice I went into the garden for a vape when I rang the Bell to go in I felt ill they took my sats 43 heart rate 144 sat with me till I recovered had a further do later in the day in the Bathroom Well that's about it except I've been on abs and steroids wish the steroids would give me a appetite living on smoothies one last thing Frank went to the Doctors yesterday to pick up my Morphine tablets they couldn't find the script or the form Frank had to sign so they said they would phone him when they had spoke to the Doctor to get another script time ticked by they hadn't phoned so Frank went Back over they had forgot to phone us par for the course well that's all folks now hope this doesn't disapear .
O
En
Catching up 
Liquid Oxygen; Wonder if you can help.
